PSYCHOSOCIAL CORE

心理社会核心

• 批准号: 6917506
• 负责人: Mary Sherman Mittelman
• 金额: $ 14.28万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-05-01 至 2010-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6917506
• 关键词: Alzheimer' s disease; behavioral /social science research tag; biomedical facility; caregivers; clinical research; genetic counseling; health services research tag; human subject; mental health counseling; psychosocial service; quality of life

The Psychosocial Core conducts a comprehensive assessment of the primary caregivers of all subjects participating in the Clinical Core, and family members of those with MCI and AD, follows them longitudinally and provides them with counseling on request. The routine structured multifaceted assessment is in two parts: the first part includes measures of depression, anxiety, social network and support and quality of life; the second part measures family conflict, behavior problems and caregiver reaction, caregiver appraisal, formal and informal support utilization and other specific characteristics related to caregiving. Family members of patients with AD complete the entire assessment. Subjects with MCI, their study partners and cognitively normal subjects who are not caregivers complete only the first part of this assessment. At the conclusion of every diagnostic evaluation of the Clinical Core, counselors of the Psychosocial Core conduct conferences with the subject, primary caregiver (if appropriate) and other family members. The counseling staff is available to respond to requests for help and information, are a user-friendly resource and a link between center subjects and other center staff. They make regular follow-up telephone calls to all participants in the Psychosocial Core. Their activities facilitate recruitment of new subjects, retention of current subjects and participation of subjects in autopsy tracking and in research studies. The Psychosocial Core data is a resource for the research of the NYU Psychosocial Research Program, and for other collaborating investigators in the field. The Psychosocial Core includes a comprehensive genetic counseling and education program, which will serve the goals of the NIA-Genetics Initiative and ADCC-affiliated researchers in genetics and proteomics and provide data to extend our evaluations of psychosocial interventions to include development of effective counseling and support for concerned subjects and family members about genetic risk for AD. The large database and subject pool, to which we will continue to add new subjects and longitudinal information, will be a valuable research resource in its own right and foster the formulation of new research to improve caregiver and patient well-being.

心理社会核心对参与临床核心的所有受试者的主要照顾者以及MCI和AD患者的家庭成员进行全面评估，纵向跟踪他们，并应要求为他们提供咨询。常规的结构化多方面评估分为两部分：第一部分包括抑郁、焦虑、社会网络、支持和生活质量的测量；第二部分测量家庭冲突、行为问题和照顾者反应、照顾者评价、正式和非正式支持利用以及其他与照看有关的具体特征。阿尔茨海默病患者的家属完成整个评估。患有MCI的受试者、他们的研究伙伴以及非照顾者的认知正常受试者只完成了这项评估的第一部分。 在临床核心的每次诊断性评估结束时，心理社会核心的顾问与受试者、主要照顾者(如果合适)和其他家庭成员举行会议。咨询工作人员可以回应求助和信息请求，是一个用户友好的资源，是中心主体和其他中心工作人员之间的联系纽带。他们定期给心理社会核心的所有参与者打后续电话。它们的活动促进了新科目的招募、保留现有科目和 受试者参与尸检追踪和研究研究。心理社会核心数据是纽约大学心理社会研究项目的研究资源，也是该领域其他合作研究人员的资源。心理社会核心包括一个全面的遗传咨询和教育计划，它将服务于NIA-遗传学倡议和ADCC附属遗传学和蛋白质组学研究人员的目标，并提供数据来扩展我们对心理社会干预的评估，包括开发有效的咨询和 为关心阿尔茨海默病遗传风险的对象和家庭成员提供支持。大型数据库和主题库，我们将继续向其中添加新的主题和纵向 信息，本身将是一个有价值的研究资源，并促进制定新的研究，以改善照顾者和患者的福祉。