Improving Child Health: The Role of Policymakers in Prevention and Treatment of B

描述（由申请人提供）：国家立法机构会议（NCSL）建议通过三次年度会议研究决策者对政府在预防和治疗出生缺陷和发育障碍方面的作用的看法。会议将审查决策者如何看待他们在预防和治疗出生缺陷和发育残疾方面的作用;确定决策者在新生儿筛查、出生缺陷监测、研究、信息和数据共享、教育、外联和公共卫生服务等具体领域正在采取的行动;并分析特定行动的结果，如在上述领域通过立法或颁布法规，以改善预防、检测、监测、护理质量，以及获得出生缺陷和发育残疾护理的机会。会议的目标是：（1）确定州和联邦决策者为预防和治疗出生缺陷和发育残疾而采用的政策方法的范围;（2）通过公共方案促进关于预防和治疗出生缺陷和发育残疾的新战略的信息共享;（3）通过向决策者通报研究活动，为将科学研究和技术转化为公共卫生方案开辟新途径;以及（4）最终通过提高出生缺陷和发育残疾预防和治疗的质量和可及性来改善儿童的生活。

DESCRIPTION (provided by the applicant): The National Conference of State Legislatures (NCSL) proposes to study the views of policymakers on the role of government in the prevention and treatment of birth defects and developmental disabilities through three annual conferences. The conferences will examine how policymakers perceive their role with respect to the prevention and treatment of birth defects and developmental disabilities; identify actions that policymakers are taking in specific areas such as newborn screening, birth defects monitoring, research, information and data sharing, education, outreach, and public health services; and analyze the outcome of particular actions such as the passage of legislation or promulgation of regulations in the areas specified above in terms of improved prevention, detection, surveillance, quality of care, and access to care for birth defects and developmental disabilities. The objectives of the conferences are: (1) To identify the range of policy approaches utilized by state and federal policymakers to address the prevention and treatment of birth defects and developmental disabilities; (2) To foster information sharing about new strategies to prevent and treat birth defects and developmental disabilities through public programs; (3) To develop new pathways for the translation of scientific research and technology into public health programs by informing policymakers about research activities; and (4), ultimately, to better the lives of children through improved quality and access to birth defects and developmental disabilities prevention and treatment.