Giving an adult life after Fontan surgery to those with the most severe congenital heart conditions

丰坦手术后，为患有最严重先天性心脏病的患者提供成年生活

• 批准号: nhmrc : GNT1076849
• 负责人: A/Pr Kim Dalziel
• 金额: $ 125.02万
• 依托单位国家: 澳大利亚
• 项目类别: Partnerships
• 财政年份: 2014
• 资助国家: 澳大利亚
• 起止时间: 2014-01-01 至 无数据
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/giving-an-adult-heart-conditions/1345146
• 关键词: Giving; adult; life; after; Fontan

The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperation.

Fontan手术是为出生时只有一个泵心腔（心室）的婴儿进行的一系列手术中的最后一个。在同类最大的研究中，澳大利亚和新西兰Fontan Registry与Heartkids合作，父母协会和国家心脏基金会打算改善他们步入成年后的生活。我们相信，我们新的标准化护理模式将降低他们发生中风和再次手术等不良事件的风险。