Parkinson's Disease Data Organizing Center

帕金森病数据组织中心

• 批准号: 7498641
• 负责人: ROGER M KURLAN
• 金额: $ 6.5万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-30 至 2009-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7498641
• 关键词: Cataloging; Catalogs; Clinical; Collection; Data; Databases; Development; Parkinson Disease; Patients; Research; Research Personnel; Resources; Site; Universities; research study; response

In response to RFA-NS-NS-05-001, we propose to establish a Parkinson's Disease Data Organizing Center (PD-DOC) at the University of Rochester. In keeping with the RFA, the PD-DOC will: 1) establish, maintain and disseminate a shared, central and standardized longitudinal database in support of the _rospective collection and analysis of clinical, neuropathological and biologic data from patients with PD and ;ontrols, 2) assess and move toward the potential integration of relevant pre-existing databases, 3) assist investigators planning to perform research studies using the shared database, 4) prepare and maintain an up-to-date catalog of research materials at participating sites that might be used for PD research and, 5) coordiante annual meetings of the PD-DOC Steering Committee. The University of Rochester has extensive expertise and resources which will facilitate the development of a highly successful PD-DOC. The PD-DOC will be a critical force in advancing collaborative research in PD.

针对RFA-NS-NS-05-001，我们建议建立帕金森病数据组织 罗切斯特大学的PD-DOC中心。根据RFA，PD-DOC将：1)建立， 维护和传播共享的、中央的和标准化的纵向数据库，以支持 回顾性收集和分析帕金森病患者的临床、神经病理和生物学资料 ；控制，2)评估和迈向相关现有数据库的潜在整合，3)协助 计划使用共享数据库进行研究的调查人员，4)准备和维护 参与地点可能用于PD研究的最新研究材料目录和，5) PD-DOC指导委员会协调年度会议。罗切斯特大学拥有广泛的 专业知识和资源，这将促进发展一个非常成功的PD-DOC。PD-DOC 将是推动帕金森病合作研究的关键力量。