Parkinson's Disease Data Organizing Center

帕金森病数据组织中心

• 批准号: 7564086
• 负责人: ROGER M KURLAN
• 金额: $ 120.74万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-30 至 2009-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7564086
• 关键词: Cataloging; Catalogs; Clinical; Collection; Data; Databases; Development; Parkinson Disease; Patients; Research; Research Personnel; Resources; Site; Universities; longitudinal database; meetings; prospective; research study; response

DESCRIPTION (provided by applicant): In response to RFA-NS-NS-05-001, we propose to establish a Parkinson's Disease Data Organizing Center (PD-DOC) at the University of Rochester. In keeping with the RFA, the PD-DOC will: 1) establish, maintain and disseminate a shared, central and standardized longitudinal database in support of the prospective collection and analysis of clinical, neuropathological and biologic data from patients with PD and controls, 2) assess and move toward the potential integration of relevant pre-existing databases, 3) assist investigators planning to perform research studies using the shared database, 4) prepare and maintain an up-to-date catalog of research materials at participating sites that might be used for PD research and, 5) coordinate annual meetings of the PD-DOC Steering Committee. The University of Rochester has extensive expertise and resources which will facilitate the development of a highly successful PD-DOC. The PD-DOC will be a critical force in advancing collaborative research in PD.

根据RFA-NS-NS-05-001的要求，我们建议在罗切斯特大学建立帕金森病数据组织中心（PD-DOC）。为配合《条例》的规定，本署会：1)建立、维护和传播一个共享的、中央的和标准化的纵向数据库，以支持PD患者和对照组的临床、神经病理和生物学数据的前瞻性收集和分析；2)评估并朝着相关已有数据库的潜在整合迈进；3)协助研究者计划使用共享数据库进行研究。4)在参与站点准备并维护可能用于PD研究的最新研究材料目录；5)协调PD- doc指导委员会的年度会议。罗彻斯特大学拥有广泛的专业知识和资源，这将促进PD-DOC的成功发展。PD- doc将成为推进PD合作研究的关键力量。