Facing Cleft

面对裂口

• 批准号: 7434554
• 负责人: Karen M Gavin-Evans
• 金额: $ 32.12万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2001
• 资助国家: 美国
• 起止时间: 2001-04-01 至 2011-11-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7434554
• 关键词: Accounting; Address; Adolescence; Advocacy; Advocate; Affect; Ally; Anxiety; Appendix; Awareness; Bilateral; Birth; Boxing; Breast Feeding; Calculi; Caring; Child; Cleaved cell; Cleft Lip; Cleft Palate; Client; Clinic; Cognitive; Collaborations; Communication; Communities; Congenital Abnormality; Coping Skills; Country; Dental; Dental Care; Dentists; Development; Disabled Persons; Disease; District of Columbia; Education; Educational Status; Educational process of instructing; Effectiveness; Emotional; Ensure; Evaluation; Eye; Face; Family; Feedback; Feeding Methods; Feeling; Fostering; Foundations; Friends; Future; Goals; Happiness; Health; Health Communication; Hospitals; Housing; Incidence; Individual; Infant; Instruction; International; Internet; Interview; Knowledge; Learning; Letters; Libraries; Life; Medical; Medical center; Mental Health; Methods; Monitor; Multimedia; Nonprofit Organizations; Operative Surgical Procedures; Outcome; Pain management; Palate; Pamphlets; Parenting Education; Parents; Phase; Population; Printing; Problem behavior; Provider; Psychologist; Published Comment; Purpose; Range; Rate; Reading; Recommendation; Reconstructive Surgical Procedures; Recruitment Activity; Research; Research Proposals; Resources; Risk; Sampling; School-Age Population; Secure; Shapes; Site; Small Business Innovation Research Grant; Smiling; Social Aspects of Cancer; Social support; Speech; Speech Pathologist; Speech Therapy; Standards of Weights and Measures; Stigmata; Stress; Surgeon; Surveys; Target Populations; Techniques; Technology; Teenagers; Time; Title; United States; Vertebral column; Videotape; Work; advocacy organizations; base; cleft lip and palate; concept; coping; cost; craniofacial; design; expectation; feeding; flyer; impression; improved; innovation; interest; multidisciplinary; outreach; peer; preference; programs; psychologic; psychosocial; self esteem; social; social skills; social stigma; teacher; teenage parents; ward

DESCRIPTION (provided by applicant): The purpose of this Small Business Innovation Research Phase II proposal is to continue the development and evaluation of Facing Cleft: Encouraging Health Development, an educational package to support parents of a child born with a cleft lip and/or cleft palate (CLP). Facing Cleft is designed to educate and support parents in addressing the challenges of CLP constructively with the goal of improving outcomes for children with the disorder and their families. In Phase II, we will expand upon the products developed during Phase I to create a comprehensive resource for parents of a child with CLP from birth through adolescence including a modular DVD/VHS library and print materials. The goals of the Facing Cleft package are to: 1) Provide accurate information and support to new parents of children with CLP shortly after the birth of the child; 2) Give parents long-term resources to support optimal development as their child grows; 3)Increase knowledge and coping skills, while decreasing anxiety, in the parents of a child with CLP; and 4) Enable classroom education about CLP to increase knowledge and positive attitudes towards children with CLP. During the ambitious Phase I project period, the project team established a strong foundation for the Phase II specific aims, which are to: 1) Complete the development of a comprehensive, educational resource for parents on CLP, including a DVD/VHS library and accompanying print materials; and 2) Conduct an outcome evaluation of the Facing Cleft products. Four studies will be conducted to evaluate the effectiveness of each Facing Cleft module and print materials with parents, providers, children, and peers. The purpose of this Small Business Innovation Research Phase II proposal is to continue the development and evaluation of Facing Cleft: Encouraging Health Development, an educational package to support parents of a child born with a cleft lip and/or cleft palate (CLP). Facing Cleft is designed to educate and support parents in addressing the challenges of CLP constructively with the goal of improving outcomes for children with the disorder and their families.

描述(申请人提供)：这项小型企业创新研究第二阶段计划的目的是继续发展和评估“面对裂隙：鼓励健康发展”，这是一个支持唇裂和/或腭裂(CLP)儿童父母的教育方案。直面裂隙旨在教育和支持家长以建设性的方式应对CLP的挑战，目标是改善患有这种疾病的儿童及其家庭的结局。在第二阶段，我们会扩展第一阶段所开发的产品，为患有CLP儿童由出生至青春期的家长提供全面的资源，包括模组DVD/VHS资料库和印刷资料。Face Cledge套餐的目的是：1)在儿童出生后不久，为CLP儿童的新家长提供准确的信息和支持；2)为家长提供长期资源，以支持孩子在成长过程中的最佳发展；3)增加CLP儿童家长的知识和应对技能，同时减少焦虑；以及4)让课堂上对CLP儿童进行教育，以增加对CLP儿童的知识和积极态度。在雄心勃勃的第一阶段项目期间，项目团队为第二阶段的具体目标奠定了坚实的基础，这些目标是：1)完成为家长开发关于中电的全面教育资源，包括DVD/VHS图书馆和附带的印刷材料；以及2)对正畸产品进行成果评估。将进行四项研究，以评估每个正面裂隙模块的有效性，并与父母、提供者、儿童和同龄人一起打印材料。这项小型企业创新研究第二阶段建议的目的是继续发展和评估“面对裂隙：鼓励健康发展”，这是一个支持出生时患有唇裂和/或腭裂(CLP)儿童的父母的教育方案。直面裂隙旨在教育和支持家长以建设性的方式应对CLP的挑战，目标是改善患有这种疾病的儿童及其家庭的结局。