Facing Cleft

描述（由申请人提供）：这项小企业创新研究第二阶段提案的目的是继续开发和评估“面对唇裂：鼓励健康发展”，这是一个教育包，用于支持出生时患有唇裂和/或腭裂（CLP）的儿童的父母。“面对唇腭裂”旨在教育和支持父母建设性地应对唇腭裂的挑战，以改善患有唇腭裂的儿童及其家庭的结局。在第二阶段，我们将扩展第一阶段开发的产品，为CLP儿童的父母创建一个从出生到青春期的综合资源，包括模块化DVD/VHS库和印刷材料。“面对唇腭裂”计划的目标是：1)在孩子出生后不久，为患有唇腭裂的孩子的新父母提供准确的信息和支持；2)为家长提供长期资源，支持孩子成长过程中的最佳发展；3)增加知识和应对技能，同时减少CLP儿童父母的焦虑；4)进行有关CLP的课堂教育，增加对CLP儿童的知识和积极态度。在雄心勃勃的第一期项目期间，项目团队为第二期的具体目标奠定了坚实的基础，即：1)完成CLP上为家长提供的全面教育资源的开发，包括DVD/VHS库和随附的印刷材料；2)对face Cleft产品进行效果评价。将进行四项研究，以评估每个面对裂缝模块的有效性，并与父母，提供者，儿童和同龄人一起打印材料。这项小企业创新研究第二阶段提案的目的是继续开发和评估“面对唇裂：鼓励健康发展”，这是一个教育包，旨在支持出生时患有唇裂和/或腭裂（CLP）儿童的父母。“面对唇腭裂”旨在教育和支持父母建设性地应对唇腭裂的挑战，以改善患有唇腭裂的儿童及其家庭的结局。

DESCRIPTION (provided by applicant): The purpose of this Small Business Innovation Research Phase II proposal is to continue the development and evaluation of Facing Cleft: Encouraging Health Development, an educational package to support parents of a child born with a cleft lip and/or cleft palate (CLP). Facing Cleft is designed to educate and support parents in addressing the challenges of CLP constructively with the goal of improving outcomes for children with the disorder and their families. In Phase II, we will expand upon the products developed during Phase I to create a comprehensive resource for parents of a child with CLP from birth through adolescence including a modular DVD/VHS library and print materials. The goals of the Facing Cleft package are to: 1) Provide accurate information and support to new parents of children with CLP shortly after the birth of the child; 2) Give parents long-term resources to support optimal development as their child grows; 3)Increase knowledge and coping skills, while decreasing anxiety, in the parents of a child with CLP; and 4) Enable classroom education about CLP to increase knowledge and positive attitudes towards children with CLP. During the ambitious Phase I project period, the project team established a strong foundation for the Phase II specific aims, which are to: 1) Complete the development of a comprehensive, educational resource for parents on CLP, including a DVD/VHS library and accompanying print materials; and 2) Conduct an outcome evaluation of the Facing Cleft products. Four studies will be conducted to evaluate the effectiveness of each Facing Cleft module and print materials with parents, providers, children, and peers. The purpose of this Small Business Innovation Research Phase II proposal is to continue the development and evaluation of Facing Cleft: Encouraging Health Development, an educational package to support parents of a child born with a cleft lip and/or cleft palate (CLP). Facing Cleft is designed to educate and support parents in addressing the challenges of CLP constructively with the goal of improving outcomes for children with the disorder and their families.