Facing Cleft

面对裂口

• 批准号: 7270873
• 负责人: Karen M Gavin-Evans
• 金额: $ 42.88万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-07-01 至 2009-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7270873
• 关键词: Accounting; Address; Adolescence; Advocacy; Advocate; Affect; Ally; Anxiety; Appendix; Awareness; Bilateral; Birth; Boxing; Breast Feeding; Calculi; Caring; Child; Cleaved cell; Cleft Lip; Cleft Palate; Client; Clinic; Cognitive; Collaborations; Communication; Communities; Congenital Abnormality; Coping Skills; Country; Dental; Dental Care; Dentists; Development; Disabled Persons; Disease; District of Columbia; Education; Educational Status; Educational process of instructing; Effectiveness; Emotional; Ensure; Evaluation; Eye; Face; Family; Feedback; Feeding Methods; Feeling; Fostering; Foundations; Friends; Future; Goals; Happiness; Health; Health Communication; Hospitals; Housing; Incidence; Individual; Infant; Instruction; International; Internet; Interview; Knowledge; Learning; Letters; Libraries; Life; Medical; Medical center; Mental Health; Methods; Monitor; Multimedia; Nonprofit Organizations; Operative Surgical Procedures; Outcome; Pain management; Palate; Pamphlets; Parenting Education; Parents; Phase; Population; Printing; Problem behavior; Provider; Psychologist; Published Comment; Purpose; Range; Rate; Reading; Recommendation; Reconstructive Surgical Procedures; Recruitment Activity; Research; Research Proposals; Resources; Risk; Sampling; School-Age Population; Secure; Shapes; Site; Small Business Innovation Research Grant; Smiling; Social Aspects of Cancer; Social support; Speech; Speech Pathologist; Speech Therapy; Standards of Weights and Measures; Stigmata; Stress; Surgeon; Surveys; Target Populations; Techniques; Technology; Teenagers; Time; Title; United States; Vertebral column; Videotape; Work; advocacy organizations; base; cleft lip and palate; concept; coping; cost; craniofacial; design; expectation; feeding; flyer; impression; improved; innovation; interest; multidisciplinary; outreach; peer; preference; programs; psychologic; psychosocial; self esteem; social; social skills; social stigma; teacher; teenage parents; ward

DESCRIPTION (provided by applicant): The purpose of this Small Business Innovation Research Phase II proposal is to continue the development and evaluation of Facing Cleft: Encouraging Health Development, an educational package to support parents of a child born with a cleft lip and/or cleft palate (CLP). Facing Cleft is designed to educate and support parents in addressing the challenges of CLP constructively with the goal of improving outcomes for children with the disorder and their families. In Phase II, we will expand upon the products developed during Phase I to create a comprehensive resource for parents of a child with CLP from birth through adolescence including a modular DVD/VHS library and print materials. The goals of the Facing Cleft package are to: 1) Provide accurate information and support to new parents of children with CLP shortly after the birth of the child; 2) Give parents long-term resources to support optimal development as their child grows; 3)Increase knowledge and coping skills, while decreasing anxiety, in the parents of a child with CLP; and 4) Enable classroom education about CLP to increase knowledge and positive attitudes towards children with CLP. During the ambitious Phase I project period, the project team established a strong foundation for the Phase II specific aims, which are to: 1) Complete the development of a comprehensive, educational resource for parents on CLP, including a DVD/VHS library and accompanying print materials; and 2) Conduct an outcome evaluation of the Facing Cleft products. Four studies will be conducted to evaluate the effectiveness of each Facing Cleft module and print materials with parents, providers, children, and peers. The purpose of this Small Business Innovation Research Phase II proposal is to continue the development and evaluation of Facing Cleft: Encouraging Health Development, an educational package to support parents of a child born with a cleft lip and/or cleft palate (CLP). Facing Cleft is designed to educate and support parents in addressing the challenges of CLP constructively with the goal of improving outcomes for children with the disorder and their families.

描述（由申请人提供）：本小企业创新研究第二阶段提案的目的是继续开发和评估面对裂缝：鼓励健康发展，一个教育包，以支持父母的孩子出生时有唇腭裂和/或腭裂（CLP）。Facing Cleft旨在教育和支持父母建设性地应对CLP的挑战，以改善患有这种疾病的儿童及其家庭的结果。在第二阶段，我们将扩展第一阶段开发的产品，为患有CLP的儿童从出生到青春期的父母创建一个全面的资源，包括一个模块化的DVD/VHS图书馆和印刷材料。Facing Cleft的目标是：1）在孩子出生后不久，为CLP儿童的新父母提供准确的信息和支持; 2）为父母提供长期的资源，以支持他们的孩子成长的最佳发展; 3）增加知识和应对技能，同时减少CLP儿童的父母的焦虑;及4）提供有关CLP的课堂教育，以增加对CLP儿童的认识及正面态度。在雄心勃勃的第一阶段项目期间，项目团队为第二阶段的具体目标奠定了坚实的基础，这些目标是：1）完成为CLP家长开发的全面教育资源，包括DVD/VHS库和随附的印刷材料;和2）对Facing Cleft产品进行结果评估。将进行四项研究，以评估每个面临裂缝模块和印刷材料与父母，供应商，儿童和同龄人的有效性。这项小型企业创新研究第二阶段提案的目的是继续开发和评估“面对腭裂：鼓励健康发展”，这是一个教育包，旨在支持唇腭裂儿童（CLP）的父母。Facing Cleft旨在教育和支持父母建设性地应对CLP的挑战，以改善患有这种疾病的儿童及其家庭的结果。