Studying the Daily Lives of Couples Coping with Breast Cancer

研究应对乳腺癌的夫妇的日常生活

• 批准号: 7860669
• 负责人: LAWRENCE COHEN
• 金额: $ 7.85万
• 依托单位: UNIVERSITY OF DELAWARE
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-06-04 至 2012-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7860669
• 关键词: Address; Affect; American; American Cancer Society; Behavior; Cancer Patient; Cessation of life; Couples; Death Rate; Diagnosis; Disease; Electronics; Emotions; Face; Family member; Health; Health Professional; Life; Malignant Neoplasms; Measures; Medical; Methodology; Moods; Operative Surgical Procedures; Patients; Personal Digital Assistant; Probability; Process; Psychological adjustment; Questionnaires; Reporting; Research; Research Methodology; Research Personnel; Social support; Spouses; Stress; Surveys; Survivors; Testing; Time; Woman; World Health Organization; base; breast cancer diagnosis; coping; daily functioning; design; diaries; experience; improved; malignant breast neoplasm; mortality; negative mood; psychosocial; transmission process

Breast cancer (BC) is the most common cancer among women worldwide. American women have a 1 in 8 lifetime probability of developing BC. Nevertheless, death rates from BC have steadily decreased since 1990 and women are surviving longer with the disease. Thus, health care professionals face a new set of challenges beyond decreasing mortality: helping BC patients, survivors, and their family members cope with the cancer experience. The effects of BC diagnosis and treatment occur in an interpersonal context. Recent research has documented that BC diagnosis and treatment affect the patient's spouse/partner as well as the couple's relationship functioning. However, most of this research has involved global, cross-sectional assessments that can obfuscate our understanding of interpersonal processes. In addition, this research has usually relied on retrospective reports by both patients and their spouses/partners. There are several problems with retrospective reports, including systematic recall biases associated with concurrent mood and/or psychological adjustment. To address these problems, and to capture behavior and mood "in the moment," health researchers are beginning to use diary designs to assess the daily functioning of medical patients. None of this research has focused on BC patients and their spouses/ partners in the same study. One likely reason for this is the unknown feasibility of applying a diary methodology to couples coping with cancer. The primary purpose of this project is to evaluate the feasibility of an electronic daily diary methodology for research with BC patients and their spouses/partners. Within a few weeks after surgery, BC patients and their spouses/partners will complete a battery of questionnaires. Then, for 10 consecutive nights, BC patients and their spouses/ partners will complete surveys via personal digital assistants (PDAs) that assess their daily experiences, mood, and social support processes. Feasibility of this electronic diary methodology will be evaluated in terms of the percentage of couples who agree to participate in the study and the percentage of participating couples who complete the PDA-based survey each night. The electronic diary methodology will also be used to test two dyadic hypotheses for couples coping with BC. The first focuses on the effect of perceived and received support on the daily adjustment of BC patients and their spouses/partners. The second focuses on day-to-day transmission of emotion between BC patients and their spouses/partners.

乳腺癌（BC）是全世界女性中最常见的癌症。美国女性一生中患 BC 的概率为八分之一。尽管如此，自 1990 年以来，BC 的死亡率稳步下降，女性在这种疾病中的存活时间也更长。因此，除了降低死亡率之外，医疗保健专业人员还面临着一系列新的挑战：帮助 BC 患者、幸存者及其家人应对癌症经历。 BC 诊断和治疗的影响发生在人际环境中。最近的研究表明，乳腺癌的诊断和治疗会影响患者的配偶/伴侣以及夫妻关系的正常运作。然而，大多数研究都涉及全球性的、横截面的评估，这可能会混淆我们对人际过程的理解。此外，这项研究通常依赖于患者及其配偶/伴侣的回顾性报告。回顾性报告存在几个问题，包括与同时发生的情绪和/或心理调整相关的系统性回忆偏差。为了解决这些问题，并捕捉“当下”的行为和情绪，健康研究人员开始使用日记设计来评估患者的日常功能。在同一研究中，这项研究均未针对 BC 患者及其配偶/伴侣。造成这种情况的一个可能原因是，将日记方法应用于应对癌症的夫妇的可行性尚不清楚。该项目的主要目的是评估电子日记方法用于 BC 患者及其配偶/伴侣研究的可行性。手术后几周内，BC 患者及其配偶/伴侣将完成一系列调查问卷。然后，BC 患者及其配偶/伴侣将连续 10 个晚上通过个人数字助理 (PDA) 完成调查，评估他们的日常经历、情绪和社会支持过程。这种电子日记方法的可行性将根据同意参与研究的夫妇的百分比以及每晚完成基于 PDA 的调查的参与夫妇的百分比来评估。电子日记方法还将用于测试应对 BC 的夫妇的两个二元假设。第一个重点关注 BC 患者及其配偶/伴侣的日常调整所感知和获得的支持的影响。第二个重点是 BC 患者与其配偶/伴侣之间的日常情感传递。

项目成果

Social constraints and fear of recurrence in couples coping with early stage breast cancer.

• DOI: 10.1037/hea0000649
• 发表时间: 2018-09
• 期刊: Health psychology : official journal of the Division of Health Psychology, American Psychological Association
• 作者: Soriano EC;Pasipanodya EC;LoSavio ST;Otto AK;Perndorfer C;Siegel SD;Laurenceau JP
• 通讯作者: Laurenceau JP

Partner social constraints and early-stage breast cancer: Longitudinal associations with psychosexual adjustment.

• DOI: 10.1037/fam0000302
• 发表时间: 2017-08
• 期刊: Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43)
• 作者: Soriano EC;Otto AK;Siegel SD;Laurenceau JP
• 通讯作者: Laurenceau JP

Effects of a randomized gratitude intervention on death-related fear of recurrence in breast cancer survivors.

• DOI: 10.1037/hea0000400
• 发表时间: 2016-12
• 期刊: Health psychology : official journal of the Division of Health Psychology, American Psychological Association
• 作者: Otto AK;Szczesny EC;Soriano EC;Laurenceau JP;Siegel SD
• 通讯作者: Siegel SD

Capitalizing on everyday positive events uniquely predicts daily intimacy and well-being in couples coping with breast cancer.

• DOI: 10.1037/fam0000042
• 发表时间: 2015-02
• 期刊: Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43)
• 作者: Otto AK;Laurenceau JP;Siegel SD;Belcher AJ
• 通讯作者: Belcher AJ