Rheumatic and Autoimmune Diseases in Minority Communities

少数民族社区的风湿病和自身免疫性疾病

• 批准号: 7964954
• 负责人: Michael Ward
• 金额: $ 31.19万
• 依托单位: NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/7964954
• 关键词: Autoimmune Diseases; Caring; Clinical; Communities; Community Health Centers; Complementary and alternative medicine; District of Columbia; Epidemiologic Studies; Evaluation; Goals; Hand; Health; Informed Consent; Methods; Minority; Musculoskeletal; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Outcome; Outcome Assessment; Patient Self-Report; Patients; Process; Questionnaires; Research; Research Personnel; Research Support; Rheumatism; Rheumatoid Arthritis; Symptoms; Validation; case finding; cohort; ethnic minority population; experience; health disparity; programs; tool

This project studies the expression of rheumatic diseases in an underserved, largely ethnic minority community in Washington, DC. Through the NIAMS Community Health Center, subjects with rheumatic compliants are evaluated and provide researchers with first-hand experience in understanding barriers to care. This project has supported research on cultural differences in understanding standardized self-report outcome assessment tools, use of complementary and alternative medicine in patients with rheumatic symptoms, understanding of the research process and informed consent among ethnic minorities, and validation in Spanish and English of a rheumatoid arthritis case-finding questionnaire for use in epidemiological studies.

这个项目研究了风湿病在华盛顿特区一个服务不足、以少数族裔为主的社区的表现。通过NIAMS社区卫生中心，对风湿病顺从者进行评估，为研究人员提供了解护理障碍的第一手经验。该项目支持了以下方面的研究：了解标准化的自我报告结果评估工具方面的文化差异；在有风湿症状的患者中使用补充和替代药物；了解研究过程和少数族裔的知情同意；以西班牙语和英语验证用于流行病学研究的类风湿性关节炎病例发现问卷。