Rheumatic and Autoimmune Diseases in Minority Communities

少数民族社区的风湿病和自身免疫性疾病

• 批准号: 8559307
• 负责人: Michael Ward
• 金额: $ 43.59万
• 依托单位: NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN DISEASES
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/8559307
• 关键词: Area; Autoimmune Diseases; Caring; Clinical; Communities; Community Health Centers; Complementary and alternative medicine; District of Columbia; Epidemiologic Studies; Evaluation; Goals; Health; Informed Consent; Intervention; Methods; Minority; Musculoskeletal; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Outcome; Outcome Assessment; Patient Self-Report; Patients; Primary Health Care; Process; Provider; Questionnaires; Research; Research Personnel; Research Support; Rheumatism; Rheumatoid Arthritis; Symptoms; Validation; case finding; cohort; ethnic minority population; experience; health disparity; improved; metropolitan; programs; tool

This project studies the expression of rheumatic diseases in an underserved, largely ethnic minority community in the Washington, DC metropolitan area. Through the NIAMS Community Health Center, subjects with rheumatic compliants are evaluated and provide researchers with first-hand experience in understanding barriers to care. This project has supported research on cultural differences in understanding standardized self-report outcome assessment tools, use of complementary and alternative medicine in patients with rheumatic symptoms, understanding of the research process and informed consent among ethnic minorities, and validation in Spanish and English of a rheumatoid arthritis case-finding questionnaire for use in epidemiological studies. In addition, researchers have examined interventions to improve the referral process between primary care providers and subspecialists.

本项目研究风湿性疾病在华盛顿大都会区一个服务不足，主要是少数民族社区的表达。 通过NIAMS社区健康中心，风湿病患者的依从性进行评估，并为研究人员提供了解护理障碍的第一手经验。 该项目支持研究在理解标准化自我报告结果评估工具方面的文化差异、在有风湿症状的患者中使用补充和替代药物、理解研究过程和少数民族的知情同意以及验证用于流行病学研究的类风湿性关节炎病例调查问卷的西班牙语和英语版本。 此外，研究人员还研究了改善初级保健提供者和专科医生之间转诊过程的干预措施。