Self-Directed Online Training Program for Multicultural Dementia Caregivers

描述（由申请人提供）：痴呆症的日益流行，对家庭照顾者的健康和心理健康的影响，少数民族家庭照顾者缺乏民族文化和语言培训项目，以及互联网在少数民族社区的日益普及，都强调了对少数民族痴呆症照顾者在线培训项目的需求。根据美国国家老龄化研究所PA-06-049的要求，我们建议开发并测试一种在线自我指导的技能培训干预的可行性和初步有效性，该干预针对的是照顾阿尔茨海默病和相关痴呆患者的中国和西班牙成年人。该项目的总体目标是利用基于互联网的技术开发一种自我指导的培训干预，旨在提高护理人员的管理技能，提高自我效能感，我们假设这将减少护理人员的负担和情绪困扰；并提高照顾者的自我照顾技能，我们假设这将提高整体健康水平和生活质量。具体而言，第一阶段将开发两个基于互联网的SDL培训项目的原型，一个针对中国护理人员，另一个针对西班牙护理人员，以提高护理管理技能和自我护理技能。为了确保干预的可用性、内容有效性、动机设计、民族文化和语言能力，将进行反复的形成性评估，以告知设计干预组件的过程。将进行一项随机对照试验，以评估培训干预对护理者和被护理者的影响的初步有效性。该I期申请的结果将用于开发II期SBIR，其中我们将进行全尺度SDL干预的大规模随机试验。第一阶段的研究结果将提供必要的效应量，以确定第二阶段应用所需的样本量。SDL培训项目有效性的证据将为开发针对少数民族护理人员的在线护理人员培训项目的证据基础提供宝贵的贡献。成功完成第二阶段的申请将产生一个创新的在线护理人员培训服务模式，具有很高的商业化潜力。首先，使用拟议的技术将有助于提供基于能力的培训服务，这种服务既可以单独提供，也可以与为痴呆症护理人员提供的其他基于支持的服务相结合。第二，本文提出的培训模式不仅适用于少数民族痴呆症护理人员，也适用于其他慢性病老年人护理人员。

DESCRIPTION (provided by applicant): The growing prevalence of dementia, the health and mental health consequences for family caregivers, the lack of ethno-cultural and linguistic training programs for ethnic minority family caregivers, and the increasing penetration of the internet in ethnic minority communities underscore the need for an online training program for ethnic minority dementia caregivers. In response to the National Institute on Aging PA-06-049, we propose to develop and test the feasibility and preliminary effectiveness of an online self-directed, skill training intervention for Chinese and Hispanic adults providing care to individuals with Alzheimer's disease and related dementia. The overall goal of this project is to use internet-based technology to develop a self-directed training intervention that is designed to enhance caregiver management skills to improve self-efficacy, which we hypothesize will lead to reduced caregiver burden and emotional distress; and increase caregiver self-care skills, which we hypothesize will result in enhanced overall health and quality of life. Specifically, Phase I will develop a prototype for two internet-based SDL training programs, one for Chinese caregivers, and the other for Hispanic caregivers, to improve caregiving management skills and self care skills. An iterative formative evaluation will be performed to inform the process of designing the intervention components in order to ensure the usability, content validity, motivational design, and ethno-cultural and linguistic competency of the intervention. A randomized controlled trial will be conducted to assess preliminary effectiveness of the training intervention with regard to its impact on both caregivers and care recipients. The findings of this Phase I application will be used to develop a Phase II SBIR, in which we will conduct a large-scale randomized trial of the full scale SDL intervention. Phase 1 study results will provide the effect size necessary to determine the sample size needed for the Phase 2 application. Evidence of the effectiveness of the SDL training program will be a valuable contribution to the developing evidence-base of online caregiver training programs for ethnic minority caregivers. Successful accomplishment of the Phase II application will result in an innovative, online caregiver training service model with high commercialization potential. First, the use of the proposed technology will facilitate the delivery of competence-based training services, which can be offered either standing alone or in combination with other support-based services available for dementia caregivers. Second, the proposed training model can be applied not only for ethnic minority caregivers with dementia, but also for caregivers caring for older adults with other chronic conditions. PUBLIC HEALTH RELEVANCE: The proposed Phase I effort focuses on developing a self-directed skill training intervention program for ethnic Chinese and Hispanic dementia caregivers. This is highly relevant to the nation's public health not only because there is a persistent lack of ethno-cultural and linguistically competent education, support, and assistance programs for these ethnic minority groups, but also because Hispanic and Asian Americans are two fastest growing groups of the nation, increasing by 43% in the past decade, according to the Census Bureau report released in early 2011.