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Self-Directed Online Training Program for Multicultural Dementia Caregivers

多元文化痴呆症护理人员自主在线培训计划

基本信息

批准号：
8252860
负责人：
Hongtu Chen
金额：
$ 29.25万
依托单位：
ENVIRONMENT AND HEALTH GROUP, INC.
依托单位国家：
美国
项目类别：
财政年份：
2011
资助国家：
美国
起止时间：
2011-09-30 至 2013-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8252860
关键词：
Address Adult Affect Alzheimer&apos s Disease Asian Americans Caregiver Burden Caregivers Caring Censuses Chinese People Chronic Communication Communities Competence Coping Skills Dementia Education Educational Curriculum Educational Intervention Effectiveness Elderly Emotional Stress Ensure Evaluation Family Caregiver Family member Feedback Funding Goals Health Health behavior Hispanic Americans Hispanics Individual Institutionalization Internet Intervention Knowledge Lead Learning Life Life Style Linguistics Mental Health Minority Groups Modeling Monitor National Institute on Aging Penetration Phase Prevalence Problem behavior Process Psychological Transfer Public Health Published Comment Quality of life Randomized Controlled Trials Reporting Research Sample Size Schedule Self Care Self Efficacy Services Small Business Innovation Research Grant Social support Technology Testing Time Training Training Programs United States National Institutes of Health arm base caregiver education caregiving commercialization design emotional distress ethnic minority population evidence base experience improved innovation intervention program meetings phase 1 study programs prototype randomized trial response skill acquisition skills skills training software development theories therapy design therapy development usability willingness

项目摘要

DESCRIPTION (provided by applicant): The growing prevalence of dementia, the health and mental health consequences for family caregivers, the lack of ethno-cultural and linguistic training programs for ethnic minority family caregivers, and the increasing penetration of the internet in ethnic minority communities underscore the need for an online training program for ethnic minority dementia caregivers. In response to the National Institute on Aging PA-06-049, we propose to develop and test the feasibility and preliminary effectiveness of an online self-directed, skill training intervention for Chinese and Hispanic adults providing care to individuals with Alzheimer's disease and related dementia. The overall goal of this project is to use internet-based technology to develop a self-directed training intervention that is designed to enhance caregiver management skills to improve self-efficacy, which we hypothesize will lead to reduced caregiver burden and emotional distress; and increase caregiver self-care skills, which we hypothesize will result in enhanced overall health and quality of life. Specifically, Phase I will develop a prototype for two internet-based SDL training programs, one for Chinese caregivers, and the other for Hispanic caregivers, to improve caregiving management skills and self care skills. An iterative formative evaluation will be performed to inform the process of designing the intervention components in order to ensure the usability, content validity, motivational design, and ethno-cultural and linguistic competency of the intervention. A randomized controlled trial will be conducted to assess preliminary effectiveness of the training intervention with regard to its impact on both caregivers and care recipients. The findings of this Phase I application will be used to develop a Phase II SBIR, in which we will conduct a large-scale randomized trial of the full scale SDL intervention. Phase 1 study results will provide the effect size necessary to determine the sample size needed for the Phase 2 application. Evidence of the effectiveness of the SDL training program will be a valuable contribution to the developing evidence-base of online caregiver training programs for ethnic minority caregivers. Successful accomplishment of the Phase II application will result in an innovative, online caregiver training service model with high commercialization potential. First, the use of the proposed technology will facilitate the delivery of competence-based training services, which can be offered either standing alone or in combination with other support-based services available for dementia caregivers. Second, the proposed training model can be applied not only for ethnic minority caregivers with dementia, but also for caregivers caring for older adults with other chronic conditions. PUBLIC HEALTH RELEVANCE: The proposed Phase I effort focuses on developing a self-directed skill training intervention program for ethnic Chinese and Hispanic dementia caregivers. This is highly relevant to the nation's public health not only because there is a persistent lack of ethno-cultural and linguistically competent education, support, and assistance programs for these ethnic minority groups, but also because Hispanic and Asian Americans are two fastest growing groups of the nation, increasing by 43% in the past decade, according to the Census Bureau report released in early 2011.

描述(申请人提供)：痴呆症的日益流行，家庭照料者的健康和心理健康后果，少数民族家庭照顾者缺乏民族文化和语言培训计划，以及互联网在少数民族社区的日益普及，突显了为少数民族痴呆症照顾者提供在线培训计划的必要性。为响应国家老龄研究所PA-06-049，我们建议开发和测试针对中国和西班牙裔成年人的在线自我定向技能培训干预的可行性和初步有效性，为阿尔茨海默病和相关痴呆症患者提供护理。这个项目的总体目标是利用基于互联网的技术来开发一种自我指导的培训干预，旨在增强照顾者的管理技能，以提高自我效能，我们假设这将导致照顾者负担和情绪困扰的减轻；以及增加照顾者的自我照顾技能，我们假设这将导致整体健康和生活质量的提高。具体地说，第一阶段将为两个基于互联网的SDL培训项目开发原型，一个针对中国护理员，另一个针对西班牙裔护理员，以提高护理管理技能和自我护理技能。将进行反复形成性评估，为设计干预内容的过程提供信息，以确保干预措施的可用性、内容有效性、动机设计以及民族文化和语言能力。将进行一项随机对照试验，以评估培训干预对照顾者和照顾者的影响的初步效果。此第一阶段应用程序的结果将用于开发第二阶段SBIR，在该阶段中，我们将对全面的SDL干预进行大规模随机试验。第一阶段研究结果将提供确定第二阶段应用所需样本量所需的效应量。SDL培训计划有效性的证据将对开发针对少数民族照顾者的在线照顾者培训计划的证据基础做出宝贵贡献。第二阶段申请的成功完成将带来一种创新的、具有很高商业化潜力的在线护理员培训服务模式。首先，拟议技术的使用将有助于提供基于能力的培训服务，这些服务可以单独提供，也可以与为痴呆症照顾者提供的其他基于支持的服务结合起来提供。其次，建议的培训模式不仅适用于患有痴呆症的少数族裔照顾者，也适用于照顾患有其他慢性病的老年人的照顾者。公共卫生相关性：拟议的第一阶段工作重点是为华裔和西班牙裔痴呆症照顾者开发自我导向的技能培训干预计划。根据人口普查局2011年初发布的报告，这与美国的公共卫生高度相关，不仅因为针对这些少数族裔群体的种族文化和语言能力强的教育、支持和援助计划长期缺乏，还因为西班牙裔和亚裔美国人是美国增长最快的两个群体，在过去十年中增长了43%。