Compassion Fatigue in Adult Daughter Caregivers

成年女儿照顾者的同情疲劳

• 批准号: 8255285
• 负责人: Jennifer Day
• 金额: $ 4.18万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-09-26 至 2013-09-25
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8255285
• 关键词: Admission activity; Adult; Adult Children; Age; Aging; Care given by nurses; Caregiver Burden; Caregivers; Caring; Characteristics; Child; Compassion; Conflict (Psychology); Coupled; Data Analyses; Daughter; Dementia; Development; Discipline of Nursing; Elderly; Emotional; Emotional Bonds; Empathy; Ethics; Exposure to; Family; Family Caregiver; Fatigue; Feeling; Feeling hopeless; Frequencies; Future; Health Services Research; Healthcare; Home environment; Interview; Knowledge; Laws; Lead; Life; Literature; Longitudinal Studies; Measures; Mental Depression; Methods; Mothers; Names; Nurses; Nursing Homes; Outcome; Parents; Pattern; Population; Process; Research; Research Activity; Research Personnel; Risk; Role; Science; Source; Stress; Testing; Time; Training; United States; Variant; Woman; caregiving; design; experience; forgetting; improved; instrument; killings; lectures; neglect; nursing intervention; parental role; premature; prevent; psychologic; response; satisfaction; skills

Significance: Compassion fatigue is the combination of hopelessness, helplessness, apathy, and an emotional disengagement that results from a prolonged exposure to perceived suffering and can occur in emotionally laden caregiving relationships. The effects of compassion fatigue may lead to increased depression, burden and caregiver strain, and decreased feelings of relationship quality for the caregiver. Compassion fatigue is a concept used with increasing frequency in the nursing and health care literature, but has not yet been studied in adult children who care for parents with dementia at home. Compassion fatigue may be a reason for premature nursing home admission of the care recipient, or a source of abuse or neglect. Adult daughter caregivers likely are at risk for compassion fatigue due to roles as daughters and women, and because of the long duration of caregiving for a parent with dementia. Training Plan: The training plan is designed to increase my knowledge and skills as a nurse researcher on issues related to family caregiving and aging through coursework, lectures, seminars, ethics training, and guided research activities. This combination will develop my ability to independently conduct research related to compassion fatigue in adult daughter caregivers for older adults with dementia. Methods: This qualitative descriptive study of adult daughter caregivers for older adults with dementia will include two open-ended interviews conducted one month apart with adult daughter caregivers of a parent with dementia. Qualitative content analysis will be the approach of data analysis. This method of data analysis will provide an in-depth description of compassion fatigue and the contributing factors and potential outcomes using caregiver quotes. Specific Aim: To explore compassion fatigue and the contributing factors and potential outcomes of compassion fatigue in adult daughter caregivers for a parent with dementia. Research questions: 1: How do adult daughter caregivers describe compassion fatigue when talking about the experience of caring for a parent with dementia? 2: What do adult daughter caregivers for a parent with dementia describe as contributing factors and outcomes of compassion fatigue? 3: How do adult daughter caregivers for older adults with dementia vary in characteristics of compassion fatigue and contributing factors and outcomes, and what patterns emerge in this variation? Long-term Objectives: To develop and test nursing interventions to reduce compassion fatigue in adult child caregivers and eliminate its negative consequences for care recipients. Next research steps will explore trajectories of compassion fatigue and develop instruments to measure and screen for compassion fatigue.

意义：同情疲劳是绝望、无助、冷漠和情绪脱离的组合，这种情绪脱离是由于长期暴露在感知到的痛苦中，可能发生在情感负担沉重的照顾关系中。同情疲劳的影响可能会导致抑郁、负担和照顾者压力增加，并降低照顾者的关系质量感觉。同情疲劳是护理和保健文献中使用频率越来越高的一个概念，但尚未在在家照顾患有痴呆症的父母的成年子女中进行研究。同情心疲劳可能是护理接受者过早进入疗养院的一个原因，也可能是虐待或忽视的来源。成年女儿的照顾者可能因为扮演女儿和女性的角色，以及因为照顾患有痴呆症的父母的时间较长而面临同情疲劳的风险。 培训计划：培训计划旨在通过课程作业、讲座、研讨会、道德培训和指导研究活动，增加我作为护士研究员在家庭护理和老龄化问题上的知识和技能。这种结合将培养我独立进行与老年痴呆症成年女儿照顾者同情疲劳相关的研究的能力。 方法：这项对老年痴呆症成年女儿照顾者的定性描述性研究将包括两次开放式访谈，两次访谈相隔一个月对患有痴呆症的父母的成年女儿照顾者进行。定性内容分析将是数据分析的方法。这种数据分析方法将使用照顾者的引语来深入描述同情疲劳以及导致因素和潜在结果。 具体目的：探讨痴呆症患者成年女儿照顾者的同情心疲劳及其成因和潜在后果。研究问题：1：当谈到照顾患有痴呆症的父母的经历时，成年女儿照顾者如何描述同情疲劳？2：痴呆症父母的成年女儿照顾者描述了什么是同情疲劳的促成因素和结果？3：老年痴呆症患者的成年女儿照顾者在同情疲劳的特征、贡献因素和结果方面有什么不同，这种变化出现了什么模式？ 长期目标：开发和测试护理干预措施，以减少成年儿童照顾者的同情心疲劳，并消除其对照顾者的负面影响。下一步的研究将探索同情疲劳的轨迹，并开发测量和筛选同情疲劳的工具。