Compassion Fatigue in Adult Daughter Caregivers

成年女儿照顾者的同情疲劳

• 批准号: 8366375
• 负责人: Jennifer Day
• 金额: $ 4.22万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-09-26 至 2013-09-25
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8366375
• 关键词: Admission activity; Adult; Adult Children; Age; Aging; Care given by nurses; Caregiver Burden; Caregivers; Caring; Characteristics; Child; Compassion; Conflict (Psychology); Coupled; Data Analyses; Daughter; Dementia; Development; Discipline of Nursing; Elderly; Emotional; Emotional Bonds; Empathy; Ethics; Exposure to; Family; Family Caregiver; Fatigue; Feeling; Feeling hopeless; Frequencies; Future; Health Services Research; Healthcare; Home environment; Interview; Knowledge; Laws; Lead; Life; Literature; Longitudinal Studies; Measures; Mental Depression; Methods; Mothers; Names; Nurses; Nursing Homes; Outcome; Parents; Pattern; Population; Process; Research; Research Activity; Research Personnel; Risk; Role; Science; Source; Stress; Testing; Time; Training; United States; Variant; Woman; caregiving; design; experience; forgetting; improved; instrument; killings; lectures; neglect; nursing intervention; parental role; premature; prevent; psychologic; response; satisfaction; skills

Significance: Compassion fatigue is the combination of hopelessness, helplessness, apathy, and an emotional disengagement that results from a prolonged exposure to perceived suffering and can occur in emotionally laden caregiving relationships. The effects of compassion fatigue may lead to increased depression, burden and caregiver strain, and decreased feelings of relationship quality for the caregiver. Compassion fatigue is a concept used with increasing frequency in the nursing and health care literature, but has not yet been studied in adult children who care for parents with dementia at home. Compassion fatigue may be a reason for premature nursing home admission of the care recipient, or a source of abuse or neglect. Adult daughter caregivers likely are at risk for compassion fatigue due to roles as daughters and women, and because of the long duration of caregiving for a parent with dementia. Training Plan: The training plan is designed to increase my knowledge and skills as a nurse researcher on issues related to family caregiving and aging through coursework, lectures, seminars, ethics training, and guided research activities. This combination will develop my ability to independently conduct research related to compassion fatigue in adult daughter caregivers for older adults with dementia. Methods: This qualitative descriptive study of adult daughter caregivers for older adults with dementia will include two open-ended interviews conducted one month apart with adult daughter caregivers of a parent with dementia. Qualitative content analysis will be the approach of data analysis. This method of data analysis will provide an in-depth description of compassion fatigue and the contributing factors and potential outcomes using caregiver quotes. Specific Aim: To explore compassion fatigue and the contributing factors and potential outcomes of compassion fatigue in adult daughter caregivers for a parent with dementia. Research questions: 1: How do adult daughter caregivers describe compassion fatigue when talking about the experience of caring for a parent with dementia? 2: What do adult daughter caregivers for a parent with dementia describe as contributing factors and outcomes of compassion fatigue? 3: How do adult daughter caregivers for older adults with dementia vary in characteristics of compassion fatigue and contributing factors and outcomes, and what patterns emerge in this variation? Long-term Objectives: To develop and test nursing interventions to reduce compassion fatigue in adult child caregivers and eliminate its negative consequences for care recipients. Next research steps will explore trajectories of compassion fatigue and develop instruments to measure and screen for compassion fatigue.

重要性：同情疲劳是绝望、无助、冷漠和情感脱离的组合，这是由于长时间暴露在感知到的痛苦中造成的，可能发生在情感负载的亲密关系中。同情疲劳的影响可能会导致抑郁，负担和照顾者压力增加，以及照顾者对关系质量的感觉下降。compensation fatigue是一个概念，越来越频繁地使用在护理和保健文献，但尚未研究在家中照顾痴呆症父母的成年儿童。心源性疲劳可能是护理接受者过早进入疗养院的原因，也可能是虐待或忽视的原因。成年的女儿照顾者可能有同情疲劳的风险，因为他们扮演的是女儿和女人的角色，也因为长期照顾痴呆症父母。 培训计划：培训计划旨在通过课程，讲座，研讨会，道德培训和指导研究活动，提高我作为护士研究员在家庭护理和老龄化问题上的知识和技能。这种结合将培养我独立进行与老年痴呆症患者成年女儿照顾者同情疲劳相关的研究的能力。 研究方法：这项定性描述性研究的成年女儿照顾老年痴呆症患者将包括两个开放式的访谈进行了一个月的成年女儿照顾父母与痴呆症。定性内容分析将是数据分析的方法。这种数据分析方法将提供同情疲劳的深入描述，以及使用护理人员引用的促成因素和潜在结果。 具体目标：探讨老年痴呆症父母的成年女儿照顾者的同情疲劳及其影响因素和潜在结果。研究问题：一曰：当谈到照顾痴呆症父母的经历时，成年女儿的照顾者如何描述同情疲劳？2：老年痴呆症父母的成年女儿照顾者描述了什么是同情疲劳的促成因素和结果？第三章：老年痴呆症患者的成年女儿照顾者在同情疲劳的特征、促成因素和结果方面如何变化，以及这种变化中出现了什么样的模式？ 长期目标：制定和测试护理干预措施，以减少成年儿童照顾者的同情疲劳，并消除其对被照顾者的负面影响。接下来的研究步骤将探索同情疲劳的轨迹，并开发测量和筛选同情疲劳的工具。