The Health of Aging Parents of Adult Children with Serious Conditions

患有严重疾病的成年子女的年迈父母的健康

• 批准号: 10660046
• 负责人: ROBERT L CROSNOE
• 金额: $ 32.18万
• 依托单位: UNIVERSITY OF TEXAS AT AUSTIN
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-05-01 至 2026-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10660046
• 关键词: Address; Adult; Adult Children; Age; Aging; American; Area; Attention; Benefits and Risks; Birth; Blindness; Buffers; Caring; Child; Child Care; Child Rearing; Chronic; Communities; Community Health; Complex; Data; Data Collection; Down Syndrome; Ecology; Elderly; Equilibrium; Evolution; Face; Family; Family Study; Fathers; Foundations; Funding; Future; Gender Role; Generations; Goals; Health; Healthcare; Human; Impaired cognition; Individual; Institution; Intervention; Journals; Knowledge; Life; Life Cycle Stages; Link; Literature; Marriage; Maternal Health; Measures; Medical; Mental Health; Mental disorders; Methods; Modeling; Modernization; Mothers; National Longitudinal Survey of Youth; Nature; Older Population; Parents; Pathway interactions; Pattern; Personal Satisfaction; Persons; Policies; Population; Population Database; Population Study; Positioning Attribute; Process; Psyche structure; Public Health; Publishing; Research; Research Methodology; Resources; Rewards; Risk; Services; Shapes; Slice; Source; Statistical Data Interpretation; Stress; Techniques; Therapeutic; Time; Treatment Efficacy; United States National Academy of Sciences; United States National Institutes of Health; Woman; Work; aging population; autistic children; cardiovascular health; care giving burden; career; caregiving; design; developmental disease; disability; early onset; experience; family support; health disparity; health of the mother; human old age (65+); innovation; insight; intergenerational; maternal outcome; middle age; mortality; physical conditioning; population health; programs; promote resilience; psychologic; public health research; resilience; social; theories; young adult

Abstract On average, the mothers of children with serious conditions (e.g., mental illnesses, disabilities, developmental disorders, chronic conditions) face health risks due to caregiving burdens, stress, and other factors that often counter the many rewarding aspects of their parenting. These health implications appear to be magnified when children reach adulthood and mothers reach late midlife and beyond. Modern medical and therapeutic advances have increased the number of mothers in this vulnerable position, and they need support. This project will further build the theoretically grounded empirical foundation for that support by employing an innovative life course approach and mixed methods strategy to address this significant public health issue. Specifically, this project extends and enriches the literature on the physical and mental health of mothers of children with serious conditions by asking three questions. The first question (“why?”) concerns the complex ways that the social and psychological rewards and strains of parenting children with serious conditions into adulthood converge to shape mothers’ health in late midlife. The second question (“when?”) concerns the potential for cumulative vs. sensitive periods of risk and resilience across years of caring for children with serious conditions from their births into their adulthoods. The third question (“where?”) concerns the degree to which family supports in the informal ecology and community health and human services in the formal ecology moderate the exchange of rewards and strains to buffer health risks among late-midlife mothers of young adult children with serious conditions. These questions will be addressed with a sequential explanatory mixed methods strategy in which quantitative results are unpacked by qualitative insights and qualitative insights guide subsequent quantitative analyses. This strategy integrates statistical analyses of an extant population database with textual/grounded theory analyses of newly collected qualitative data, both focusing on mothers in the sixth decade of life. The first involves approximately 3,100 mothers of young adult children (420 of whom had serious conditions) in the geocoded, multilevel National Longitudinal Survey of Youth 1979. The second involves 80 mothers of young adult children with and without serious conditions. This mixed methods sequence is already vetted and supported by preliminary analyses of the quantitative data published in a high-impact journal and a smaller-scale qualitative data collection funded by an NIA pilot mechanism. Conducted by an interdisciplinary team of senior and junior scholars with complementary expertise in the study of families and health, this project will put forward and refine a life course framework of health and wellbeing in the context of the indefinite responsibilities of intensive parenting that can guide future research in this area and help to tailor policies and programs aiming to serve this growing slice of the aging population. The ultimate goal is that this foundational knowledge will then support the design of a future population study of this issue for public use.

抽象的 平均而言，患有严重状况的儿童母亲（例如，精神疾病，疾病，发育性 疾病，慢性病）面临着由于伯恩斯的照顾，压力和其他经常因素而面临健康风险 对抗育儿的许多有意义的方面。当这些健康影响似乎在 孩子们成年，母亲到达中年及以后。现代医疗和治疗 进步增加了在这个脆弱地位的母亲的数量，他们需要支持。这 项目将进一步建立理论上扎根的经验基础，以通过采用 创新的生活课程方法和混合方法策略，以解决这一重大公共卫生问题。 具体而言，该项目扩展并丰富了有关母亲的身心健康的文献 有三个问题，有严重条件的孩子。第一个问题（“为什么？”）涉及该综合体 育儿儿童的社会和心理奖励和压力很严重的方式 成年期在中年后期塑造母亲的健康。第二个问题（“何时？”）涉及 多年照顾儿童 从他们的出生到成年人的严重条件。第三个问题（“在哪里？”）涉及 哪些家庭支持正式生态的非正式生态和社区健康和公共服务 在年轻人的后期母亲中，调节奖励和压力与缓冲健康风险的交换 病情严重的孩子。这些问题将通过连续删除的混合 方法策略，其中定量结果被定性见解和定性见解打开了包装 指导随后的定量分析。该策略整合了额外人群的统计分析 具有新收集的定性数据的纹理/接地理论分析的数据库，都重点介绍母亲 在人生的第六个十年中。第一个涉及大约3,100个年轻子女的母亲（其中420个 1979 涉及80个有和没有严重条件的年轻儿童的母亲。这种混合方法序列 已经通过对高影响力的定量数据进行初步分析来审查和支持 日志和由NIA试点机制资助的较小规模的数据收集。由An进行 高级和初级学者的跨学科团队，在家庭学习方面具有完整的专业知识 健康，该项目将在 密集育儿的无限责任可以指导该领域的未来研究并有助于量身定制 政策和计划旨在为越来越多的老龄化人口服务。最终目标是 然后，基本知识将支持对该问题的未来人口研究的设计，以供公众使用。