AMIA Health Policy Conference Series

描述(由申请者提供)：第七届AMIA卫生政策会议，卫生数据的使用，管理和治理：差距和挑战，其目标是促进各国对数据使用、重复使用、管理和治理的理解，以应对由技术支持的卫生数据来源带来的挑战，并反映当前的卫生信息学证据和做法。鉴于最近讨论将电子健康记录(EHR)数据作为授权报告和研究的基础的可靠性的研究，会议将制定和推进一种数据管理模式，承认医疗保健数据是组织和企业范围的资产和资源。这次会议将建立在AMIA、医学研究所(IOM)和其他机构先前工作的基础上，特别是考虑到以患者为中心的医学、绩效和结果衡量带来的快速变化，以及越来越多地采用EHR。会议的具体目标是：1)阐明卫生数据再利用和治理的框架，认识到不同的利益攸关方有不同的数据需求和优先事项。2)制定针对政府、行业、学术界和其他利益攸关方的政策建议、研究议程和行动步骤，概述卫生数据使用做法如何最好地得到卫生信息技术和信息学的支持。3)通过报告和其他机制综合和传播会议结果和建议，为决策进程提供信息，推动行动和研究议程向前发展。2012年大会将借鉴美洲国家联盟在前六次政策会议上形成的模式：在积极的指导委员会和非洲联盟工作人员的支持下，由私人投资和会议主席发挥强有力的领导作用，以构思、规划和实施会议活动；邀请一个多学科的参与者小组，反映一系列感兴趣的利益攸关方；强调小组讨论以实现目标；以及广泛传播会议结果和建议。与AHRQ任务相关。AMIA的会议与AHRQ通过发展成功的伙伴关系和产生长期改善所需的知识和工具来提高护理安全和质量的使命之间存在明显的协同效应。AHRQ对使用健康数据改善医疗保健提供和推动研究的兴趣由来已久，并反映在其许多关键计划领域和研究组合中：例如，2007年的RFI，以衡量利益相关者对国家数据管理实体的兴趣；承诺提高收集的数据质量，以解决重点人群之间的差异；以及支持医疗信息技术辅助数据分析研究。 公共卫生相关性：2012年AMIA卫生政策会议的主要目标是：卫生数据的使用、管理和治理：差距和挑战，旨在促进各国对数据使用、再利用、管理和治理的理解，以应对新的和新兴的技术支持的卫生数据源带来的挑战，并反映当前的卫生信息学证据和做法。虽然医疗数据可以成为丰富的知识创造资源，进一步推动临床和医疗服务研究、人口研究、公共卫生监测以及疾病预防和控制，但适当管理数据是保持所有数据用户之间的信任和透明度的关键。随着以患者为中心的医疗保健日益重要，消费者了解他们的数据是如何被使用的并相信他们的身份受到保护是至关重要的。

DESCRIPTION (provided by applicant): The goal of the 7th annual AMIA Health Policy Meeting, Health Data Use, Stewardship and Governance: Gaps and Challenges, is to further a national understanding of data use, re-use, stewardship and governance that meets challenges posed by technology-enabled sources of health data, and reflects current health informatics evidence and practices. In light of recent studies discussing the reliability of electronic health record (EHR) data as the basis for mandated reports and research, the meeting will develop and advance a data management model that recognizes healthcare data as an organizational, enterprise-wide asset and resource. The meeting will build on the prior work of AMIA, the Institute of Medicine (IOM) and others, especially in light of rapid changes being brought about by patient-centered medicine, performance and outcome measurement, and growing adoption of EHRs. Specific Aims of the conference: 1) Articulate a framework for the re-use and governance of health data, recognizing that different stakeholders have different data needs and priorities. 2) Formulate policy recommendations, a research agenda and action steps directed to government, industry, academia, and other stakeholders that outline how health data use practices can best be supported by health IT and informatics. 3) Synthesize and disseminate meeting findings and recommendations via a report and other mechanisms to inform the policymaking process and move action and research agendas forward. The 2012 conference will build on the model developed during AMIA's previous six policy meetings: strong leadership by the PI and Meeting Chair, supported by an active Steering Committee and AMIA staff to conceptualize, plan and implement meeting activities; invitation of a multidisciplinary group of participants, reflecting a range of interested stakeholders; emphasis on small group discussion to achieve the aims; and widespread dissemination of meeting findings and recommendations. Relevance to AHRQ mission. There are clear synergies between AMIA's conference and AHRQ's mission to improve care safety and quality by developing successful partnerships and generating knowledge and tools needed for long-term improvement. AHRQ's interest in the use of health data to improve healthcare delivery and drive research is longstanding and is reflected in many of its key program areas and research portfolios: for example, the 2007 RFI to gauge stakeholder interest in a national data stewardship entity; commitment to improving the quality of data collected to address disparities among priority populations; and support of health IT secondary data analysis studies. PUBLIC HEALTH RELEVANCE: The main goal of the 2012 AMIA Health Policy Meeting, Health Data Use, Stewardship and Governance: Gaps and Challenges, is to further a national understanding of data use, re- use, stewardship and governance that meets challenges posed by new and emerging technology-enabled sources of health data and reflects current health informatics evidence and practices. While healthcare data can be a rich resource for the creation of knowledge that furthers clinical and health services research, population research, public health monitoring, and disease prevention and control, appropriate stewardship of the data is key to maintaining trust and transparency across all data users. With the growing importance of patient-centered health care, it is critical that consumers understand how their data are being used and have confidence that their identity is protected.