AMIA Health Policy Conference Series

AMIA 健康政策会议系列

• 批准号: 8431703
• 负责人: Gilad Kuperman
• 金额: $ 7.37万
• 依托单位: AMERICAN MEDICAL INFORMATICS ASSN
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-30 至 2015-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8431703
• 关键词: AMIA; Health; Policy; Conference; Series

DESCRIPTION (provided by applicant): The goal of the 7th annual AMIA Health Policy Meeting, Health Data Use, Stewardship and Governance: Gaps and Challenges, is to further a national understanding of data use, re-use, stewardship and governance that meets challenges posed by technology-enabled sources of health data, and reflects current health informatics evidence and practices. In light of recent studies discussing the reliability of electronic health record (EHR) data as the basis for mandated reports and research, the meeting will develop and advance a data management model that recognizes healthcare data as an organizational, enterprise-wide asset and resource. The meeting will build on the prior work of AMIA, the Institute of Medicine (IOM) and others, especially in light of rapid changes being brought about by patient-centered medicine, performance and outcome measurement, and growing adoption of EHRs. Specific Aims of the conference: 1) Articulate a framework for the re-use and governance of health data, recognizing that different stakeholders have different data needs and priorities. 2) Formulate policy recommendations, a research agenda and action steps directed to government, industry, academia, and other stakeholders that outline how health data use practices can best be supported by health IT and informatics. 3) Synthesize and disseminate meeting findings and recommendations via a report and other mechanisms to inform the policymaking process and move action and research agendas forward. The 2012 conference will build on the model developed during AMIA's previous six policy meetings: strong leadership by the PI and Meeting Chair, supported by an active Steering Committee and AMIA staff to conceptualize, plan and implement meeting activities; invitation of a multidisciplinary group of participants, reflecting a range of interested stakeholders; emphasis on small group discussion to achieve the aims; and widespread dissemination of meeting findings and recommendations. Relevance to AHRQ mission. There are clear synergies between AMIA's conference and AHRQ's mission to improve care safety and quality by developing successful partnerships and generating knowledge and tools needed for long-term improvement. AHRQ's interest in the use of health data to improve healthcare delivery and drive research is longstanding and is reflected in many of its key program areas and research portfolios: for example, the 2007 RFI to gauge stakeholder interest in a national data stewardship entity; commitment to improving the quality of data collected to address disparities among priority populations; and support of health IT secondary data analysis studies. PUBLIC HEALTH RELEVANCE: The main goal of the 2012 AMIA Health Policy Meeting, Health Data Use, Stewardship and Governance: Gaps and Challenges, is to further a national understanding of data use, re- use, stewardship and governance that meets challenges posed by new and emerging technology-enabled sources of health data and reflects current health informatics evidence and practices. While healthcare data can be a rich resource for the creation of knowledge that furthers clinical and health services research, population research, public health monitoring, and disease prevention and control, appropriate stewardship of the data is key to maintaining trust and transparency across all data users. With the growing importance of patient-centered health care, it is critical that consumers understand how their data are being used and have confidence that their identity is protected.

描述（由申请人提供）：第七届AMIA年度卫生政策会议的目标是卫生数据使用、管理和治理：差距和挑战，旨在进一步提高国家对数据使用、再利用、管理和治理的理解，以应对技术支持的卫生数据来源带来的挑战，并反映当前的卫生信息学证据和实践。鉴于最近的研究讨论了电子健康记录（EHR）数据作为强制性报告和研究基础的可靠性，会议将开发和推进一种数据管理模型，该模型将医疗保健数据视为组织、企业范围的资产和资源。会议将以AMIA、医学研究所（IOM）和其他机构先前的工作为基础，特别是考虑到以患者为中心的医学、绩效和结果衡量以及越来越多地采用电子病历带来的快速变化。会议的具体目标：1)阐明卫生数据再利用和治理框架，认识到不同的利益攸关方有不同的数据需求和优先事项。2)制定针对政府、行业、学术界和其他利益相关者的政策建议、研究议程和行动步骤，概述卫生信息技术和信息学如何最好地支持卫生数据使用实践。3)通过报告和其他机制综合和传播会议结果和建议，为决策过程提供信息，推动行动和研究议程向前发展。2012年会议将以AMIA前六次政策会议的模式为基础：由PI和会议主席强有力的领导，在积极的指导委员会和AMIA工作人员的支持下，构思、规划和实施会议活动；邀请多学科参与者小组，反映一系列感兴趣的利益攸关方；强调小组讨论，以实现目标；广泛传播会议结果和建议。与AHRQ任务的相关性。AMIA会议与AHRQ的使命之间存在明显的协同作用，即通过发展成功的伙伴关系和产生长期改进所需的知识和工具来提高护理安全和质量。AHRQ对利用卫生数据改善保健服务和推动研究的兴趣由来已久，并反映在其许多关键方案领域和研究组合中：例如，2007年评估利益攸关方对国家数据管理实体的兴趣的RFI；承诺提高所收集数据的质量，以解决优先人口之间的差异；支持卫生信息技术二级数据分析研究。