The Memory Care Navigator: A Proactive Guide

记忆护理导航器：主动指南

• 批准号: 8462104
• 负责人: Troy Andersen
• 金额: $ 12.55万
• 依托单位: PROACTIVE MEMORY SERVICES, INC.
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-30 至 2014-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8462104
• 关键词: Address; Age; Alzheimer' s Disease; American; Apple; Businesses; Capital; Caregiver Burden; Caregivers; Caring; Cause of Death; Cessation of life; Child; Clinical; Cognitive; Communities; Community Services; Complex; Computer software; Computers; Conflict (Psychology); Creativeness; Critical Pathways; Dementia; Diagnosis; Disease; Effectiveness; Emotional Stress; Employment; Ensure; Evaluation; Evidence based intervention; Faculty; Family; Family Caregiver; Family health status; Family member; Feedback; Future; Goals; Health; Health Care Costs; Health Personnel; Health Professional; Health education; Hour; Image; Income; Incubators; Individual; Internet; Interview; Investments; Left; Manuals; Maps; Marketing; Medical; Memory; Memory Disorders; Memory Loss; Patient Care; Patients; Phase; Physicians; Population; Preparation; Prevention; Primary Health Care; Principal Investigator; Process; Provider; Public Health; Quality of Care; Quality of life; Recommendation; Research; Resources; Role; Sales; Savings; Services; Source; Specialist; Spouse Caregiver; Surveys; Symptoms; Tablets; Technology; Testing; Time; Training; Translations; Universities; Update; Utah; base; caregiving; commercialization; computer program; cost; cost effective; depressive symptoms; design; disability; distributed memory; empowered; empowerment; evidence base; experience; health care service organization; health care service utilization; improved; innovation; interdisciplinary approach; interest; loved ones; nervous system disorder; prevent; product development; prototype; tool; volunteer

DESCRIPTION (provided by applicant): Alzheimer's disease (AD) is an irreversible neurological disease that progressively causes a tremendous toll in disability and societal cost. As our population ages, AD and other memory disorders will become increasingly prevalent. Patients and their families often find themselves lost in a complex web of multiple providers, receiving conflicting recommendations and confused by uncoordinated care. Memory Care Navigator is an innovative tablet / smartphone application that will guide individuals with memory loss, their family and health care providers through the complex process of obtaining a definitive diagnosis and assuring the best possible care. The Navigator takes advantage of Proactive Dementia Care, a coordinated, multidisciplinary approach pioneered by dementia specialists from the University of Utah Center for Alzheimer's Care, Imaging and Research that integrates health education and family support with the initial medical evaluation of memory loss. From the start, patients and their family members become empowered to improve quality of life, manage most day-to-day needs and become prepared to prevent unnecessary complications. The Navigator is modular, designed to addressing the specific care needs at each phase of the illness. Aggregating multiple evidence-based interventions and meant to enhance rather than replace professional health care providers and community services, it allows patients and family members to actively participate at every step and track progress in care while assuring that all critical topics are addressed. This application is submitted by PAMS, Inc., a University start-up company, that will leverage expertise of University of Utah faculty and business incubator services available through the University's Technology Commercialization Office. An experienced interdisciplinary team of 3 dementia specialists serves as principal investigators for this project, representing the critical expertise needed for successful product design and relevance to everyday patient evaluation and management. In Phase I, we will develop the essential components of Proactive Dementia Care in a format appropriate for translation into a computer program and produce a limited prototype for initial testing. This prototype will then be field tested in Phase II in preparation for selling the final product via an online applications store (e.g., the Apple "App Store") and seeking additional investment capital for continued expansion and updating of the application, marketing to the public and interested health professionals, and expanding the application to other platforms. The primary initial market for Navigator will be the children of individuals with a progressive dementing disease because they are both computer savvy and highly motivated to seek assistance in providing high quality care. However, spouse caregivers, health care professionals, and some patients may also benefit from such software. Modules appropriate for patients with cognitive complaints but not dementia will be developed later in product development, but are an additional important market. PUBLIC HEALTH RELEVANCE: Alzheimer's disease is a growing public health crisis, yet patients and their families often find themselves lost in the complex task of obtaining the best care available. We propose to develop Memory Care Navigator, an innovative, interactive tablet/smartphone application based upon Proactive Dementia Care that will guide individuals, their family members and their health care providers through the journey with Alzheimer's disease. Empowered with the tools they need and informed about the latest evidence-based care, families can achieve personalized, high-quality, cost-effective care, improve quality of life and avoid expensive unnecessary care crises.

描述（由申请人提供）：阿尔茨海默病（AD）是一种不可逆的神经系统疾病，逐渐导致巨大的残疾和社会成本。随着人口老龄化，AD和其他记忆障碍将变得越来越普遍。患者及其家属经常发现自己迷失在多个提供者的复杂网络中，接受相互矛盾的建议，并因不协调的护理而感到困惑。Memory Care Navigator是一款创新的平板电脑/智能手机应用程序，它将指导记忆丧失的个人、他们的家人和医疗保健提供者完成获得明确诊断和确保最佳护理的复杂过程。导航器利用主动痴呆症护理，这是一种协调的多学科方法，由犹他州大学阿尔茨海默氏症护理，成像和研究中心的痴呆症专家开创，将健康教育和家庭支持与记忆丧失的初步医学评估相结合。从一开始，患者及其家属就有能力提高生活质量，管理大多数日常需求，并准备好预防不必要的并发症。导航器是模块化的，旨在解决疾病每个阶段的特定护理需求。它汇集了多种循证干预措施，旨在加强而不是取代专业医疗保健提供者和社区服务，使患者和家庭成员能够积极参与每一步，并跟踪护理进展，同时确保所有关键主题得到解决。本申请由PAMS公司提交，一家大学初创公司，将利用犹他州大学教师的专业知识， 通过大学的技术商业化办公室提供的企业孵化器服务。由3名痴呆症专家组成的经验丰富的跨学科团队担任该项目的主要研究者，代表了成功产品设计所需的关键专业知识以及与日常患者评估和管理的相关性。在第一阶段，我们将以适合翻译成计算机程序的格式开发主动痴呆症护理的基本组成部分，并制作有限的原型进行初步测试。然后，该原型将在第二阶段进行现场测试，为通过 在线应用商店（例如，Apple“App Store”），并寻求额外的投资资本用于继续扩展和更新应用程序，向公众和感兴趣的健康专业人员进行营销，并将应用程序扩展到其他平台。导航器的主要初始市场将是患有进行性痴呆症的儿童，因为他们既精通计算机，又有高度的动力寻求帮助，提供高质量的护理。然而，配偶照顾者，医疗保健专业人员和一些患者也可能受益于此类软件。适用于有认知障碍但非痴呆症患者的模块将在产品开发后期开发，但这是一个额外的重要市场。 公共卫生关系：阿尔茨海默病是一个日益严重的公共卫生危机，但患者及其家属往往发现自己迷失在获得最佳护理的复杂任务中。我们建议开发Memory Care Navigator，这是一种基于主动痴呆症护理的创新交互式平板电脑/智能手机应用程序，将指导个人，他们的家庭成员和他们的医疗保健提供者通过阿尔茨海默病的旅程。家庭获得所需的工具并了解最新的循证护理，可以实现个性化，高质量，具有成本效益的护理，提高生活质量 避免昂贵的不必要的护理危机。