Parental/Caregiver Distress among Oklahoma Chotaws Coping w/ Dependents w/T1&2D

俄克拉荷马州乔托人应对受抚养人的父母/看护者困扰 T1

• 批准号: 8355987
• 负责人: Joseph Neil Henderson
• 金额: $ 17.67万
• 依托单位: UNIVERSITY OF OKLAHOMA HLTH SCIENCES CTR
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-06-01 至 2017-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8355987
• 关键词: Acculturation; Adult; Age; American Indians; Assimilations; Atlases; Behavioral Medicine; Caregivers; Caring; Categories; Child; Childhood; Choctaw Nation of Oklahoma; Chronic Disease; Clinic; Code; Computer Assisted; Computer software; Coping Behavior; Data; Data Analyses; Data Collection; Diabetes Mellitus; Diabetes prevention; Diagnosis; Diffusion; Distress; Educational workshop; Ensure; Face; Family; Genetic Transcription; Goals; Healed; Health; Health Services; Hospitals; Hour; Household; Immersion Investigative Technique; Indigenous; Infant; Instruction; Insulin-Dependent Diabetes Mellitus; Interview; Knowledge; Lighting; Mainstreaming; Modeling; Non-Insulin-Dependent Diabetes Mellitus; Oklahoma; Parents; Population; Provider; Publications; Qualitative Research; Questionnaires; Research; Series; Services; Structure; System; Techniques; Time; Training; Translations; Youth; base; caregiving; coping; diabetic; experience; healing; health disparity; improved; insight; interest; meetings; member; programs; religious group; social; theories; tribal health

PROJECT SUMMARY (See instructions): The goal of this longitudinal research is to elicit cultural models of parental/caregiver distress (P/CD) as it evolves over two years of time among families coping with dependents diagnosed with Type 1 diabetes (T1D), and for comparison. Type 2 diabetes (T2D), in infants and children through age 18. Cultural models of distress will be analytically ascertained from parent/caregiver experimentally-based perspectives gained by providing care to these young diabetics. The subject populations will be 20 Oklahoma Choctaw families coping with diabetes in children (ages infant-18 years): 10 families with T1D and 10 families with T2D participating in the Choctaw Nation Pediatric Diabetes Clinic. Five data collection strategies are used: 1) Face page for demographic and other social data, 2) the Henderson Degree of Cultural Identification Questionnaire to ascertain acculturation status, 3) Free Listing to ascertain subject-derived categories of P/CD, 4) unstructured interviews eliciting direct discourse on P/CD, and 5) semi-structured interviews based on data from the unstructured interviews, plus theoretically derived categories of P/CD. Data analysis uses a mixed inductive-deductive strategy with a defined set of categories of interest relevant to P/CD and derived both from subjects and theory. Inter-rater reliability calculations are routinely done along with daily meetings with coders. The categories of distress will be examined for influence by contemporary, heterogeneous Choctaw cultural factors, including acculturation status, use of tribal health services, diffusion of caregiving across the kinship group, and religious/spiritual participation in native as well as majority culture alternative healing techniques. The findings will be used to promote improved caregiver coping, health of the dependent, and provision of new family-derived and practice-relevant facts of diabetes in context for providers to Oklahoma Choctaw people. The dissemination and translation of the findings will be done by in service training workshops for the Behavioral Medicine Department of the Choctaw Nation Hospital and professional scientific presentations and publications.

项目总结（见说明）： 这项纵向研究的目标是在应对被诊断患有1型糖尿病（T1 D）的受抚养人的家庭中，在两年的时间里得出父母/照顾者痛苦（P/CD）的文化模型，并进行比较。2型糖尿病（T2 D），婴儿和18岁以下儿童。文化模式的困扰将分析确定从父母/照顾者的实验为基础的观点，通过提供照顾这些年轻的糖尿病患者。受试者人群将是20个俄克拉荷马州乔托族家庭，他们患有糖尿病儿童（年龄为婴儿-18岁）：10个T1 D家庭和10个T2 D家庭参加了乔托族国家儿科糖尿病诊所。使用了五种数据收集策略：1）人口统计和其他社会数据的面页，2）亨德森文化认同程度问卷，以确定文化适应状况，3）自由列表，以确定主题衍生的P/CD类别，4）非结构化访谈，引发对P/CD的直接话语，以及5）基于非结构化访谈数据的半结构化访谈，加上理论上推导出的P/CD类别。数据分析使用一种混合的归纳-演绎策略，其中定义了一组与P/CD相关的感兴趣类别，这些类别来自主题和理论。定期沿着与编码员的日常会议进行评定者间可靠性计算。的类别的困扰将检查当代，异质的乔托文化因素的影响，包括文化适应的地位，使用部落的卫生服务，扩散在整个亲属群体，和宗教/精神参与本地以及多数文化的替代治疗技术。研究结果将用于促进改善照顾者应对，健康的依赖，并提供新的家庭衍生和实践相关的事实糖尿病的背景下，供应商俄克拉荷马州乔托人。将通过为乔托民族医院行为医学部举办在职培训讲习班以及专业科学报告和出版物来传播和翻译研究结果。