Improving the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controll

改善家庭姑息治疗患者家庭护理人员的心理健康：随机对照

• 批准号: nhmrc : 447717
• 负责人: Dr Marylynn Oldham
• 金额: $ 20万
• 依托单位: St. Vincent's Health
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Strategic Awards
• 财政年份: 2007
• 资助国家: 澳大利亚
• 起止时间: 2007-01-01 至 2011-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/improving-psychological-wellbeing-randomised-controll/78048
• 关键词: Improving; psychological; wellbeing; family; caregivers

Support for family caregivers during the care giving phase and into bereavement is a core element of palliative care philosophy and practice. The majority of people report a preference to be cared for at home yet only about a quarter of Australians receiving palliative care services have a home death. Family caregivers provide the bulk of support to patients receiving palliative care at home and without this contribution the well-being of patients and their capacity to remain at home would be compromised. Many research studies have acknowledged the negative psychological, physical, social and financial impact experienced by family caregivers who care for a relative requiring palliative care at home. Family caregivers report a variety of unmet needs throughout the palliative care and bereavement process, despite input from health care services and have been referred to as �hidden patients�. Support for family caregivers is often crisis driven. Resource issues in rural areas add to the challenges of providing optimal family centred support. Hence, it is difficult to claim that palliative care services pro-actively provide effective targeted support for family caregivers and for the most part, family situations with unmet needs prevail. Family caregivers want information that prepares them for what is involved in supporting a dying relative, on how to provide patient comfort, practical care needs and strategies to minimise their own psychological burden. Our study specifically responds to these identified needs by evaluating a home based intervention that aims to enhance the psychological well-being of family caregivers. Family caregivers will receive two home visits from a palliative care nurse, written resources and phone support. A care plan will be developed in partnership with the local palliative care service.

在护理阶段和丧亲之痛期间对家庭护理人员的支持是姑息护理理念和实践的核心要素。大多数人报告说，他们更喜欢在家里接受护理，但只有大约四分之一的澳大利亚人接受姑息治疗服务，有一个家庭死亡。家庭照顾者为在家中接受姑息治疗的病人提供大部分支助，如果没有这种贡献，病人的福祉及其留在家中的能力就会受到损害。许多调查研究都承认，家庭照顾者在家中照顾需要姑息治疗的亲属时，会受到心理、身体、社会和经济方面的负面影响。家庭照顾者报告说，在整个姑息治疗和丧亲过程中，尽管有医疗保健服务的投入，但仍有各种未满足的需求，并被称为“隐藏的病人”。对家庭照顾者的支持往往是危机驱动的。农村地区的资源问题增加了提供以家庭为中心的最佳支助的挑战。因此，很难说姑息治疗服务积极主动地为家庭照顾者提供了有效的有针对性的支持，而且在大多数情况下，家庭的需求得不到满足。家庭护理人员希望获得信息，使他们能够为支持垂死亲属所涉及的内容做好准备，了解如何为患者提供舒适，实际护理需求和策略，以尽量减少他们自己的心理负担。我们的研究通过评估旨在提高家庭照顾者心理健康的家庭干预措施，专门回应这些确定的需求。家庭照顾者将接受姑息治疗护士的两次家访，书面资源和电话支持。将与当地姑息治疗服务机构合作制定一项护理计划。