Developing and testing a pain management program for family caregivers of advanced cancer patients

为晚期癌症患者的家庭护理人员开发和测试疼痛管理计划

• 批准号: nhmrc : 274914
• 负责人: Dr Marylynn Oldham
• 金额: $ 7.97万
• 依托单位: Edith Cowan University
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Strategic Awards
• 财政年份: 2004
• 资助国家: 澳大利亚
• 起止时间: 2004-01-01 至 2006-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/developing-testing-pain-cancer-patients/113657
• 关键词: Developing; testing; pain; management; program

To improve cancer patients' and family carers' knowledge and attitudes about pain management. A secondary aim is to examine the effect of a pain education program (PEP) on patients' actual pain experiences. This study builds on pilot data indicating that a pain education program (PEP) for family carers of cancer patients in a home based palliative service is effective in improving family carers' knowledge of pain management and family carers' attitudes toward managing the patient's pain. The PEP will be tested with both patients with progressive or recurrent cancer and their family carers, taking into account three recommendations arising from the pilot study: Both patients and family carers should be included in the education sessions to ensure that they receive the same information because the attitudes and behaviours of those close to the patient can directly influence outcomes; Recruitment should occur at an early stage of the illness rather than the palliative stage so that patients will be well enough to participate in the education sessions and the information provided will be useful for a longer period of time; Education sessions should be short and be delivered in the outpatient oncology settings, which is more cost-effective and typical of the way that the intervention will be delivered in practice, if found to be effective.

提高癌症病患及家属照顾者对疼痛处理的知识与态度。第二个目的是检查疼痛教育计划（PEP）对患者实际疼痛体验的影响。本研究建立在试点数据表明，疼痛教育计划（PEP）的癌症患者的家庭照顾者在以家庭为基础的姑息治疗服务是有效的，以提高家庭照顾者的疼痛管理知识和家庭照顾者的态度管理病人的疼痛。将在进行性或复发性癌症患者及其家属照顾者中测试该计划，并考虑到试点研究提出的三项建议：患者和家属照顾者都应参与教育课程，以确保他们获得相同的信息，因为与患者关系密切的人的态度和行为会直接影响结果;招募应在疾病的早期阶段进行，而不是在缓解阶段进行，以便患者能够健康地参加教育课程，所提供的信息将在较长时间内有用;教育课程应简短，并在门诊肿瘤学环境中提供，这是更具成本效益和典型的方式，将在实践中提供的干预措施，如果发现是有效的。