Helping family caregivers of palliative care patients manage their roles: evaluation of a hospital based group education

帮助姑息治疗患者的家庭护理人员管理他们的角色：基于医院的团体教育的评估

• 批准号: nhmrc : 447713
• 负责人: Dr Marylynn Oldham
• 金额: $ 14.66万
• 依托单位: St. Vincent's Health
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Strategic Awards
• 财政年份: 2008
• 资助国家: 澳大利亚
• 起止时间: 2008-01-01 至 2009-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/helping-family-caregivers-group-education/78139
• 关键词: Helping; family; caregivers; palliative; care

While most people would prefer to die at home, the reality is that about two thirds of people die in in-patient settings, such as palliative care units. A home death is more likely if family caregivers are well prepared and supported in their role. Palliative care services are expected to support family caregivers. Research shows, however, that many family caregivers lack the required information to effectively manage their role. They are also prone to suffer psychological distress while supporting their dying relative. Caregivers have expressed a desire for structured information to better prepare them for their role, whether their dying relative is in hospital, a palliative care unit or at home. The aim of this project is to develop and evaluate an educational program offered to family caregivers who are supporting a relative who is receiving palliative care in an inpatient setting. The education program seeks to help family caregivers manage their role and to prepare them for the patient�s home care where appropriate. It is hoped that family caregivers who have attended the program will be more competent, better prepared and more informed about their caregiving role. An additional benefit from attending the program will be the opportunity for family caregivers to meet others in similar situations to themselves. Each education program will involve approximately six family caregivers; it will be conducted very soon after their relative has been admitted to the palliative care unit. The program will be of two hours duration (including time for data collection) and will be facilitated by a suitably qualified health professional. Written resources will be provided and caregivers will be given the opportunity to meet with staff from the multidisciplinary team. Referrals for scheduled consultations will be made where relevant. The program will be conducted in three sites (two in Victoria and one in Western Australia) and will be comprehensively evaluated. The caregivers who attend the program will be invited to provide feedback by completing several questionnaires designed to determine the effectiveness of the program. Group education programs of this kind have previously not been rigorously developed and tested. We seek to address this and hope to demonstrate that we can positively influence the family care giving experience.

虽然大多数人宁愿死在家里，但现实是，大约三分之二的人死在住院环境中，比如姑息治疗病房。如果家庭照顾者做好充分的准备并得到他们的支持，家庭死亡的可能性更大。姑息治疗服务预计将为家庭照顾者提供支持。然而，研究表明，许多家庭照顾者缺乏有效管理其角色所需的信息。他们在赡养垂死的亲人时，也容易遭受心理上的痛苦。照顾者表达了对结构化信息的渴望，以更好地为他们的角色做好准备，无论他们的垂死亲人是在医院、姑息治疗病房还是在家里。这个项目的目的是开发和评估一项教育计划，该计划提供给支持在住院环境中接受姑息治疗的亲属的家庭照顾者。该教育计划旨在帮助家庭照顾者管理自己的角色，并在适当的情况下为患者S的家庭护理做好准备。希望参加过该计划的家庭照顾者将更有能力，更有准备，更了解自己的照看角色。参加该项目的另一个好处是，家庭照顾者将有机会遇到与自己情况相似的其他人。每个教育方案将涉及大约六名家庭照顾者；这将在他们的亲属进入姑息治疗单元后不久进行。该计划将持续两个小时(包括收集数据的时间)，并将由一名合格的卫生专业人员提供协助。将提供书面资源，照顾者将有机会与多学科团队的工作人员会面。将在适当的情况下转介预定的磋商。该计划将在三个地点(两个在维多利亚州和一个在西澳大利亚州)进行，并将进行全面评估。参加该计划的照顾者将被邀请通过填写几份旨在确定该计划有效性的问卷来提供反馈。这类团体教育项目以前没有经过严格的开发和测试。我们寻求解决这一问题，并希望证明我们可以积极影响家庭护理经验。