Home-Based Cancer Symptom Management

家庭癌症症状管理

• 批准号: 8505398
• 负责人: DerShung Yang
• 金额: $ 26.84万
• 依托单位: BRIGHTOUTCOME INC.
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-15 至 2015-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8505398
• 关键词: Accident and Emergency department; Address; Adverse effects; Agreement; Algorithms; Architecture; Arizona; Athletic Injuries; Cancer Center; Cancer Patient; Caregivers; Caring; Clinic; Clinic Visits; Clinical; Clinical Trials; Clinics and Hospitals; Clip; Collection; Communication; Computers; Consultations; Contracts; Counseling; Data; Development; Disabled Persons; Disease Management; Disease Progression; Evaluation; Focus Groups; Future; Goals; Group Interviews; Health; Health Care Costs; Health Services Accessibility; Health system; Healthcare; Healthcare Systems; Home environment; Hospitalization; Improve Access; Instruction; Internet; Intervention; Learning; Length of Stay; Letters; Location; Malignant Neoplasms; Manuals; Marketing; Measures; Medical; Methodology; Modeling; Monitor; Multimedia; Multiple Sclerosis; Nurses; Oncologic Nursing; Oncologist; Oncology Nurse; Outcome; Outpatients; Paper; Participant; Patient Education; Patient Outcomes Assessments; Patient Self-Report; Patients; Pattern; Performance; Phase; Population Study; Process; Production; Provider; Psychology; Public Health; Quality of Care; Randomized; Randomized Controlled Clinical Trials; Randomized Controlled Trials; Recommendation; Reporting; Research Infrastructure; Resources; Rural; Second Primary Cancers; Self Efficacy; Self Management; Severities; Site; Small Business Innovation Research Grant; Solutions; Symptoms; System; Systems Analysis; Technology; Telemedicine; Telephone; Testing; Text; Time; Treatment-Related Cancer; United States Department of Veterans Affairs; Work; aging population; base; cancer care; cancer therapy; cancer type; clinical care; clinical research site; design; experience; hospital utilization; improved; interest; iterative design; malignant breast neoplasm; multidisciplinary; oncology; patient population; programs; prototype; public health relevance; satisfaction; software development; symptom management; system architecture; trend; usability

DESCRIPTION (provided by applicant): Cancer symptoms due to disease progression or side effects caused by cancer treatment are prevalent. Most cancer patients are treated in outpatient settings, having to self-manage these symptoms at home. For a variety of reasons, symptom self-management by patients and their caregivers can be a tremendous burden on themselves, resulting in suboptimal patient outcomes and increased healthcare costs due to unnecessary hospitalizations or clinic visits. The goal of this project is to develop a home-based Cancer Symptom Management (CSM) system to promote patient self-management of cancer symptoms and treatment side effects and facilitate remote management by the care team. The anticipated benefits include improved patient self-reported outcomes, better self-efficacy, better patient-provider communication, and reduced hospital stays/clinic visits. This is a Fast Track application. Our Phase I aims include: 1) the collection and analysis of system requirements via focus groups and interviews; 2) the design and development of a working prototype via iterative user- centric design and object-oriented software development methodologies; and 3) the evaluation of system usability and user acceptance via a small-scale pilot test. Our Phase II aims include: 1) the development of the final product by adding multimedia patient education contents and by thoroughly examining system architecture level issues such as performance, scalability, and maintainability; and 2) a larger-scale randomized controlled trial at two clinical sites to evaluate the efficacy of our symptom management solution.

描述（由申请人提供）：由于疾病进展或癌症治疗引起的副作用而导致的癌症症状很普遍。大多数癌症患者在门诊接受治疗，必须在家自我管理这些症状。由于多种原因，患者及其护理人员的症状自我管理可能会给自己带来巨大的负担，导致患者治疗结果不佳，并因不必要的住院或就诊而增加医疗费用。该项目的目标是开发一种家庭癌症症状管理（CSM）系统，以促进患者对癌症症状和治疗副作用的自我管理，并促进护理团队的远程管理。预期的好处包括改善患者自我报告的结果、更好的自我效能、更好的患者与提供者的沟通以及减少住院/就诊。这是一个快速通道应用程序。我们第一阶段的目标包括：1）通过焦点小组和访谈收集和分析系统需求； 2）通过以用户为中心的迭代设计和面向对象的软件开发方法来设计和开发工作原型； 3）通过小规模试点评估系统可用性和用户接受度。我们第二阶段的目标包括：1）通过添加多媒体患者教育内容并彻底检查系统架构层面的问题（例如性能、可扩展性和可维护性）来开发最终产品； 2) 在两个临床中心进行更大规模的随机对照试验，以评估我们的症状管理解决方案的功效。