Home-Based Cancer Symptom Management

家庭癌症症状管理

• 批准号: 8251279
• 负责人: DerShung Yang
• 金额: $ 57.13万
• 依托单位: BRIGHTOUTCOME INC.
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-09-15 至 2014-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8251279
• 关键词: Accident and Emergency department; Address; Adverse effects; Agreement; Algorithms; Architecture; Arizona; Athletic Injuries; Cancer Center; Cancer Patient; Caregivers; Caring; Clinic; Clinic Visits; Clinical; Clinical Trials; Clinics and Hospitals; Clip; Collection; Communication; Computers; Consultations; Contracts; Counseling; Data; Development; Disabled Persons; Disease Management; Disease Progression; Evaluation; Focus Groups; Future; Goals; Group Interviews; Health; Health Care Costs; Health Services Accessibility; Health system; Healthcare; Healthcare Systems; Home environment; Hospitalization; Improve Access; Instruction; Internet; Intervention; Learning; Length of Stay; Letters; Location; Malignant Neoplasms; Manuals; Marketing; Measures; Medical; Methodology; Modeling; Monitor; Multimedia; Multiple Sclerosis; Nurses; Oncologic Nursing; Oncologist; Oncology Nurse; Outcome; Outpatients; Paper; Participant; Patient Education; Patient Outcomes Assessments; Patient Self-Report; Patients; Pattern; Performance; Phase; Population Study; Process; Production; Provider; Psychology; Public Health; Quality of Care; Randomized; Randomized Controlled Clinical Trials; Randomized Controlled Trials; Recommendation; Reporting; Research Infrastructure; Resources; Rural; Second Primary Cancers; Self Efficacy; Self Management; Severities; Site; Small Business Innovation Research Grant; Solutions; Symptoms; System; Systems Analysis; Technology; Telemedicine; Telephone; Testing; Text; Time; Treatment-Related Cancer; United States Department of Veterans Affairs; Work; aging population; base; cancer care; cancer therapy; cancer type; clinical care; clinical research site; design; experience; hospital utilization; improved; interest; iterative design; malignant breast neoplasm; multidisciplinary; oncology; patient population; programs; prototype; public health relevance; satisfaction; software development; symptom management; system architecture; trend; usability

DESCRIPTION (provided by applicant): Cancer symptoms due to disease progression or side effects caused by cancer treatment are prevalent. Most cancer patients are treated in outpatient settings, having to self-manage these symptoms at home. For a variety of reasons, symptom self-management by patients and their caregivers can be a tremendous burden on themselves, resulting in suboptimal patient outcomes and increased healthcare costs due to unnecessary hospitalizations or clinic visits. The goal of this project is to develop a home-based Cancer Symptom Management (CSM) system to promote patient self-management of cancer symptoms and treatment side effects and facilitate remote management by the care team. The anticipated benefits include improved patient self-reported outcomes, better self-efficacy, better patient-provider communication, and reduced hospital stays/clinic visits. This is a Fast Track application. Our Phase I aims include: 1) the collection and analysis of system requirements via focus groups and interviews; 2) the design and development of a working prototype via iterative user- centric design and object-oriented software development methodologies; and 3) the evaluation of system usability and user acceptance via a small-scale pilot test. Our Phase II aims include: 1) the development of the final product by adding multimedia patient education contents and by thoroughly examining system architecture level issues such as performance, scalability, and maintainability; and 2) a larger-scale randomized controlled trial at two clinical sites to evaluate the efficacy of our symptom management solution. PUBLIC HEALTH RELEVANCE: The proposed work is intended to improve access to care, promote patient self-management, facilitate provider-patient communication, and ultimately improve clinical outcomes and reduce healthcare costs. The effort is of particular public health interest since with the aging population the number of oncology patients is expected to increase and telemedicine technologies could facilitate more accessible quality care for patients in remote rural locations as well as frail or disabled patients in urban settings. In addition, home-based symptom management solutions could reduce unnecessary emergency room and clinic visits, hence reducing healthcare costs as well as conserving energy.

描述（由申请人提供）：由于疾病进展或由癌症治疗引起的副作用引起的癌症症状很普遍。大多数癌症患者在门诊环境中接受治疗，必须在家中自我管理这些症状。由于多种原因，由于不必要的住院或诊所就诊，患者及其护理人员的症状自我管理可能会给自己带来巨大的负担，从而导致患者的结果和医疗保健费用增加。该项目的目的是开发一个基于家庭的癌症症状管理（CSM）系统，以促进患者的癌症症状和治疗副作用的自我管理，并促进护理团队的远程管理。预期的好处包括改善患者自我报告的结果，更好的自我效能感，更好的患者沟通以及减少住院/诊所就诊。这是一个快速的应用程序。我们的I阶段的目标包括：1）通过焦点小组和访谈对系统要求的收集和分析； 2）通过迭代用户设计和面向对象的软件开发方法设计和开发工作原型； 3）通过小规模的试点测试评估系统可用性和用户接受。我们的第二阶段目标包括：1）通过添加多媒体患者教育内容以及彻底检查系统体系结构级别的问题，例如性能，可伸缩性和可维护性来开发最终产品； 2）在两个临床部位进行大规模的随机对照试验，以评估我们的症状管理解决方案的功效。 公共卫生相关性：拟议的工作旨在改善获得护理的机会，促进患者的自我管理，促进提供者与患者的沟通以及最终改善临床成果并降低医疗保健成本。这项工作特别是公共卫生的兴趣，因为随着人口老龄化，预计肿瘤学患者的数量将增加，而远程医疗技术可能会促进偏远农村地区患者以及城市环境中脆弱或残疾患者的更容易获得的质量护理。此外，基于家庭的症状管理解决方案可以减少不必要的急诊室和诊所就诊，从而降低医疗费用以及节约能源。