Salud Juntos: A Promotora-Led Home-Based Cancer Care Support Solution

Salud Juntos：Promotora 主导的家庭癌症护理支持解决方案

• 批准号: 9074893
• 负责人: DerShung Yang
• 金额: $ 20万
• 依托单位: BRIGHTOUTCOME INC.
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-07-22 至 2018-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9074893
• 关键词: Address; Adoption; Adult; American; Businesses; Cancer Patient; Caregivers; Caring; Censuses; Clinical; Clinics and Hospitals; Communication; Communities; Community Health; Data; Development; Education; Effectiveness; Ensure; Evaluation; Expenditure; Family; Family member; Fees; Focus Groups; Foundations; Friends; Goals; Health; Health Sciences; Health Status; Healthcare; Hispanics; Home environment; Human; Hybrids; Income; Individual; Institutes; Institution; Intervention; Knowledge; Latino; Licensing; Malignant Neoplasms; Medical; Medical Technology; Minority Groups; Modeling; Patient Education; Patient-Focused Outcomes; Patients; Phase; Pilot Projects; Population; Population Growth; Process; Provider; Randomized; Resources; Self Efficacy; Self Management; Site; Small Business Innovation Research Grant; Source; Staging; Supportive care; Surveys; System; Technology; Testing; Time; Touch sensation; Universities; Utah; Work; base; bilingualism; cancer care; cancer diagnosis; cancer research center director; cancer therapy; cost; design; digital; eHealth; empowered; experience; group intervention; health disparity; health equity; improved; member; men; palliation; programs; prototype; psychosocial; public health relevance; response; skills; social media; success; survivorship; symptom management; symptom self management; tool; treatment as usual; usability; user centered design

 DESCRIPTION (provided by applicant): This application is in response to RFA EB-15-001, a special SBIR program to reduce health disparities by developing medical technologies that are "effective, affordable, culturally acceptable, and easily accessible to those who need them." It is based on the well-established partnership between BrightOutcome and Dr. Ana Maria Lopez, Associate Vice President for Health Equity and Inclusion, University of Utah Health Sciences Center, and Director of Cancer Health Equity, Huntsman Cancer Institute. We propose co-development of ¡Salud Juntos!, a bilingual "high tech and high touch" medical care support portal for Latinos, the most rapidly growing group in the U.S. By leveraging both e-health technologies and actual human connections. ¡Salud Juntos!'s can expand to encompass health concerns comprehensively. Our target domain for this project will be the cancer care continuum, from cancer diagnosis/treatment though survivorship/palliation, with Phase I focusing on cancer symptom management. The "high tech" aspect of ¡Salud Juntos! utilizes technology features such as mobile access, social media support, adaptive health status assessment, and individualized content deliveries to connect patients and families to care. The "high touch" aspect, a critical and unique component of ¡Salud Juntos!, facilitates patient engagement through community health workers/promotoras who can personally deliver the requisite education and support to individuals and the community. ¡Salud Juntos!'s high-tech features will be adapted for promotoras to use to manage their day-to-day tasks. The use of both high-tech and high-touch solutions ensures a broad reach across the digital divide and addresses health delivery barriers including knowledge, culture, and distance. The overarching goal of ¡Salud Juntos! is to improve cancer patients' outcomes and self-efficacy by empowering cancer patients with self-management skills and bringing cancer care support directly to them at home via both promotoras and technology. Such supportive care, regardless whether delivered by promotoras or by technology, addresses both physical and psychosocial concerns and needs of cancer patients by offering timely patient education materials, engaging local/community support resources, facilitating patient-provider communication, and involving patients caregivers, friends and families. Phase I aims are to: 1) Collect input from stakeholders on expected system features, perceived usefulness/impacts, and potential adoption barriers via four focus groups of ten subjects each. Stakeholders include promotoras, supportive care professionals, Latino cancer patients, and their caregivers; 2) Design/develop the prototype ¡Salud Juntos! by following a user-centered design process and leveraging the technical/functional foundations from our prior work; 3) Conduct two rounds of usability/usefulness tests with 32 subjects each, and a pilot study with 60 subjects randomized to receive usual care (control) and promotora support with ¡Salud Juntos! (intervention) on a 1:1 ratio to conduct preliminary effectiveness evaluation and assess technical feasibility.

 描述（由应用程序提供）：此应用程序是对RFA EB-15-001的响应，这是一项特殊的SBIR计划，旨在通过开发“有效，负担得起，可以接受的，并且需要它们的人易于访问的医疗技术来减少健康差异”。这是 基于BrightOutcome和Ana Maria Lopez博士之间建立了良好的合作关系，犹他大学健康科学中心卫生公平与包容副总裁兼亨斯曼癌症研究所癌症健康公平的总监。我们提出了“ Salud Juntos！”的共同开发，这是一个双语的“高科技和高触摸”医疗服务支持​​门户网站，这是美国通过利用电子卫生技术和实际人类联系的美国增长最快的群体。 Salud Juntos！的扩展可以全面涵盖健康问题。该项目的目标领域将是癌症护理连续体，从癌症诊断/治疗中，尽管生存/抑制，第一阶段的重点是癌症症状管理。 Salud Juntos的“高科技”方面！利用技术功能，例如移动访问，社交媒体支持，自适应健康状况评估以及个性化的内容交付，以将患者和家庭联系起来。 “ High Touch”方面是“ Salud Juntos！”的关键和独特组成部分，促进了通过社区卫生工作者/促销员的参与，他们可以亲自为个人和社区提供必要的教育和支持。 Salud Juntos！的高科技功能将适应发起人来管理其日常任务。高科技和高点触摸解决方案的使用可确保整个数字鸿沟的广泛范围，并解决包括知识，文化和距离在内的健康障碍。 Salud Juntos的总体目标！是通过赋予癌症患者的自我管理能力并通过促进者和技术直接将癌症护理提供支持来改善癌症患者的结果和自我效能感。这种支持性护理，无论是由发起人提供还是通过技术提供，都通过提供及时的患者教育材料，吸引本地/社区支持资源，促进患者提供者的沟通，并参与患者护理人员，朋友，朋友和家人，从而解决癌症患者的身体和社会心理问题和需求。第一阶段的目的是：1）从利益相关者那里收集有关预期系统特征，感知的有用性/影响以及通过四个焦点组的十个主题的潜在采用障碍的意见。利益相关者包括发起人，支持护理专业人员，拉丁裔癌症患者及其护理人员； 2）设计/开发原型。通过遵循以用户为中心的设计过程并利用我们先前工作的技术/功能基础； 3）每人进行两轮可用性/有用性测试，每个受试者进行32个受试者，并进行了60个受试者，随机接受常规护理（对照）和启动支持。 （干预）以1：1的比率进行初步有效性评估和评估技术可行性。