Salud Juntos: A Promotora-Led Home-Based Cancer Care Support Solution

Salud Juntos：Promotora 主导的家庭癌症护理支持解决方案

• 批准号: 9074893
• 负责人: DerShung Yang
• 金额: $ 20万
• 依托单位: BRIGHTOUTCOME INC.
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-07-22 至 2018-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9074893
• 关键词: Address; Adoption; Adult; American; Businesses; Cancer Patient; Caregivers; Caring; Censuses; Clinical; Clinics and Hospitals; Communication; Communities; Community Health; Data; Development; Education; Effectiveness; Ensure; Evaluation; Expenditure; Family; Family member; Fees; Focus Groups; Foundations; Friends; Goals; Health; Health Sciences; Health Status; Healthcare; Hispanics; Home environment; Human; Hybrids; Income; Individual; Institutes; Institution; Intervention; Knowledge; Latino; Licensing; Malignant Neoplasms; Medical; Medical Technology; Minority Groups; Modeling; Patient Education; Patient-Focused Outcomes; Patients; Phase; Pilot Projects; Population; Population Growth; Process; Provider; Randomized; Resources; Self Efficacy; Self Management; Site; Small Business Innovation Research Grant; Source; Staging; Supportive care; Surveys; System; Technology; Testing; Time; Touch sensation; Universities; Utah; Work; base; bilingualism; cancer care; cancer diagnosis; cancer research center director; cancer therapy; cost; design; digital; eHealth; empowered; experience; group intervention; health disparity; health equity; improved; member; men; palliation; programs; prototype; psychosocial; public health relevance; response; skills; social media; success; survivorship; symptom management; symptom self management; tool; treatment as usual; usability; user centered design

 DESCRIPTION (provided by applicant): This application is in response to RFA EB-15-001, a special SBIR program to reduce health disparities by developing medical technologies that are "effective, affordable, culturally acceptable, and easily accessible to those who need them." It is based on the well-established partnership between BrightOutcome and Dr. Ana Maria Lopez, Associate Vice President for Health Equity and Inclusion, University of Utah Health Sciences Center, and Director of Cancer Health Equity, Huntsman Cancer Institute. We propose co-development of ¡Salud Juntos!, a bilingual "high tech and high touch" medical care support portal for Latinos, the most rapidly growing group in the U.S. By leveraging both e-health technologies and actual human connections. ¡Salud Juntos!'s can expand to encompass health concerns comprehensively. Our target domain for this project will be the cancer care continuum, from cancer diagnosis/treatment though survivorship/palliation, with Phase I focusing on cancer symptom management. The "high tech" aspect of ¡Salud Juntos! utilizes technology features such as mobile access, social media support, adaptive health status assessment, and individualized content deliveries to connect patients and families to care. The "high touch" aspect, a critical and unique component of ¡Salud Juntos!, facilitates patient engagement through community health workers/promotoras who can personally deliver the requisite education and support to individuals and the community. ¡Salud Juntos!'s high-tech features will be adapted for promotoras to use to manage their day-to-day tasks. The use of both high-tech and high-touch solutions ensures a broad reach across the digital divide and addresses health delivery barriers including knowledge, culture, and distance. The overarching goal of ¡Salud Juntos! is to improve cancer patients' outcomes and self-efficacy by empowering cancer patients with self-management skills and bringing cancer care support directly to them at home via both promotoras and technology. Such supportive care, regardless whether delivered by promotoras or by technology, addresses both physical and psychosocial concerns and needs of cancer patients by offering timely patient education materials, engaging local/community support resources, facilitating patient-provider communication, and involving patients caregivers, friends and families. Phase I aims are to: 1) Collect input from stakeholders on expected system features, perceived usefulness/impacts, and potential adoption barriers via four focus groups of ten subjects each. Stakeholders include promotoras, supportive care professionals, Latino cancer patients, and their caregivers; 2) Design/develop the prototype ¡Salud Juntos! by following a user-centered design process and leveraging the technical/functional foundations from our prior work; 3) Conduct two rounds of usability/usefulness tests with 32 subjects each, and a pilot study with 60 subjects randomized to receive usual care (control) and promotora support with ¡Salud Juntos! (intervention) on a 1:1 ratio to conduct preliminary effectiveness evaluation and assess technical feasibility.

 描述（由申请人提供）：本申请是对 RFA EB-15-001 的回应，这是一项特殊的 SBIR 计划，旨在通过开发“有效、负担得起、文化上可接受且易于为有需要的人获取”的医疗技术来减少健康差距。这是 基于 BrightOutcome 与犹他大学健康科学中心健康公平和包容性副总裁兼亨斯曼癌症研究所癌症健康公平主任 Ana Maria Lopez 博士之间建立的良好合作伙伴关系。我们建议通过利用电子医疗技术和实际的人际关系，共同开发¡Salud Juntos!，这是一个针对拉丁裔（美国增长最快的群体）的双语“高科技和高接触”医疗保健支持门户。 Salud Juntos! 可以扩展到全面涵盖健康问题。我们该项目的目标领域将是癌症护理连续体，从癌症诊断/治疗到生存/姑息治疗，第一阶段重点关注癌症症状管理。 Salud Juntos 的“高科技”方面！利用移动访问、社交媒体支持、适应性健康状况评估和个性化内容交付等技术功能，将患者和家人与护理联系起来。 “高接触”方面是“Salud Juntos！”的一个重要且独特的组成部分，通过社区卫生工作者/宣传员促进患者参与，他们可以亲自向个人和社区提供必要的教育和支持。 Salud Juntos! 的高科技功能将适合促销员用来管理他们的日常任务。高科技和高接触解决方案的使用确保了跨越数字鸿沟的广泛覆盖，并解决了包括知识、文化和距离在内的健康服务障碍。 Salud Juntos 的总体目标！旨在通过赋予癌症患者自我管理技能并通过促销员和技术直接在家中为他们提供癌症护理支持来改善癌症患者的治疗结果和自我效能。这种支持性护理，无论是通过促进者还是通过技术提供，都可以通过提供及时的患者教育材料、利用当地/社区支持资源、促进患者与提供者的沟通以及患者护理人员、朋友和家人的参与来解决癌症患者的身体和心理社会问题和需求。第一阶段的目标是： 1) 通过四个焦点小组（每个焦点小组各有十个主题）收集利益相关者对预期系统功能、感知有用性/影响以及潜在采用障碍的意见。利益相关者包括发起人、支持性护理专业人员、拉丁裔癌症患者及其护理人员； 2) 设计/开发原型¡Salud Juntos！遵循以用户为中心的设计流程并利用我们之前工作中的技术/功能基础； 3) 进行两轮可用性/有用性测试，每轮 32 名受试者，以及一项试点研究，其中 60 名受试者随机接受常规护理（对照）和 ¡Salud Juntos! 的 promotora 支持！ （干预）按1：1的比例进行初步效果评估并评估技术可行性。