Optimizing Educational Video Designs to Improve Minority Organ Donor Registration

优化教育视频设计以改善少数族裔器官捐献者登记

• 批准号: 8630752
• 负责人: STEPHEN P WALL
• 金额: $ 37.36万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-04-05 至 2018-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8630752
• 关键词: Academy; Accident and Emergency department; Advocate; Affect; Award; Beauty; Behavior; Behavior Therapy; Belief; Blinded; Cardiovascular system; Cessation of life; Colon Carcinoma; Communities; Community Health; Data; Data Analyses; Determination of Death; Diabetes Mellitus; Disadvantaged; Dominican; Education; Educational Intervention; Educational Models; Effectiveness; Elderly; End stage renal failure; Evaluation; Failure; Foundations; Future; Goals; Health; Health Promotion; Health Services Accessibility; Healthy People 2020; High Prevalence; Imagination; Intervention; Interview; Kidney; Kidney Transplantation; Latino; Left; Life; Location; Mails; Measures; Minority; Minority Groups; Modeling; Organ; Organ Donations; Organ Donor; Organ Transplantation; Participant; Patients; Phase; Population; Population Heterogeneity; Prevention Research; Process; Production; Public Hospitals; Puerto Rican; Qualitative Research; Race; Randomized; Randomized Controlled Trials; Recruitment Activity; Registries; Research; Research Design; Site; Spain; System; Testing; Time; Translating; Transplantation; Visit; Visitors to Patients; Work; base; cancer prevention; community setting; compare effectiveness; design; exhaust; experience; group intervention; hypertension control; improved; meetings; member; peer; primary outcome; programs; public health relevance; randomized trial; screening; success; therapy development

Abstract The U.S. organ donation system remains in a perpetual state of crisis. Over 115,000 patients in the U.S. are waiting for organ transplants, and the waitlist increases by several thousand annually despite over 10,000 dying or becoming too sick to receive a transplant. Latinos are disproportionally affected by this organ crisis due to their higher prevalence of diabetes and end-stage renal disease from inadequate access to treatment. Of the 115,000 waiting, over 95,000 require kidneys, and of these, 19.2% are Latino despite Latinos comprising only 16.7% of the U.S. population. Latinos also comprise 15.8% of recipients but only 13.1% of donors. These rates remain well below the disproportionate need since organs best match when donors and recipients are of similar race. We will investigate means for improving organ donor registration among Latinos using educational videos about uncontrolled donation after circulatory death (uDCDD) produced and distributed in partnership with our network of Latino owned barbershops and beauty parlors. uDCDD programs consider candidates for donation no matter timing or location of death, so long as consideration occurs after all life sustaining efforts are exhausted. Video content will include live footage from uDCDD programs in Spain, which has markedly improved rates of kidney transplantation compared to the U.S. If successful, we estimate that uDCDD programs could provide 22,000 more donation opportunities annually in the U.S. Educational models will inform the design of our uDCDD videos to test how genre (expert testimonials, documentary with live uDCDD footage) and ending choices (uplifting, negative consequences, unresolved) impact immediate registration after viewing. Our proposal is a 3-phase qualitative and quantitative research design that includes an intervention development phase using qualitative interviewing to both derive and provide culturally specific content for the videos (Aim 1); a 2x3 randomized controlled trial, in which we will randomize customers to receive one of six videos delivered with iPads, after which an immediate organ donation opportunity will be offered through registration online or with a mail application (Aim 2); and a failure analysis whereby we will interview some of the participants from the randomized trial who failed to register one month after their educational session to ascertain their reasons (Aim 3). This research will provide a model for future studies, in which we will modify our videos based on our research findings and distribute them in Latino-owned barbershops and beauty parlors using large screen TVs or interactive kiosks. Through this work, we hope to reduce organ transplantation disparities through increased registration among Latinos who comprise a group having a disproportionally greater need for kidney transplants. !

抽象的 美国的器官捐献系统仍处于永久的危机状态。美国有超过 115,000 名患者正在接受治疗 等待器官移植，尽管有超过10,000人，但等待名单每年增加数千人 死亡或病重而无法接受移植。拉丁美洲人受到这种器官危机的影响尤为严重 由于获得治疗的机会不足，他们的糖尿病和终末期肾病患病率较高。 在 115,000 名等待者中，超过 95,000 人需要肾脏，其中 19.2% 是拉丁裔，尽管是拉丁裔 仅占美国人口的 16.7%。拉丁裔也占受助者的 15.8%，但仅占 13.1% 捐助者。这些比率仍然远低于不成比例的需求，因为当捐赠者和 接受者具有相似的种族。我们将研究改善拉丁裔器官捐献者登记的方法 使用制作和制作关于循环死亡后不受控制的捐赠（uDCDD）的教育视频 与我们的拉丁裔理发店和美容院网络合作分发。 uDCDD 项目 无论死亡时间或地点如何，都会考虑捐赠候选人，只要最终发生考虑 维持生命的努力已经耗尽。视频内容将包括西班牙 uDCDD 节目的现场片段， 与美国相比，肾移植率显着提高。如果成功，我们估计 uDCDD 项目每年可为美国提供 22,000 个以上的捐赠机会 模型将为我们的 uDCDD 视频的设计提供信息，以测试流派（专家推荐、纪录片与 现场 uDCDD 镜头）和结局选择（令人振奋、负面后果、未解决）会立即产生影响 查看后注册。我们的建议是一个三阶段的定性和定量研究设计，包括 干预开发阶段，使用定性访谈来得出并提供特定文化 视频内容（目标 1）； 2x3 随机对照试验，其中我们将客户随机分组 收到通过 iPad 提供的六个视频之一，之后将有立即器官捐赠的机会 通过在线注册或邮寄申请提供（目标 2）；以及故障分析，我们将据此 采访了随机试验中的一些参与者，他们在一个月后未能注册 教育会议以确定其原因（目标 3）。这项研究将为未来的研究提供一个模型 我们将根据我们的研究结果修改我们的视频并将其分发到拉丁裔拥有的 使用大屏幕电视或互动亭的理发店和美容院。通过这项工作，我们希望 通过增加拉丁裔群体的登记来减少器官移植差异 对肾移植的需求不成比例地更大。 ！