Community Based Research to Improve Organ Donor Registration among Black Men

基于社区的研究改善黑人器官捐献者登记

• 批准号: 8699192
• 负责人: STEPHEN P WALL
• 金额: $ 36.87万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-07-15 至 2017-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8699192
• 关键词: Academy; Accident and Emergency department; Address; Advocate; Affect; Area; Award; Behavior; Behavioral; Belief; Blinded; Blood Pressure; Cardiovascular system; Caring; Colon Carcinoma; Communities; Data Analyses; Diabetes Mellitus; Disadvantaged; Education; Educational Intervention; Effectiveness; Elderly; End stage renal failure; Evaluation; Failure; Foundations; Future; Gender; Generic Drugs; Goals; Health; Health Promotion; Health Services Accessibility; Healthy People 2020; High Prevalence; Hypertension; Individual; Influentials; Intervention; Interview; Kidney Transplantation; Knowledge; Lead; Mails; Measures; Minority Groups; Modeling; Organ; Organ Donations; Organ Donor; Organ Transplantation; Participant; Patients; Phase; Population; Population Heterogeneity; Prevention Research; Production; Public Health; Public Hospitals; Qualitative Research; Race; Randomized; Randomized Controlled Trials; Recruitment Activity; Registries; Religion and Spirituality; Research; Research Design; Screening for cancer; Specialist; Staging; Surveys; System; Tobacco Use Cessation; Transplantation; Visit; Visitors to Patients; Woman; Work; arm; base; cancer prevention; community setting; compare effectiveness; design; digital; health disparity; hypertension control; improved; innovation; meetings; member; men; motivational intervention; nutrition; peer; primary outcome; programs; public health relevance; randomized trial; screening; theories; therapy development; willingness

DESCRIPTION (provided by applicant): The U.S. organ donation system is in a perpetual state of crisis. Over 115,000 patients are waiting for transplants while the waitlist increases by several thousand annually despite over 6,500 dying and 3,500 becoming too sick to receive a transplant. Black men are disproportionally affected by this crisis, due to higher prevalence of poorly controlled hypertension and diabetes and inadequate access to treatment, leading to the highest prevalence of end-stage renal disease and a greater need for kidney transplantation. While Blacks comprise only 13 percent of the total U.S. population, they comprise 34 percent of the 93,000 patients waiting for kidney transplants. Black men comprise 19 percent of the waitlist compared to black women comprising 15 percent, indicating a gender disparity as well. Federally supported interventions have increased the number of black donors such that rates are now proportional to their population percentages, but they remain well below the disproportionate need since organs best match when donors and recipients are of similar race. In this application, we will investigate means for improving organ donor registration among black men using educational video programming produced and distributed in partnership with our network of black owned barbershops in NYC. We will use entertainment education videos and determine how content produced for different audiences (generic multicultural, targeted for black men in our barbershops, and tailored for single viewers based on their prior organ donation beliefs) influences organ donor registration. Our application is a 3- phase qualitative and quantitative research design that includes an intervention development phase using digital video interviewing to both derive and provide culturally specific content for the videos (Aim 1); a 3 arm randomized controlled trial phase, in which customers will be randomized to receive the generic, targeted, or tailored video programming delivered with iPads, after which an immediate organ donation opportunity will be offered through registration online or with a mailed in application (Aim 2); and a failure analysis whereby we will interview some of the participants from the randomized trial who registered and failed to register one month after their educational session to ascertain the influence of the programming (Aim 3). Future studies will involve modifying this video programming based on findings from this research to promote organ donation in black owned barbershops through passive messaging with generic or targeted videos shown on large screen TVs, or with tailored programs using interactive kiosks. Through this work, we hope to reduce organ transplantation disparities through increased registration among black men who comprise a group having a disproportionally greater need for kidney transplants.

描述（由申请人提供）：美国器官捐献系统处于永久危机状态。尽管有超过 6,500 人死亡，3,500 人病情严重而无法接受移植，但仍有超过 115,000 名患者正在等待移植，等待名单每年增加数千人。由于高血压和糖尿病控制不佳以及治疗机会不足，黑人受到这场危机的影响尤为严重，导致终末期肾病的患病率最高，并且对肾移植的需求更大。虽然黑人仅占美国总人口的 13%，但在 93,000 名等待肾移植的患者中，黑人占到了 34%。候补名单中黑人男性占 19%，而黑人女性占 15%，这也表明存在性别差异。联邦政府支持的干预措施增加了黑人捐献者的数量，使得比例现在与其人口百分比成正比，但仍远低于不成比例的需求，因为当捐献者和接受者种族相似时，器官最匹配。在此应用程序中，我们将利用与纽约市黑人拥有的理发店网络合作制作和分发的教育视频节目，研究改善黑人器官捐献者登记的方法。我们将使用娱乐教育视频，并确定为不同受众制作的内容（通用多元文化，针对我们理发店的黑人，以及根据他们之前的器官捐赠信念为单一观众量身定制）如何影响器官捐赠者登记。我们的应用程序是一个三阶段的定性和定量研究设计，其中包括使用数字视频访谈的干预开发阶段，以导出并提供视频的特定文化内容（目标 1）； 3臂 随机对照试验阶段，在此阶段，客户将被随机接收通过 iPad 提供的通用、有针对性或定制的视频节目，之后将通过在线注册或邮寄申请提供立即器官捐赠机会（目标 2）；以及失败分析，我们将采访随机试验中在教育课程一个月后注册和未能注册的一些参与者，以确定该计划的影响（目标 3）。未来的研究将涉及根据本研究的结果修改视频节目，通过大屏幕电视上显示的通用或有针对性的视频的被动消息传递，或使用交互式信息亭的定制节目来促进黑人理发店的器官捐赠。通过这项工作，我们希望通过增加黑人男性的登记来减少器官移植的差异，黑人男性是一个对肾脏移植的需求特别大的群体。