Optimizing Educational Video Designs to Improve Minority Organ Donor Registration

优化教育视频设计以改善少数族裔器官捐献者登记

• 批准号: 9250118
• 负责人: STEPHEN P WALL
• 金额: $ 36.62万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-04-05 至 2019-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9250118
• 关键词: Academy; Accident and Emergency department; Advocate; Affect; Award; Beauty; Behavior; Behavior Therapy; Belief; Cessation of life; Colon Carcinoma; Communities; Community Health; Cultural Diversity; Data; Data Analyses; Determination of Death; Diabetes Mellitus; Disadvantaged; Dominican; Education; Educational Intervention; Educational Models; Effectiveness; Elderly; End stage renal failure; Evaluation; Failure; Foundations; Future; Goals; Health; Health Promotion; Health Services Accessibility; Healthy People 2020; High Prevalence; Imagination; Interactive Kiosk; Intervention; Interview; Kidney; Kidney Transplantation; Latino; Left; Life; Location; Measures; Minority; Modeling; Organ; Organ Donations; Organ Donor; Organ Transplantation; Participant; Patients; Phase; Population; Population Heterogeneity; Prevention Research; Process; Production; Public Hospitals; Puerto Rican; Qualitative Research; Race; Randomized; Randomized Controlled Trials; Recruitment Activity; Registries; Research; Research Design; Screening for cancer; Single-Blind Study; Site; Spain; System; Testing; Time; Translating; Transplantation; Visit; Work; base; cancer prevention; cardiovascular health; community setting; compare effectiveness; design; ethnic minority population; exhaust; experience; formative assessment; group intervention; hypertension control; improved; member; peer networks; primary outcome; programs; public health relevance; racial minority; randomized trial; success; therapy development

DESCRIPTION (provided by applicant): The U.S. organ donation system remains in a perpetual state of crisis. Over 115,000 patients in the U.S. are waiting for organ transplants, and the waitlist increases by several thousand annually despite over 10,000 dying or becoming too sick to receive a transplant. Latinos are disproportionally affected by this organ crisis due to their higher prevalence of diabetes and end-stage renal disease from inadequate access to treatment. Of the 115,000 waiting, over 95,000 require kidneys, and of these, 19.2 percent are Latino despite Latinos comprising only 16.7 percent of the U.S. population. Latinos also comprise 15.8 percent of recipients but only 13.1 percent of donors. These rates remain well below the disproportionate need since organs best match when donors and recipients are of similar race. We will investigate means for improving organ donor registration among Latinos using educational videos about uncontrolled donation after circulatory death (uDCDD) produced and distributed in partnership with our network of Latino owned barbershops and beauty parlors. uDCDD programs consider candidates for donation no matter timing or location of death, so long as consideration occurs after all life sustaining efforts are exhausted. Video content will include live footage from uDCDD programs in Spain, which has markedly improved rates of kidney transplantation compared to the U.S. If successful, we estimate that uDCDD programs could provide 22,000 more donation opportunities annually in the U.S. Educational models will inform the design of our uDCDD videos to test how genre (expert testimonials, documentary with live uDCDD footage) and ending choices (uplifting, negative consequences, unresolved) impact immediate registration after viewing. Our application is a 3-phase qualitative and quantitative research design that includes an intervention development phase using qualitative interviewing to both derive and provide culturally specific content for the videos (Aim 1); a 2x3 randomized controlled trial, in which we will randomize customers to receive one of six videos delivered with iPads, after which an immediate organ donation opportunity will be offered through registration online or with a mail application (Aim 2); and a failure analysis whereby we will interview some of the participants from the randomized trial who failed to register one month after their educational session to ascertain their reasons (Aim 3). This research will provide a model for future studies, in which we will modify our videos based on our research findings and distribute them in Latino-owned barbershops and beauty parlors using large screen TVs or interactive kiosks. Through this work, we hope to reduce organ transplantation disparities through increased registration among Latinos who comprise a group having a disproportionally greater need for kidney transplants.

描述（由申请人提供）：美国器官捐献系统仍然处于永久的危机状态。美国有超过11.5万名患者正在等待器官移植， 尽管每年有超过10，000人死亡或病情严重而无法接受移植，但等待名单每年仍增加数千人。拉丁美洲人受到这种器官危机的严重影响，因为他们的糖尿病和终末期肾病患病率较高，无法获得足够的治疗。在115，000名等待中，超过95，000人需要肾脏，其中19.2%是拉丁美洲人，尽管拉丁美洲人仅占美国人口的16.7%。拉丁美洲人也占受援者的15.8%，但只占捐助者的13.1%。这些比率仍然远低于不成比例的需求，因为当捐赠者和接受者种族相似时，器官最匹配。我们将调查改善拉丁美洲人器官捐献者登记的方法，使用与我们的拉丁美洲人拥有的理发店和美容院网络合作制作和分发的关于循环死亡后不受控制的捐赠（uDCDD）的教育视频。uDCDD计划考虑捐赠的候选人，无论死亡的时间或地点，只要在所有生命维持努力耗尽之后才考虑捐赠。视频内容将包括来自西班牙uDCDD项目的现场镜头，与美国相比，西班牙的肾移植率显著提高。如果成功，我们估计uDCDD项目每年可以在美国提供22，000多个捐赠机会。（专家推荐，带有实时uDCDD镜头的纪录片）和结束选择（令人振奋，负面后果，未解决）影响观看后的立即注册。我们的应用程序是一个3阶段的定性和定量研究设计，其中包括一个干预开发阶段，使用定性访谈来获得和提供视频的文化特定内容（目标1）;一项2x 3随机对照试验，在该试验中，我们将随机选择客户接收由iPad提供的六个视频中的一个，然后透过网上登记或邮寄申请，即时提供器官捐赠机会（目标二）;以及失败分析，我们将采访一些在教育课程结束一个月后未能注册的随机试验参与者，以确定他们的原因（目标3）。这项研究将为未来的研究提供一个模型，我们将根据我们的研究结果修改我们的视频，并使用大屏幕电视或交互式信息亭在拉丁美洲人拥有的理发店和美容院分发。通过这项工作，我们希望通过增加拉丁美洲人的登记来减少器官移植的差异，拉丁美洲人是一个对肾脏移植有更大需求的群体。

项目成果

The unique moral permissibility of uncontrolled lung donation after circulatory death.

循环死亡后不受控制的肺捐献具有独特的道德允许性。

• DOI: 10.1111/ajt.15603
• 发表时间: 2020
• 期刊: American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons
• 作者: Parent,Brendan;Caplan,Arthur;Angel,Luis;Kon,Zachary;Dubler,Nancy;Goldfrank,Lewis;Lindner,Jacob;Wall,StephenP
• 通讯作者: Wall,StephenP