Community Based Research to Improve Organ Donor Registration among Black Men

描述（由申请人提供）：美国器官捐赠系统处于永久的危机状态。超过11.5万名患者在等待移植，而等待名单每年增加数千人，尽管有6500多人死亡，3500人因病情太重而无法接受移植。黑人男子受到这一危机的影响尤为严重，因为控制不良的高血压和糖尿病发病率较高，而且获得治疗的机会不足，导致终末期肾病发病率最高，对肾脏移植的需求也更大。虽然黑人只占美国总人口的13%，但在等待肾脏移植的93,000名患者中，他们占34%。黑人男性占候补名单的19%，而黑人女性占15%，这也表明了性别差异。联邦政府支持的干预措施增加了黑人捐献者的数量，使其比例现在与人口百分比成正比，但他们仍然远远低于不成比例的需求，因为当捐献者和接受者是相似的种族时，器官最好匹配。在这个应用程序中，我们将使用与我们在纽约的黑人拥有的理发店网络合作制作和分发的教育视频节目来调查改善黑人男性器官捐献登记的方法。我们将使用娱乐教育视频，并确定为不同受众（一般的多元文化，针对理发店中的黑人男性，以及根据其先前的器官捐赠信念为单个观众量身定制）制作的内容如何影响器官捐赠者登记。我们的应用程序是一个3阶段的定性和定量研究设计，其中包括一个使用数字视频访谈的干预开发阶段，以派生和提供特定文化的视频内容（目标1）；A 3臂

DESCRIPTION (provided by applicant): The U.S. organ donation system is in a perpetual state of crisis. Over 115,000 patients are waiting for transplants while the waitlist increases by several thousand annually despite over 6,500 dying and 3,500 becoming too sick to receive a transplant. Black men are disproportionally affected by this crisis, due to higher prevalence of poorly controlled hypertension and diabetes and inadequate access to treatment, leading to the highest prevalence of end-stage renal disease and a greater need for kidney transplantation. While Blacks comprise only 13 percent of the total U.S. population, they comprise 34 percent of the 93,000 patients waiting for kidney transplants. Black men comprise 19 percent of the waitlist compared to black women comprising 15 percent, indicating a gender disparity as well. Federally supported interventions have increased the number of black donors such that rates are now proportional to their population percentages, but they remain well below the disproportionate need since organs best match when donors and recipients are of similar race. In this application, we will investigate means for improving organ donor registration among black men using educational video programming produced and distributed in partnership with our network of black owned barbershops in NYC. We will use entertainment education videos and determine how content produced for different audiences (generic multicultural, targeted for black men in our barbershops, and tailored for single viewers based on their prior organ donation beliefs) influences organ donor registration. Our application is a 3- phase qualitative and quantitative research design that includes an intervention development phase using digital video interviewing to both derive and provide culturally specific content for the videos (Aim 1); a 3 arm randomized controlled trial phase, in which customers will be randomized to receive the generic, targeted, or tailored video programming delivered with iPads, after which an immediate organ donation opportunity will be offered through registration online or with a mailed in application (Aim 2); and a failure analysis whereby we will interview some of the participants from the randomized trial who registered and failed to register one month after their educational session to ascertain the influence of the programming (Aim 3). Future studies will involve modifying this video programming based on findings from this research to promote organ donation in black owned barbershops through passive messaging with generic or targeted videos shown on large screen TVs, or with tailored programs using interactive kiosks. Through this work, we hope to reduce organ transplantation disparities through increased registration among black men who comprise a group having a disproportionally greater need for kidney transplants.