Community Based Research to Improve Organ Donor Registration among Black Men

基于社区的研究改善黑人器官捐献者登记

• 批准号: 8881168
• 负责人: STEPHEN P WALL
• 金额: $ 36.87万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-07-15 至 2016-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8881168
• 关键词: Academy; Accident and Emergency department; Address; Advocate; Affect; Altruism; Area; Award; Behavior; Behavioral; Belief; Blood Pressure; Caring; Colon Carcinoma; Communities; Data Analyses; Diabetes Mellitus; Disadvantaged; Education; Educational Intervention; Effectiveness; Elderly; End stage renal failure; Evaluation; Failure; Foundations; Future; Gender; Generic Drugs; Goals; Health; Health Promotion; Health Services Accessibility; Healthy People 2020; High Prevalence; Hypertension; Individual; Influentials; Intervention; Interview; Kidney Transplantation; Knowledge; Lead; Measures; Minority Groups; Modeling; Organ; Organ Donations; Organ Donor; Organ Transplantation; Participant; Patients; Phase; Population; Population Heterogeneity; Prevention Research; Production; Public Health; Public Hospitals; Qualitative Research; Race; Randomized; Randomized Controlled Trials; Recruitment Activity; Registries; Religion and Spirituality; Research; Research Design; Screening for cancer; Single-Blind Study; Specialist; Staging; Surveys; System; Tobacco Use Cessation; Transplantation; Visit; Visitors to Patients; Woman; Work; arm; base; cancer prevention; cardiovascular health; community setting; compare effectiveness; design; digital; health disparity; hypertension control; improved; innovation; meetings; member; men; motivational intervention; nutrition; peer; peer networks; primary outcome; programs; randomized trial; screening; theories; therapy development; willingness

DESCRIPTION (provided by applicant): The U.S. organ donation system is in a perpetual state of crisis. Over 115,000 patients are waiting for transplants while the waitlist increases by several thousand annually despite over 6,500 dying and 3,500 becoming too sick to receive a transplant. Black men are disproportionally affected by this crisis, due to higher prevalence of poorly controlled hypertension and diabetes and inadequate access to treatment, leading to the highest prevalence of end-stage renal disease and a greater need for kidney transplantation. While Blacks comprise only 13 percent of the total U.S. population, they comprise 34 percent of the 93,000 patients waiting for kidney transplants. Black men comprise 19 percent of the waitlist compared to black women comprising 15 percent, indicating a gender disparity as well. Federally supported interventions have increased the number of black donors such that rates are now proportional to their population percentages, but they remain well below the disproportionate need since organs best match when donors and recipients are of similar race. In this application, we will investigate means for improving organ donor registration among black men using educational video programming produced and distributed in partnership with our network of black owned barbershops in NYC. We will use entertainment education videos and determine how content produced for different audiences (generic multicultural, targeted for black men in our barbershops, and tailored for single viewers based on their prior organ donation beliefs) influences organ donor registration. Our application is a 3- phase qualitative and quantitative research design that includes an intervention development phase using digital video interviewing to both derive and provide culturally specific content for the videos (Aim 1); a 3 arm randomized controlled trial phase, in which customers will be randomized to receive the generic, targeted, or tailored video programming delivered with iPads, after which an immediate organ donation opportunity will be offered through registration online or with a mailed in application (Aim 2); and a failure analysis whereby we will interview some of the participants from the randomized trial who registered and failed to register one month after their educational session to ascertain the influence of the programming (Aim 3). Future studies will involve modifying this video programming based on findings from this research to promote organ donation in black owned barbershops through passive messaging with generic or targeted videos shown on large screen TVs, or with tailored programs using interactive kiosks. Through this work, we hope to reduce organ transplantation disparities through increased registration among black men who comprise a group having a disproportionally greater need for kidney transplants.

描述（由申请人提供）：美国器官捐献系统处于永久的危机状态。超过115，000名患者正在等待移植，而等待名单每年增加数千人，尽管有6，500多人死亡，3，500人病情严重无法接受移植。由于高血压和糖尿病控制不佳的患病率较高，以及获得治疗的机会不足，黑人男子受到这一危机的严重影响，导致终末期肾病患病率最高，对肾移植的需求更大。虽然黑人只占美国总人口的13%，但他们占93，000名等待肾移植患者的34%。黑人男性占候补名单的19%，而黑人女性占15%，这也表明了性别差异。联邦政府支持的干预措施增加了黑人捐赠者的数量，使其比例现在与其人口比例成正比，但它们仍然远远低于不成比例的需求，因为当捐赠者和接受者种族相似时，器官最匹配。在这个应用程序中，我们将调查改善黑人男性器官捐献者登记的方法，使用与我们在纽约的黑人理发店网络合作制作和分发的教育视频节目。我们将使用娱乐教育视频，并确定为不同受众制作的内容（通用多元文化，针对我们理发店中的黑人男性，并根据他们先前的器官捐赠信念为单身观众量身定制）如何影响器官捐赠者登记。我们的应用程序是一个3阶段的定性和定量研究设计，其中包括一个干预开发阶段，使用数字视频访谈来获得和提供视频的文化特定内容（目标1）; 随机对照试验阶段，客户将被随机分配接受iPad提供的通用、有针对性或定制的视频节目，之后将通过在线注册或邮寄申请提供立即器官捐赠的机会（目标2）;以及失败分析，我们将采访一些随机试验的参与者，他们在一个月后注册和未注册他们的教育会议，以确定节目的影响（目标3）。未来的研究将涉及根据这项研究的结果修改这一视频节目，以通过在大屏幕电视上显示的通用或有针对性的视频或使用交互式信息亭的定制程序进行被动信息传递，促进黑人理发店的器官捐赠。通过这项工作，我们希望通过增加黑人男性的登记来减少器官移植的差异，黑人男性是一个对肾脏移植有更大需求的群体。