Comp A-Developing the Spina Bifida Collaborative Care Network

比较 A-开发脊柱裂协作护理网络

基本信息

  • 批准号:
    8925683
  • 负责人:
  • 金额:
    $ 60万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2014
  • 资助国家:
    美国
  • 起止时间:
    2014-09-01 至 2019-08-31
  • 项目状态:
    已结题

项目摘要

DESCRIPTION (provided by applicant): Spina Bifida clinic standards are not well described or standardized. While multi-disciplinary clinics are considered the standard of care for children with Spina Bifida, evidence to support this model in adults is lacking. Good, seamless health care delivery is important for people with Spina Bifida; however, current systems of care designed to meet the needs of children with Spina Bifida end when a child becomes an adult. Finding good care for adults with Spina Bifida is difficult because of the number of specialists needed, the limited number of practitioners serving this growing population, systems of care that is unprepared to deal with their needs, their growing chronic adult needs, and the lack of knowledge about them. This group is facing a precarious future unless a collaborative approach is initiated to identify their needs and create a health care system that offers uniform, adequate multi-disciplinary care. The creation of the Clinical Care Monitoring and Tracking (CCMT) infrastructure is about looking for problems and needs and about assessing and harnessing the strengths and resources that promote better health and well-being in the Spina Bifida community. Research efforts into the Spina Bifida clinic network resulted in a National Spina Bifida Patient Registry (NSBPR), the compilation of the clinics list, a clinic classification schem, and the creation of the World Congress on Spina Bifida Care and Research. The Spina Bifida Association (SBA) is currently leading the Spina Bifida Collaborative Care Network (SBCCN) in developing a strategic plan to close the health care gaps that have been outlined. The goals of the SBCCN are to identify the needs of people living with Spina Bifida, develop and implement approaches to connect and communicate with adults living with Spina Bifida, address health care needs as well as gaps in care, improve the availability of information on health and community resources, identify and promote research priorities for the NSBPR, develop a quality-based Spina Bifida clinical structure using the (2008) classification scheme, describe and disseminate the list of Spina Bifida care sites that meet the quality-based clinical structure, and develop, implement, and disseminate a comprehensive evaluation plan that measures the effectiveness of the activities of this funding announcement. Expected Outcomes are creation of a public health infrastructure that monitors, tracks, and evaluates Spina Bifida care across the lifespan, development of health outcomes for people with Spina Bifida, and the improvement of a high performing Spina Bifida clinic structure.
描述(由申请人提供):脊柱裂临床标准没有得到很好的描述或标准化。虽然多学科诊所被认为是脊柱裂儿童的护理标准,但缺乏证据支持这种模式在成人中的应用。良好的、无缝的医疗保健服务对脊柱裂患者很重要;然而,目前旨在满足脊柱裂儿童需求的护理系统在儿童成年后就结束了。为脊柱裂成年人找到良好的护理是困难的,因为需要的专家数量,服务于这一不断增长的人口的从业者数量有限,护理系统没有准备好满足他们的需求,他们不断增长的慢性成人需求,以及缺乏对他们的了解。这一群体正面临着一个不稳定的未来,除非采取合作的方式来确定他们的需求,并建立一个医疗保健系统,提供统一的,充分的多学科护理。临床护理监测和跟踪(CCMT)基础设施的创建是为了寻找问题和需求,以及评估和利用促进脊柱裂社区更好的健康和福祉的优势和资源。对脊柱裂诊所网络的研究工作导致了国家脊柱裂患者登记处(NSBPR),诊所列表的汇编,诊所分类计划,以及脊柱裂护理和研究世界大会的成立。脊柱裂协会(SBA)目前正在领导脊柱裂协作护理网络(SBCCN)制定一项战略计划,以缩小已概述的医疗保健差距。SBCCN的目标是确定脊柱裂患者的需求,制定和实施与脊柱裂成年人联系和沟通的方法,解决医疗保健需求和护理差距,改善健康和社区资源信息的可用性,确定和促进NSBPR的研究优先事项,使用(2008年)分类方案制定基于质量的脊柱裂临床结构,描述并传播符合基于质量的临床结构的脊柱裂护理站点列表,以及 制定、实施和传播一项全面的评估计划,以衡量本资助公告活动的有效性。预期成果是建立一个公共卫生基础设施,监测,跟踪和评估脊柱裂护理的整个生命周期,发展脊柱裂患者的健康结果,并改善高性能的脊柱裂诊所结构。

项目成果

期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)

数据更新时间:{{ journalArticles.updateTime }}

{{ item.title }}
{{ item.translation_title }}
  • DOI:
    {{ item.doi }}
  • 发表时间:
    {{ item.publish_year }}
  • 期刊:
  • 影响因子:
    {{ item.factor }}
  • 作者:
    {{ item.authors }}
  • 通讯作者:
    {{ item.author }}

数据更新时间:{{ journalArticles.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ monograph.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ sciAawards.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ conferencePapers.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ patent.updateTime }}

Lisa Raman其他文献

Lisa Raman的其他文献

{{ item.title }}
{{ item.translation_title }}
  • DOI:
    {{ item.doi }}
  • 发表时间:
    {{ item.publish_year }}
  • 期刊:
  • 影响因子:
    {{ item.factor }}
  • 作者:
    {{ item.authors }}
  • 通讯作者:
    {{ item.author }}

相似海外基金

Developing a 3D printed skin model using a Dextran - Collagen hydrogel to analyse the cellular and epigenetic effects of interleukin-17 inhibitors in
使用右旋糖酐-胶原蛋白水凝胶开发 3D 打印皮肤模型,以分析白细胞介素 17 抑制剂的细胞和表观遗传效应
  • 批准号:
    2890513
  • 财政年份:
    2027
  • 资助金额:
    $ 60万
  • 项目类别:
    Studentship
Developing behavioural methods to assess pain in horses
开发评估马疼痛的行为方法
  • 批准号:
    2686844
  • 财政年份:
    2025
  • 资助金额:
    $ 60万
  • 项目类别:
    Studentship
Developing eye models to improve eye treatments and contact/intraocular lens technologies
开发眼部模型以改善眼部治疗和隐形眼镜/人工晶状体技术
  • 批准号:
    2608661
  • 财政年份:
    2025
  • 资助金额:
    $ 60万
  • 项目类别:
    Studentship
Flok Health: Developing a pocket physiotherapist to deliver personalised healthcare at population scale
Flok Health:开发袖珍物理治疗师以在人口规模上提供个性化医疗保健
  • 批准号:
    10100082
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
    Collaborative R&D
Developing systemic interventions for intimate partner financial abuse
制定针对亲密伴侣经济虐待的系统干预措施
  • 批准号:
    DP240101075
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
    Discovery Projects
NESP MaC Project 4.5– Developing an Integrated Pest Management Framework for Feral Pigs in Coastal Environments 2024-2026 (NAILSMA)
NESP MaC 项目 4.5 — 为 2024-2026 年沿海环境中的野猪制定综合害虫管理框架 (NAILSMA)
  • 批准号:
    global : ba1e00f0-9953-4c17-b990-ba7aed84ce07
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
Developing and Visualising a Retrieval-Augmented Deep Learning Model for Population Health Management
开发和可视化用于人口健康管理的检索增强深度学习模型
  • 批准号:
    2905946
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
    Studentship
Developing functionalised electrospun scaffolds to exploit neural stromal interactions in wound healing
开发功能化电纺支架以利用神经基质相互作用促进伤口愈合
  • 批准号:
    2910663
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
    Studentship
Developing a Census Based Generative Geodemographic Classification System
开发基于人口普查的生成地理人口分类系统
  • 批准号:
    ES/Z50273X/1
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
    Research Grant
Developing new tests and treatments to enable prevention of osteoarthritis.
开发新的测试和治疗方法以预防骨关节炎。
  • 批准号:
    MR/Y003470/1
  • 财政年份:
    2024
  • 资助金额:
    $ 60万
  • 项目类别:
    Fellowship
{{ showInfoDetail.title }}

作者:{{ showInfoDetail.author }}

知道了