IGF::OT::IGF SRP QA/QI and GIS activities- Technical Support for Cancer Control and Population Research - Call Order No. HHSN26100001

IGF::OT::IGF SRP QA/QI 和 GIS 活动 - 癌症控制和人口研究技术支持 - 订单号 HHSN26100001

• 批准号: 9369159
• 金额: $ 81.86万
• 依托单位: WESTAT, INC.
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-16 至 2017-09-15
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9369159
• 关键词: Age; Americas; Area; Behavioral; Behavioral Sciences; Cancer Burden; Cancer Control; Cancer Control Research; Cancer Intervention; Cancer Science; Cancer Surveillance Research Program; Cancer Survivorship; Case Study; Cessation of life; Characteristics; Code; Collection; Communities; Complement; Contractor; Contracts; County; Data; Data Files; Data Linkages; Data Quality; Development; Diagnosis; Diagnostic; Division of Cancer Control and Population Sciences; Epidemiology; Ethnic Origin; Feedback; Generations; Genetic; Genetic Predisposition to Disease; Geography; Gold; Health Services; Histology; Home environment; Hospitals; Imagery; Incidence; Informatics; Information Systems; Knowledge; Laboratories; Leadership; Malignant Neoplasms; Measurement; Measures; Medical Surveillance; Methods; Morbidity - disease rate; Morphology; National Cancer Institute; Outcome; Paper; Pathology; Persons; Population; Population Research; Portraits; Prevalence; Prevention; Public Health; Qualifying; Quality Control; Quality of Care; Quality of life; Race; Radiology Specialty; Recommendation; Registries; Reporting; Research; Research Infrastructure; Research Support; Resources; Retrieval; Risk; Risk Factors; SEER Program; Scientist; Screening for cancer; Services; Site; Source; Stage at Diagnosis; Statistical Methods; Statistical Models; Structure; Survival Rate; System; Technology; Time; Treatment outcome; analytical tool; anticancer research; base; cancer prevention; cancer statistics; cancer survival; case finding; demographics; first grade; follow-up; health care delivery; mortality; neoplasm registry; palliation; population based; programs; screening; sex; statistics; tool; tool development; tumor

The Division of Cancer Control and Population Sciences (DCCPS) aims to reduce the risk, incidence, and deaths from cancer as well as enhance the quality of life through research in epidemiology, behavioral sciences, health services, surveillance, and cancer survivorship. Cancer surveillance provides a quantitative portrait of cancer and its determinants in a defined population. The core functions of cancer surveillance are the measurement of cancer incidence, morbidity, survival, and mortality for persons with cancer. It also includes the assessment of genetic predisposition, environmental and behavioral risk factors, screening practices, and the quality of care from prevention through palliation. Cancer surveillance tells us where we are in the effort to reduce the cancer burden and also generates the observations that form the basis for cancer research and interventions for cancer prevention and control. This surveillance infrastructure benefits the public, policymakers, and scientists in understanding changes in cancer incidence and outcomes in all segments of the US population over time. Surveillance Research Program (SRP) of the Division of Cancer Control and population Sciences at the National Cancer Institute provides national leadership in the science of cancer surveillance as well as analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based cancer statistics. Surveillance Research Program is a home of the Surveillance, Epidemiology and End Results (SEER) Program - a system of population-based cancer registries that collects data on diagnosis, treatment and outcomes of cancer in approximately 30 percent of the U.S. population for public health reporting and to provide a national infrastructure to support cancer research. SEER Cancer registries report > 450,000 incident cases annually. Data is collected by central cancer registries from a variety of facilities including hospitals, pathology laboratories, radiology facilities and doctors’ offices. Data is obtained electronically or in paper form or is collected by registry staff. Data collected includes demographic information including age, sex and race/ethnicity; diagnostic information including date of diagnosis and stage at diagnosis; characteristics of the cancer including site, histology/morphology, size of tumor, grade and first course of treatment. SRP produces and disseminates the following cancer statistics: Incidence, Mortality, Prevalence, and Survival rates. Other geographically based information includes: Cancer Screening, Risk Factors, Demographics, and Cancer Knowledge. Most of these data are produced at the County and State levels of geography. The SEER Program is the only source of population based survival data in the US and produces statistics on cancer survival by stage at diagnosis. Follow-up data, crucial for generating survival statistics, is obtained by both passive and active follow-up activities. The SEER Program is known as the “Gold Standard” for cancer data. SEER central cancer registries submit a complete data file every November containing data on all cases reported by the registry during its participation in the SEER Program. There are quality standards that are contractually required for each SEER registry. Examination of data quality on a yearly basis, as well as feedback from registry staff, may reveal issues that require examination in order to maintain or enhance data quality. Structured Quality Control and Quality Improvement (QC/QI) activities include but are not limited to case finding, recoding, reliability analysis, generation of Data Quality Profiles, and data correction. QC/QI studies typically result in recommendations about the best sources of specific data items and recommendations on how to code specific data items. In addition, there are continual efforts to expand the data fields that are routinely collected and are available for cancer. More information about these activities can be found at: www.seer.cancer.gov. In addition to quality control and quality improvement of cancer data, Surveillance Research Program provides optimal statistical methods for the collection, analysis, and presentation of essential measures related to the cancer control, surveillance, and epidemiology programs of the National Cancer Institute and the broader cancer control and research community http://seer.cancer.gov/statistics/summaries.html. These methods are pertinent to cancer outcomes, risk and behavioral factors, spatial and temporal factors, genetic factors, and health care delivery factors. SRP has also been active in the development of geospatial and geo-statistical methods and tools for the development, analysis, dissemination, and visualization of geographically based cancer data, screening, and risk factors for cancer. State Cancer Profiles http://seer.cancer.gov/statistics/scp.html , GIS Portal http://seer.cancer.gov/statistics/gis.html , and Small Area Estimates http://sae.cancer.gov/ are the most comprehensive geo-spatial and geo-statistical resources at NCI respectively. These resources are important for cancer control planning as well as population based cancer research. Furthermore, SRP supports research on informatics technology to optimize and enhance the acquisition, storage, retrieval, de-identification, analyses, reporting, and visualization of cancer surveillance systems http://surveillance.cancer.gov/branches/sib/. In SRP, maintaining extremely high quality data, methods, and tools for dissemination of cancer statistics is accomplished through recruitment of highly qualified registry staff and a broad spectrum of activities that are central to the technical requirements described below.

癌症控制和人口科学（DCCP）的划分旨在减少癌症的风险，事件和死亡，并通过流行病学，行为科学，卫生服务，监视和癌症幸存者的研究来提高生活质量。 癌症监测提供了癌症的定量肖像及其在定义的人群中确定的。癌症监测的核心功能是测量癌症患者的癌症发病率，发病率，生存和死亡率。它还包括评估遗传易感性，环境和行为风险因素，筛查实践以及通过抑制预防的护理质量的评估。癌症的监视告诉我们，我们正在努力减轻癌症负担，并产生构成癌症研究和预防癌症预防和控制干预措施的观察结果。随着时间的流逝，这种监视基础设施使公众，决策者和科学家在了解癌症事件的变化以及随着时间的推移中的所有领域的结果。 国家癌症研究所的癌症控制和人口科学划分的监视研究计划（SRP）在癌症监测科学以及分析工具和方法论方面提供了国家领导，从而在收集，分析，解释和传播可靠的人群基于人群的癌症统计学方面提供了领导。监视研究计划是监视，流行病学和最终结果（SEER）计划的主场 - 一种基于人群的癌症注册系统的系统，该系统收集了大约30％的美国公共卫生报告的诊断，治疗和癌症结果数据，并为支持癌症研究提供国家基础设施。 SEER癌症注册表每年报告> 450,000例事件案件。 数据是由中央癌症注册机构从各种设施中收集的，包括医院，病理实验室，放射学设施和医生办公室。数据以电子方式或纸张形式获得，或者由注册表人员收集。收集的数据包括年龄，性别和种族/种族，包括人口统计信息；诊断信息，包括诊断日期和诊断日期；癌症的特征，包括部位，组织学/形态，肿瘤的大小，等级和治疗过程。 SRP产生并传播以下癌症统计数据：发病率，死亡率，患病率和存活率。其他基于地理的信息包括：癌症筛查，危险因素，人口统计学和癌症知识。这些数据中的大多数都是在地理的县和州层产生的。 SEER计划是美国基于人群生存数据的唯一来源，并且在诊断时逐期生存有关癌症生存的统计数据。随访数据，对于产生生存统计的至关重要，是通过被动和主动随访活动获得的。 SEER计划被称为癌症数据的“黄金标准”。 SEER中央癌症注册表每年11月提交一个完整的数据文件，其中包含注册表参与SEER计划期间报告的所有案件的数据。每个SEER注册表都需要一些质量标准。每年检查数据质量，以及注册表人员的反馈，可能会揭示需要检查以维持或提高数据质量的问题。结构化质量控制和质量改进（QC/QI）活动包括但不限于病例查找，重新编码，可靠性分析，数据质量概况和数据校正。 QC/QI研究通常会提出有关特定数据项最佳来源的建议，以及有关如何编码特定数据项的建议。此外，还有不断的努力来扩大通常收集并用于癌症的数据字段。有关这些活动的更多信息，请访问：www.seer.cancer.gov。 In addition to quality control and quality improvement of cancer data, Surveillance Research Program provides optimal statistical methods for the collection, analysis, and presentation of essential measures related to the cancer control, surveillance, and epidemiology programs of the National Cancer Institute and the broader cancer control and research community http://seer.cancer.gov/statistics/summaries.html.这些方法与癌症结局，风险和行为因素，空间和临时因素，遗传因素以及医疗保健输送因素有关。 SRP还积极从事地理空间和地理统计方法的开发以及用于开发，分析，传播和可视化基于地理的癌症数据，筛查和癌症风险因素的工具。 State Cancer Profiles http://seer.cancer.gov/statistics/scp.html , GIS Portal http://seer.cancer.gov/statistics/gis.html , and Small Area Estimates http://sae.cancer.gov/ are the most comprehensive geo-spatial and geo-statistical resources at NCI respectively.这些资源对于癌症控制计划以及基于人群的癌症研究很重要。 此外，SRP支持有关信息技术的研究，以优化和增强癌症监视系统的获取，存储，检索，去识别，分析，报告和可视化http://surveillance.cancer.gov/branches/sib/。 在SRP中，通过招募高素质的注册表人员以及一系列活动，这些活动是下面描述的技术要求的核心，可以实现极高质量的数据，方法和传播癌症统计的工具。