Parent-Child Communication About Cancer

关于癌症的亲子沟通

基本信息

批准号：
8985606
负责人：
Bruce E Compas
金额：
$ 39.39万
依托单位：
VANDERBILT UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2007
资助国家：
美国
起止时间：
2007-04-01 至 2017-12-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8985606
关键词：
Adherence Affect Age Anxiety Area Cancer Burden Cancer Survivorship Caring Characteristics Child Child health care Communication Data Diagnosis Distant Distress Emotional Enrollment Family Future Goals Grant Guidelines Health Health behavior Intervention Interview Late Effects Malignant Childhood Neoplasm Malignant Neoplasms Measures Mediator of activation protein Medical Mental Depression Mental Health Methods Mission Modeling Morbidity - disease rate Outcome Parent-Child Relations Parents Participant Patients Pattern Phase Positioning Attribute Preventive Process Prospective Studies Quality of life Questionnaires Recovery Recruitment Activity Reporting Research Risk Sampling Severity of illness Social Functioning Source Stress Stress and Coping Time Video Recording Work age related cancer diagnosis childhood cancer survivor cohort coping data space design emotional distress improved informant meetings neglect parent-child communication physical conditioning post-traumatic stress prospective psychologic psychosocial public health relevance resilience retention rate social survivorship theories

项目摘要

DESCRIPTION (provided by applicant): This is a competing renewal application to conduct theoretically-driven research to determine the course and predictors of mental health, social, and physical health outcomes in a cohort of children with cancer and their parents. We have been following a sample of 258 children (ages 5 to 17-years at entry into the study) from near the time of their cancer diagnosis over the first year after their diagnosis with a very high retention rate. By the end of this grant period we will have collected 3 waves of data including observations, interviews and questionnaires and we now propose to collect 2 additional waves of data, including direct observations of parent-child interactions, up to 5 years after diagnosis. Child and their parents completed measures about sources of cancer-related stress, how they cope with cancer, standardized indicators of distress and mental health problems, and they participated in video recorded observations. We propose to extend this work to examine the transition off treatment and into survivorship. Our aims are: 1) To examine continuity and change in parent-child communication about cancer; 2) To identify early predictors of later mental and physical health outcomes for children with cancer and their parents; and 3) To examine reciprocal relationships between parent and child coping, mental and physical health. To meet these aims, we propose to collect 2 additional waves of interview, observational and multi-agent questionnaire data spaced 12 months apart. The project is designed to identify risk and protective factors and processes that can be used to establish a theory-driven model of coping and adaptation to childhood cancer and to identify targets for the future early preventive psychosocial interventions with children with cancer and their parents.

描述（由申请人提供）：这是一项相互竞争的续订应用程序，用于进行理论驱动的研究，以确定一群癌症儿童及其父母的心理健康，社会和身体健康成果的课程和预测因素。从他们诊断出非常高的保留率后的第一年，我们一直在遵循258名儿童（进入研究中5至17岁）的样本（5至17岁）。到本赠款期结束时，我们将收集3个数据浪潮，包括观察，访谈和问卷调查，现在我们建议在诊断后长达5年收集2个额外的数据浪潮，包括直接观察亲子互动。儿童及其父母完成了有关癌症相关压力来源的措施，如何应对癌症，标准化的遇险和心理健康问题指标，并参与了视频记录的观察结果。我们建议扩展这项工作，以检查过渡疗法并将其转变为生存。我们的目标是：1）检查有关癌症的亲子交流的连续性和变化； 2）确定癌症儿童及其父母的后期心理和身体健康成果的早期预测因素； 3）检查父母应对，精神和身体健康之间的相互关系。为了满足这些目标，我们建议收集2个额外的访谈，观察性和多代理问卷数据，相距12个月。该项目旨在确定可用于建立以理论驱动和适应儿童癌症的理论驱动模型的风险和保护因素和过程，并确定未来对癌症儿童及其父母的早期预防社会心理干预的目标。