The 12th Annual Angioma Alliance Cerebral Cavernous Malformations (CCM) Scientific Meeting

第十二届血管瘤联盟脑海绵状血管瘤 (CCM) 年度科学会议

• 批准号: 9259867
• 负责人: Amy Lee Akers
• 金额: $ 1万
• 依托单位: ANGIOMA ALLIANCE
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-30 至 2017-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9259867
• 关键词: Address; Advertising; Affect; Animal Experimentation; Award; Basic Science; Biology; Blood Vessels; Brain; Brain hemorrhage; Cancer Biology; Clinical; Clinical Trials; Collaborations; Communities; Data; Development; Disease; District of Columbia; Educational workshop; Fees; Fertilization; Florida; Fostering; Funding; Funding Mechanisms; Future; Goals; Headache; Hemangioma; Hereditary hemorrhagic telangiectasia; Image; Investigation; Lead; Lesion; Magnetic Resonance Imaging; Malignant Neoplasms; Medicine; Monitor; Multi-Institutional Clinical Trial; Neuraxis; Neurologic; Oral; Participant; Patients; Pharmacotherapy; Population; Property; Provider; Publications; Research; Research Personnel; Role; Scholarship; Seizures; Series; Speed; Spinal Cord; Students; Symptoms; Therapeutic; Time; Transportation; Travel; Underrepresented Minority; Universities; Vascular Diseases; Work; base; brain surgery; career development; cerebral cavernous malformations; clinical care; cohort; college; drug candidate; ethnic diversity; interest; malformation; meetings; mouse model; novel; patient advocacy group; planetary Atmosphere; posters; programs; research and development; senior faculty; success; symposium; symptom management

Cerebral Cavernous Malformations (CCM) is a vascular disorder of the central nervous system that causes serious neurological symptoms, seizures and/or hemorrhagic stroke due to the development of vascular lesions in the brain and spinal cord. In recent years, the mechanism of disease has become better defined and numerous candidate drug molecules are under investigation. However, there remains an unmet clinical need for patients. Angioma Alliance is the non-profit Patient Advocacy Group for those affected by CCM. Angioma Alliance hosts the annual CCM Meeting series with the goal of facilitating rapid research progress toward a complete understanding of the disease and development of a drug therapy. The primary objective in hosting this series is to provide a forum for multi-disciplinary data presentation and discussion between stakeholders, and the purpose of this proposal is to request partial funding to increase and broaden the attendance at the 12th annual CCM Scientific Meeting. Specifically, we aim to increase the number of trainees, underrepresented minorities and clinicians in attendance by providing travel assistance and targeted advertising and invitation delivery strategies. Furthermore, we intend to broaden scientific diversity by hosting a moderated panel discussion on the relationship of CCM lesion to cancer biology, and a general interest keynote address on vascular malformation animal research and therapeutic strategies. Given the advances in understanding the CCM illness over the past few years, attending this meeting is critical for all stakeholders to stay abreast of the latest research developments and to participate in unique collaborative endeavors.

脑海绵状血管瘤（CCM）是一种中枢神经血管疾病 导致严重神经系统症状、癫痫发作和/或出血性中风的系统 由于大脑和脊髓中血管病变的发展。最近几年， 疾病的机制已经更加明确，候选药物也有很多 分子正在研究中。然而，仍然存在未满足的临床需求 患者。血管瘤联盟是为受影响者服务的非营利性患者权益团体 由 CCM 提供。血管瘤联盟主办年度 CCM 会议系列，目标是 促进研究的快速进展，以全面了解该疾病和 药物疗法的开发。举办这个系列的主要目的是提供 利益相关者之间进行多学科数据展示和讨论的论坛， 该提案的目的是请求部分资金以增加和扩大 出席第 12 届年度 CCM 科学会议。具体来说，我们的目标是增加 参加培训的学员、代表性不足的少数族裔和临床医生的人数 提供旅行援助以及有针对性的广告和邀请发送策略。 此外，我们打算通过主办一个主持小组来扩大科学多样性 关于 CCM 病变与癌症生物学关系的讨论以及普遍兴趣 关于血管畸形动物研究和治疗策略的主题演讲。 鉴于过去几年对 CCM 疾病的了解取得了进展，参加 这次会议对于所有利益相关者了解最新研究至关重要 发展并参与独特的合作努力。