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Harmonist: A Scalable Toolkit for Standardizing and Coordinating Data Sharing Across International Research Networks

Harmonist：用于标准化和协调国际研究网络数据共享的可扩展工具包

基本信息

批准号：
9256439
负责人：
Stephany Norah Duda
金额：
$ 68.76万
依托单位：
VANDERBILT UNIVERSITY MEDICAL CENTER
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-04-06 至 2021-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9256439
关键词：
AIDS/HIV problem Acquired Immunodeficiency Syndrome Address Aptitude Benchmarking Caribbean region Caring Central America Clinic Clinical Clinical Data Cohort Studies Collaborations Collection Communities Computer software Country Data Data Base Management Data Coordinating Center Data Element Data Quality Data Set Databases Development Ensure Epidemic Epidemiology Evaluation Research Funding Generations Goals Guidelines HIV Healthcare Heterogeneity Individual Informatics Institution International Language Lead Leadership Measurement Measures Mentors Mentorship Monitor Observational Study Outcome Policies Practice Management Procedures Process Research Research Infrastructure Research Personnel Research Project Grants Resources Role Running Secure Series Site Source South America Standardization Structure Testing Time Training Universities Update Visual Work base cohort combat computerized data processing dashboard data exchange data management data modeling data sharing database design design electronic data electronic data capture system experience flexibility improved meetings online resource programs support tools symposium tool treatment site web-based tool webinar

项目摘要

DESCRIPTION (provided by applicant): The International epidemiologic Databases to Evaluate AIDS (IeDEA) network assembles observational data from seven large regional research cohorts-representing over 500 HIV clinics around the world-to address research questions about the HIV/AIDS epidemic. The substantial time and effort required to harmonize data for multi-cohort collaborations with so many sites can lead to research delays, particularly given heterogeneity in data management capacity, database design, and data management. The goal of the Harmonist project is to develop the "Harmonist toolkit," a software and standards package that will enable HIV observational research networks to coordinate large-scale research projects and apply data management best practices more effectively and efficiently. The toolkit will be built as a series of flexible plugins to the widely used Research Electronic Data Capture (REDCap) system, which is in use at over 1,600 institutions in 92 countries (as of mid-2015.) Harmonist features will include web-based tools for secure data exchange, data quality checking, and scientific project and portfolio management. The Harmonist project aims to (1) design and implement the Harmonist toolkit; (2) establish a consortium of Harmonist users within the IeDEA network, while providing mentorship to IeDEA and others on the use of the software, related data standards, and best data management best practices; and (3) measure the impact of the Harmonist toolkit on the data management and workflow processes of the IeDEA network. This proposal is a collaboration between research informatics experts at Vanderbilt University and all seven regional networks of the IeDEA consortium. This partnership ensures all components of Harmonist address real-world user needs in a practical manner and provides the toolkit with a dedicated user base. We believe that these research tools can reduce the time and effort needed for critical data management and administrative tasks that underlie the role of observational HIV cohorts studying the global epidemic. A modular infrastructure, as proposed, can adapt to diverse research settings and expand to include new data types and sources as the understanding of HIV evolves. The resulting shareable software and mentoring resources will provide tangible immediate and long-term benefits to IeDEA as well as the broader HIV research community.