Community Engagement & Clinical Support (CECS) Core

社区参与

• 批准号: 9085305
• 负责人: SCARLETT H HOPKINS
• 金额: $ 23.07万
• 依托单位: UNIVERSITY OF ALASKA FAIRBANKS
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至 2021-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9085305
• 关键词: Agreement; Alaska Native; Biological; Biological Process; Blood; Blood Pressure; Body Composition; Cardiac; Centers of Research Excellence; Chronic Disease; Clinical; Clinical Data; Clinical Services; Collection; Communities; Consultations; Data Collection; Databases; Development; Disease; Feedback; Focus Groups; Fostering; Future; Genetic; Goals; Hair; Health; Heart Rate; Individual; Institutional Review Boards; Intervention Studies; Interview; Knowledge; Linguistics; Measurement; Measures; Minority; Monitor; Nail plate; Native-Born; Obesity; Participant; Phase; Population; Positioning Attribute; Procedures; Process; Protocols documentation; Qualitative Research; Research; Research Assistant; Research Methodology; Research Personnel; Research Support; Research Training; Risk Factors; Role; Sampling; Scientist; Secure; Shapes; Specimen; Tissue Sample; Trust; Work; biobank; community based participatory research; community center; community partnership; genetic pedigree; improved; instrument; knowledge base; member; research study; response; screening

The Center for Alaska Native Health Research (CANHR) has become nationally recognized for the quality of its research to reduce disease and promote health among Alaska Native people and its role as a center of excellence in the use of Community-Based Participatory Research (CBPR) with minority populations. The Community Engagement and Clinical Support (CECS) Core has been indispensable in: (1) obtaining regional health corporation approval and tribal agreement to conduct research; (2) participant recruitment and developing clinical data collection protocols; (3) engaging Alaska Native participants in setting CANHR's research agenda; (4) working with community co-researchers to develop culturally relevant and understandable dissemination practices and materials; and (5) building local capacity to conduct research by training local residents as field research assistants. These practices have resulted in trusting and interactive community partnerships leading to the expansion of our research agenda to intervention research. The purpose of the proposed CECS Core is to continue these community partnerships in order to foster research-based knowledge to improve the health of Alaska Native people. The Specific Aims of the CECS Core include: Specific Aim 1: Facilitating and sustaining community-CANHR partnerships by engaging the community in all phases of the research process. Specific Aim 2: Supporting researchers in the development and implementation of linguistically and culturally appropriate research protocols. Specific Aim 3: Providing technical capacity to collect clinical measures and biological samples in the field for CANHR researchers. Specific Aim 4: Processing all biological specimens collected in the field and maintaining a secure biological storage facility for CANHR investigators and Alaska Native participants.

阿拉斯加土著健康研究中心（CANHR）已成为全国公认的质量， 它的研究，以减少疾病和促进健康的阿拉斯加土著人民和它的作用，作为一个中心， 卓越的使用社区为基础的调查研究（CBPR）与少数民族人口。的 社区参与和临床支持（CECS）核心不可或缺：（1）获得 区域卫生公司批准和部落同意进行研究;（2）招募参与者 制定临床数据收集协议;（3）让阿拉斯加土著参与者参与制定CANHR的 研究议程;（4）与社区共同研究人员合作，制定文化相关和 易于理解的传播做法和材料;（5）建设地方开展研究的能力 通过培训当地居民作为实地研究助理。这些做法导致了信任和 互动的社区伙伴关系，导致我们的研究议程扩展到干预 research. 拟议的CECS核心的目的是继续这些社区伙伴关系，以促进 以研究为基础的知识，以改善阿拉斯加原住民的健康。CECS的具体目标 核心包括： 具体目标1：促进和维持社区-加拿大人权理事会的伙伴关系， 研究过程的各个阶段。 具体目标2：支持研究人员制定和实施语言学和 文化上合适的研究方案。 具体目标3：提供在实地收集临床措施和生物样本的技术能力 对于CANHR研究人员来说。 具体目标4：处理现场收集的所有生物标本，并保持安全的生物 为CANHR调查人员和阿拉斯加土著参与者提供存储设施。