Enhancing Scientific Community Access to Add Health Data
Enhancing Scientific Community Access to Add Health Data
批准号:
9296799
负责人:
ROBERT A HUMMER
金额:
$7.75万
依托单位国家:
美国
项目类别:
财政年份:
2017
资助国家:
美国
项目状态:
已结题
起止时间:
2017-03-23 至 2019-02-28
关键词:
AddressAdolescentAdultArchivesAwarenessBehavioralBiologicalBiomedical ResearchChild health careCollectionCommunitiesCustomDataData AnalysesData CollectionData DiscoveryData QualityData SetDepositionDisciplineDocumentationFamilyFriendshipsFundingFutureGenomicsHealthHome environmentHumanHuman DevelopmentIndividualInternationalInterviewLifeLife Cycle StagesLinkLongitudinal StudiesMeasuresMetadataMethodologyMethodsMolecularNational Institute of Child Health and Human DevelopmentNeighborhoodsPeer GroupPoliciesPoliticsPopulationPublic HealthPublic PolicyReadabilityResearchResearch DesignResearch PersonnelResourcesSchoolsScienceScience PolicySpecimenStructureSurveysTechnologyThinkingUnited States National Institutes of HealthUpdatebasebuilt environmentcohortdata accessdata archivedata portaldatabase of Genotypes and Phenotypesdesignethnic diversitygenomic datahealth datainnovationinterestmultidisciplinaryphenotypic datapublic health researchracial diversityrepositoryresponsesecondary analysissocialtoolweb-based tool
中文摘要
摘要
英文摘要
ABSTRACT
For more than 20 years, the National Longitudinal Study of Adolescent to Adult Health (Add Health), a
nationally representative cohort of U.S. adolescents first contacted in 1994-95 who have now been followed
into their fourth decade of life, has released all of its data to the scientific community. At present, Add Health
has more than 30,000 users around the world across a range of scientific disciplines. Four waves of interviews
have been conducted and a fifth wave is currently in the field. The comprehensive multilevel data includes
survey responses, biological and genomic data, and social contextual data on friendship networks, romantic
relationships, families, schools, neighborhoods, and the political, cultural, and built environment. Despite the
widespread release and availability of Add Health data, updated documentation and metadata standards have
not been applied to the rich longitudinal multilevel data. This application outlines a plan to substantially
upgrade and expand the archiving, documentation, and dissemination of Add Health data. The intent is to
make Add Health data even more easily accessible, straightforward to use, and clearly documented, while
increasing awareness and facilitating expanded use of this national scientific resource.
This project aims to: (1) enhance the archived Add Health data by applying the Data Documentation Initiative
(DDI) international standard and harmonizing variables across the waves, thereby augmenting the information
researchers can explore within the extensive collection of Add Health data; (2) generate searchable Add
Health metadata in a human readable and machine-actionable format that will expand data discovery for the
research community by providing researchers with robust web-based tools that facilitate the exploration of
research questions that can be addressed with the Add Health data, generate customized codebooks that are
unique to their research interests, and facilitate receipt of Add Health's public-use and restricted-use data; and
(3) increase dissemination of Add Health data to the research community by depositing all waves of the Add
Health public-use data in the NICHD Data and Specimen Hub, linking the metadata tool (described in Aim 2) to
all repositories where Add Health's public-use data are deposited while integrating the new tools into the
Carolina Population Center's Data Portal, and promoting researchers' awareness of the Add Health data and
the data discovery tools.
Add Health will be one of the first studies to apply DDI standards and provide metadata for multilevel social,
behavioral, biological, genomic, and environmental data, contributing new innovations to the science behind
DDI structure and methodology. Accomplishing the aims of this project will significantly expand the Add Health
user base and multiply the scientific impact that Add Health has on social and biomedical research.
期刊论文(0)
专著(0)
科研奖励(0)
会议论文
National Longitudinal Study of Adolescent to Adult Health (Add Health): Wave VI Core Project
-
批准号:10355540
-
项目类别:
-
资助金额:$575.97万
-
财政年份:2021
-
负责人:ROBERT A HUMMER
-
依托单位:
National Longitudinal Study of Adolescent to Adult Health (Add Health): Wave VI Core Project
-
批准号:10560505
-
项目类别:
-
资助金额:$567.83万
-
财政年份:2021
-
负责人:ROBERT A HUMMER
-
依托单位:
National Longitudinal Study of Adolescent to Adult Health (Add Health): Wave VI Core Project
-
批准号:10166116
-
项目类别:
-
资助金额:$599.48万
-
财政年份:2021
-
负责人:ROBERT A HUMMER
-
依托单位:
From Biological to Social Processes: Interdisciplinary Training in Life Course Research
-
批准号:10410189
-
项目类别:
-
资助金额:$48.12万
-
财政年份:2017
-
负责人:ROBERT A HUMMER
-
依托单位:
From Biological to Social Processes: Interdisciplinary Training in Life Course Research
-
批准号:10615810
-
项目类别:
-
资助金额:$36.78万
-
财政年份:2017
-
负责人:ROBERT A HUMMER
-
依托单位:
Educational Differences in U.S. Adult Mortality
-
批准号:7471437
-
项目类别:
-
资助金额:$25.91万
-
财政年份:2006
-
负责人:ROBERT A HUMMER
-
依托单位:
Educational Differences in U.S. Adult Mortality
-
批准号:7133463
-
项目类别:
-
资助金额:$28.49万
-
财政年份:2006
-
负责人:ROBERT A HUMMER
-
依托单位:
Educational Differences in U.S. Adult Mortality
-
批准号:7270044
-
项目类别:
-
资助金额:$26.45万
-
财政年份:2006
-
负责人:ROBERT A HUMMER
-
依托单位:
Div. of Clinical and Population-based Studies Specials
-
批准号:7124508
-
项目类别:
-
资助金额:$28.3万
-
财政年份:2004
-
负责人:ROBERT A HUMMER
-
依托单位:
Div. of Clinical and Population-based Studies Specials
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批准号:7120732
-
项目类别:
-
资助金额:$113.3万
-
财政年份:2004
-
负责人:ROBERT A HUMMER
-
依托单位:
Div. of Clinical and Population-based Studies Specials
-
批准号:7035478
-
项目类别:
-
资助金额:$91.7万
-
财政年份:2004
-
负责人:ROBERT A HUMMER
-
依托单位:
Div. of Clinical and Population-based Studies Specials
-
批准号:7000001
-
项目类别:
-
资助金额:$91.7万
-
财政年份:2004
-
负责人:ROBERT A HUMMER
-
依托单位:
Div. of Clinical and Population-based Studies Specials
-
批准号:6946699
-
项目类别:
-
资助金额:$85.4万
-
财政年份:2004
-
负责人:ROBERT A HUMMER
-
依托单位:
Div. of Clinical and Population-based Studies Specials
-
批准号:7102234
-
项目类别:
-
资助金额:$56.3万
-
财政年份:2004
-
负责人:ROBERT A HUMMER
-
依托单位:
Population Research Center
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批准号:6548324
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项目类别:
-
资助金额:$44.83万
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财政年份:2002
-
负责人:ROBERT A HUMMER
-
依托单位:
Population Research Center
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批准号:6753655
-
项目类别:
-
资助金额:$47.56万
-
财政年份:2002
-
负责人:ROBERT A HUMMER
-
依托单位:
Population Research Center
-
批准号:6607581
-
项目类别:
-
资助金额:$46.17万
-
财政年份:2002
-
负责人:ROBERT A HUMMER
-
依托单位:
BIRTH OUTCOMES, SOCIAL RISKS AND CHILD HEALTH
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批准号:2761357
-
项目类别:
-
资助金额:$13.51万
-
财政年份:1999
-
负责人:ROBERT A HUMMER
-
依托单位:
BIRTH OUTCOMES, SOCIAL RISKS AND CHILD HEALTH
-
批准号:6054578
-
项目类别:
-
资助金额:$4.55万
-
财政年份:1999
-
负责人:ROBERT A HUMMER
-
依托单位:
BIRTH OUTCOMES, SOCIAL RISKS AND CHILD HEALTH
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批准号:6138824
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项目类别:
-
资助金额:$13.91万
-
财政年份:1999
-
负责人:ROBERT A HUMMER
-
依托单位:
海外基金