Family Outcomes in Autism Spectrum Disorders
自闭症谱系障碍的家庭结局
基本信息
- 批准号:9223757
- 负责人:
- 金额:$ 39.93万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2013
- 资助国家:美国
- 起止时间:2013-06-01 至 2020-02-29
- 项目状态:已结题
- 来源:
- 关键词:AdultAffectAttention deficit hyperactivity disorderAutistic DisorderBehaviorBehavioralChildChild DevelopmentChild RearingChronicClinicalComputer softwareConflict (Psychology)CouplesDataData AdjustmentsData CollectionDependenceDevelopmental DisabilitiesDiagnosisDiseaseDivorceEquationFamilyFunctional disorderGoalsHusbandIndividualLinear ModelsLiteratureMarital RelationshipsMarital TherapyMarriageMeasuresMental HealthModelingOppositional Defiant DisorderOutcomeParentsPathway interactionsPatient Self-ReportPatternPersonsProblem behaviorProcessPublic HealthReportingResearchSpousesStressSymptomsTestingTimeWifeagedautism spectrum disorderclinical applicationcomparison groupconflict resolutioncopingdiariesdisabilityexperienceimprovedmultilevel analysisphysical conditioningpublic health relevancesatisfactionstressorteachervirtual
项目摘要
DESCRIPTION (provided by applicant): It is now estimated that one in 88 children in the U.S. are diagnosed with an autism spectrum disorder (ASD). Few disabilities are more stressful on parents than ASD. There is theoretical and empirical evidence to suggest that chronic parenting stress affects marital adjustment. The overarching goal of this project is to examine the within-family associations between the autism symptoms and behavior problems of children with ASDs and marital adjustment as these processes unfold in naturalistic contexts and across three years. The specific study aims are: 1) Compare the self-reported and observed marital adjustment of couples of children with ASDs as compared to couples who have children without disabilities. 2) Test the within-family day-to-day temporal effects of child symptoms and behavior problems on couple interactions. 3) Examine the trajectories of global self-reported and observed marital adjustment across four waves of data collection spanning three years. In total, 175 married couples who have a child with an ASD aged five to 12 years will participate in the study. Study variables will be assessed through self-reported and teacher-reported measures and direct observations across four waves of data collection spanning three years. A matched comparison group of 150 married couples of children without a disability will also participate at Time 1 to understand how the processes in families of children with ASDs differ from normative experiences. Associations between marital adjustment and child symptoms and behavior problems will be examined using both a micro-level scale (14-day daily diary at Time 1), to examine the unfolding of real time day-to-day associations in their natural and spontaneous context, and a macro-level scale (four waves of data collection spanning three years), to examine the longer-term time-order pathways between these variables. Our primary unit of analysis is the couple, with individuals (husbands and wives) nested within couples. Multivariate multilevel modeling will be used to handle the inter-dependence of spouses' data collected at multiple time points (Raudenbush & Bryk, 2002).
描述(由申请人提供):据估计,目前美国每88名儿童中就有一人被诊断出患有自闭症谱系障碍(ASD)。很少有残疾比自闭症给父母带来的压力更大。有理论和经验证据表明,长期的育儿压力会影响婚姻适应。该项目的首要目标是研究自闭症儿童的自闭症症状和行为问题与婚姻适应之间的家庭内联系,因为这些过程是在自然主义背景下展开的,历时三年。具体的研究目的是:1)比较有自闭症儿童的夫妇和有无残疾子女的夫妇的自我报告和观察到的婚姻适应情况。2)测试儿童症状和行为问题对夫妻互动的家庭内日常时间效应。3)检查全球自我报告和观察到的婚姻适应的轨迹,跨越三年的四波数据收集。总共有175对已婚夫妇,他们的孩子患有5到12岁的自闭症,他们将参与这项研究。研究变量将通过自我报告和教师报告的措施以及跨越三年的四波数据收集的直接观察来评估。由150对有非残疾儿童的已婚夫妇组成的配对对照组也将在时间1参与,以了解患有自闭症儿童的家庭的过程与正常经验有何不同。婚姻适应与儿童症状和行为问题之间的联系将使用微观水平的量表(在时间1的14天每日日记)和宏观水平的量表(四波数据收集跨越三年)来检查这些变量之间的较长期的时间顺序路径。我们的主要分析单位是夫妻,个体(丈夫和妻子)嵌套在夫妇中。多变量多水平模型将被用来处理在多个时间点收集的配偶数据的相互依赖性(RaudenBush&Bryk,2002)。
项目成果
期刊论文数量(2)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
Mothers' and Fathers' Prescription Drug Misuse in Family Contexts: Implications for the Adjustment of Parents of Children With and Without Autism.
母亲和父亲在家庭背景下滥用处方药:对患有和不患有自闭症儿童的父母的调整的影响。
- DOI:10.1080/16066359.2017.1351552
- 发表时间:2018
- 期刊:
- 影响因子:2.9
- 作者:Papp,LaurenM;Hartley,SiganL
- 通讯作者:Hartley,SiganL
Child-present and child-themed marital conflict in daily life of parents of children with and without autism spectrum disorder.
有或没有自闭症谱系障碍儿童的父母日常生活中存在儿童和以儿童为主题的婚姻冲突。
- DOI:10.1037/dev0000631
- 发表时间:2019
- 期刊:
- 影响因子:4
- 作者:Papp,LaurenM;Hartley,SiganL
- 通讯作者:Hartley,SiganL
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Sigan L Hartley其他文献
Prediction of amyloid and tau brain deposition and cognitive decline in people with Down syndrome using plasma biomarkers: a longitudinal cohort study
利用血浆生物标志物预测唐氏综合征患者的淀粉样蛋白和tau 蛋白脑沉积及认知能力下降:一项纵向队列研究
- DOI:
10.1016/s1474-4422(25)00158-9 - 发表时间:
2025-07-01 - 期刊:
- 影响因子:45.500
- 作者:
Shorena Janelidze;Lyduine E Collij;Niklas Mattsson-Carlgren;Alex Antill;Charles M Laymon;Ira Lott;H Diana Rosas;Davneet S Minhas;Weiquan Luo;Shahid Zaman;Alzheimer's Biomarker Consortium–Down Syndrome investigators;Mark Mapstone;Elizabeth Head;Florence Lai;Sigan L Hartley;Beau M Ances;Sharon J Krinsky-McHale;Joseph H Lee;Rik Ossenkoppele;Bradley T Christian;Benjamin L Handen;Oskar Hansson - 通讯作者:
Oskar Hansson
Timeline to symptomatic Alzheimer's disease in people with Down syndrome as assessed by amyloid-PET and tau-PET: a longitudinal cohort study
唐氏综合征患者症状性阿尔茨海默病的时间线(通过淀粉样蛋白-PET 和 tau-PET 评估):一项纵向队列研究
- DOI:
10.1016/s1474-4422(24)00426-5 - 发表时间:
2024-12-01 - 期刊:
- 影响因子:45.500
- 作者:
Emily K Schworer;Matthew D Zammit;Jiebiao Wang;Benjamin L Handen;Tobey Betthauser;Charles M Laymon;Dana L Tudorascu;Annie D Cohen;Shahid H Zaman;Beau M Ances;Mark Mapstone;Elizabeth Head;Bradley T Christian;Sigan L Hartley;Howard Aizenstein;Beau Ances;Howard Andrews;Karen Bell;Rasmus Birn;Adam Brickman;Fan Zhang - 通讯作者:
Fan Zhang
Sigan L Hartley的其他文献
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{{ truncateString('Sigan L Hartley', 18)}}的其他基金
Lifestyle and Alzheimer's Disease In Down Syndrome
生活方式与唐氏综合症中的阿尔茨海默病
- 批准号:
10098587 - 财政年份:2020
- 资助金额:
$ 39.93万 - 项目类别:
Lifestyle and Alzheimer's Disease In Down Syndrome
生活方式与唐氏综合症中的阿尔茨海默病
- 批准号:
10263355 - 财政年份:2020
- 资助金额:
$ 39.93万 - 项目类别:
Lifestyle and Alzheimer's Disease In Down Syndrome
生活方式与唐氏综合症中的阿尔茨海默病
- 批准号:
10474454 - 财政年份:2020
- 资助金额:
$ 39.93万 - 项目类别:
Lifestyle Risk and Resiliency Factors and Alzheimer’s Disease in Down syndrome
唐氏综合症中的生活方式风险和弹性因素以及阿尔茨海默病
- 批准号:
10669953 - 财政年份:2020
- 资助金额:
$ 39.93万 - 项目类别:
Lifestyle and Alzheimer's Disease In Down Syndrome
生活方式与唐氏综合症中的阿尔茨海默病
- 批准号:
10696137 - 财政年份:2020
- 资助金额:
$ 39.93万 - 项目类别:
Lifestyle and Alzheimer’s Disease In Down Syndrome- Life Stressors Supplement
生活方式和唐氏综合症中的阿尔茨海默病 - 生活压力补充剂
- 批准号:
10839520 - 财政年份:2020
- 资助金额:
$ 39.93万 - 项目类别:
Post-Doctoral Training in Intellectual and Developmental Disabilities Research
智力和发育障碍研究博士后培训
- 批准号:
10395978 - 财政年份:1995
- 资助金额:
$ 39.93万 - 项目类别:
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