Tools for Coordination Among Caregivers of Patients with Alzheimer's Disease and Other Dementias

阿尔茨海默病和其他痴呆症患者的护理人员之间的协调工具

• 批准号: 9269971
• 负责人: GARY D HAVEY
• 金额: $ 59.5万
• 依托单位: ADVANCED MEDICAL ELECTRONICS CORPORATION
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-25 至 2019-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9269971
• 关键词: Address; Adoption; Affect; Agitation; Alzheimer' s Disease; Android; Anxiety; Area; Behavior; Caregiver Burden; Caregiver support; Caregivers; Caring; Cellular Phone; Chronic Disease; Client; Collection; Communication; Companions; Computer Assisted; Costs and Benefits; Dementia; Disease; Eating; Effectiveness; Elderly; Family; Family health status; Family member; Friends; Geography; Goals; Healthcare Systems; Home environment; Human; Human Resources; Intervention; Long-Term Care; Loudness; Measures; Medical Electronics; Medicare; Memory; Methods; Modeling; Music; Online Systems; Outcome; Participant; Patients; Pattern; Persons; Pharmaceutical Preparations; Pharmacology; Phase; Population; Problem behavior; Psychosocial Assessment and Care; Quality Control; Quality of Care; Quality of life; Reporting; Resistance; Risk; Schedule; Secure; Sensory; Services; Sleep; Socialization; Societies; Specialist; Stress; Symptoms; System; Tablets; Technology; Testing; Therapeutic; Time; Trust; Videotape; Voice; Wireless Technology; Workload; Youth; base; care recipients; caregiving; clinical efficacy; cloud based; cost; cost effective; dementia care; experience; feeding; improved; interest; mobile application; personalized care; personalized intervention; personalized medicine; personalized therapeutic; prevent; prototype; psychosocial; public health relevance; quality assurance; social media; success; support tools; tool; usability; user-friendly; voice therapy

 DESCRIPTION (provided by applicant): This project will develop a state-of-the-art technology platform to support psychosocial interventions for persons with Alzheimer's disease (AD) and other dementia (PWD), and their family members and friends (FMs). A tool will be developed that automatically solicits media, allows communicating with caregivers, and checks the quality of media feeding into the SimpleC Companion, a behavior management technology for persons with Alzheimer's disease and other dementia. The main goals are to improve therapy personalization, make it scalable, thereby positively affecting the effectiveness of the SimpleC care intervention. The number of people with dementia is large and growing. Approximately 5.3 million people in the U.S. and 44 million worldwide have dementia. These estimates are expected to nearly triple by 2050. Currently, there is no cure and the cost to families, the health care system, and society is large. Not only is dementia the sole top 10 U.S. disease that cannot be prevented, cured, or slowed; but it is also one of the costliest chronic diseases- estimated national cost is $226 billion (half of which is carried by Medicare) and expected to rise to $1.1 trillion by 2050 if nothing changes. In addition, there are few tools to meet the needs of this population. The general approach is medication, which is costly and sedates people with dementia rather than engaging them. Psychosocial interventions, such as those offered by SimpleC, are alternatives to pharmacology to address dementia-related symptoms while improving both quality of care and quality of life. Personalization is one key ingredient to the success of the interventions. While SimpleC's highly personalized interventions, human customer service, and advanced wireless computing network enable the creation and delivery of meaningful care interventions on a large, cost-effective scale; these interventions still require significant manpower to gather personalized therapeutic content, which is usually non-digital, e.g., Polaroid pictures, reel-to-reel audio and video tape from caregivers and family members who are likely very busy, stressed, and may live far away. The first goal of the proposed project mitigates this barrier by reducing manpower requirements, providing guidance to caregivers, and enabling even wider spread deployment. Furthermore, this project will both increase and sustain care recipients' engagement, which is crucial to psychosocial interventions. The second goal addresses communication needs between care giving parties. The proposed project addresses the challenge of offering a channel to communicate that is respectful of busy schedules and high workloads of all involved. The project will assess technology acceptance and barriers in the field. In phase I AME demonstrated feasibility of a caregiver tool that supports the collection of media required for psychosocial interventions and facilitates communication between staff caregivers and family members/friends of older adults with dementia. In phase II AME will partner with SimpleC to expand and integrate this functionality into their technology platform and products as well as conduct an in-market test of the entire platform. Testing will occur in the long-term care facility (high staff and high resident turnover) and home market (where the majority of persons with dementia (PWD) live).

 描述（由适用提供）：该项目将开发一个最先进的技术平台，以支持阿尔茨海默氏病（AD）和其他痴呆症（PWD）（PWD）及其家人和朋友（FMS）的人的心理干预措施。将开发一种工具，该工具自动固体媒体，允许与看护者进行交流，并检查媒体的质量，这些媒体为Simplec Companion提供了一种针对患有阿尔茨海默氏病和其他痴呆症患者的行为管理技术。主要目标是改善治疗个性化，使其可扩展，从而积极影响简单护理干预的有效性。痴呆症患者的数量很大且增长。美国约有530万人和全球4400万人患有痴呆症。这些估计预计到2050年将几乎三倍。 护理系统，社会很大。痴呆症不仅是无法预防，治愈或减慢的唯一美国十大疾病；但这也是最昂贵的慢性疾病之一，估计全国成本为2260亿美元（其中一半是由Medicare携带的），如果没有任何变化，到2050年，到2050年预计将上涨至1.1万亿美元。此外，很少有工具可以满足该人群的需求。一般方法是药物，它是昂贵的，镇静了痴呆症的人而不是吸引痴呆症。社会心理干预措施（例如SimpleC提供的干预措施）是药理学的替代方法，可以解决与痴呆有关的症状，同时改善护理质量和生活质量。个性化是干预措施成功的关键要素。尽管Simplec的高度个性化干预措施，人类客户服务和高级无线计算网络可以在大型，具有成本效益的规模上创建和提供有意义的护理干预措施；这些干预措施仍然需要重要的人力来收集个性化的治疗内容，例如，宝丽来图片，卷轴到卷曲的音频和录像带，这些录像带和录像带和录像带的录像带和录像带可能会非常忙碌，压力很大并且可能居住很远。拟议项目的第一个目标是通过减少人力要求，为看护人提供指导，并使更广泛的传播部署来减轻这种障碍。此外，该项目既可以增加又维持护理人员的参与，这对于社会心理干预至关重要。第二个目标解决了护理派对之间的沟通需求。拟议的项目解决了提供一个渠道进行交流的挑战，该渠道尊重繁忙的时间表和所有相关人员的工作量。该项目将评估该领域的技术接受和障碍。在第一阶段，AME展示了一种护理人员工具的可行性，该工具支持员工护理人员与痴呆症老年人的家庭成员/家人/朋友之间所需的媒体收集。在第二阶段，AME将与SimpleC合作，将此功能扩展并将其集成到他们的技术平台和产品中，并对整个平台进行市场内测试。长期护理机构（高层员工和高级居民营业额）将进行测试） 和本地市场（大多数患有痴呆症（PWD）的人）。