Virtual Patient Behavioral Response Training for Family Caregivers

家庭护理人员的虚拟患者行为反应培训

基本信息

批准号：
9681031
负责人：
BRUNO KAJIYAMA
金额：
$ 73.26万
依托单位：
PHOTOZIG, INC.
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-09-01 至 2020-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9681031
关键词：
Access to Information Adopted Adoption Adult Adverse effects Age Alzheimer&apos s Disease American Android Behavior Behavioral Behavioral Symptoms Caregiver Burden Caregiver well-being Caregivers Caring Cellular Phone Centers for Disease Control and Prevention (U.S.)Chronic Clinical Clinical Trials Cognitive Communities Computer software Computers Data Dementia Dementia caregivers Depressed mood Depressive Syndromes Deterioration Development Educational Curriculum Educational process of instructing Effectiveness Electronic Mail Emergency department visit Emotional Emotions Evaluation Exposure to Family Family Caregiver Fatigue Focus Groups Goals Government Health Health Care Costs Hospitalization Human Resources Incidence Individual Institutionalization Internet Intervention Knowledge Lead Learning Life Measures Mental Depression Mental Health Modeling Motivation Outcome Ownership Patient Education Patients Perception Personal Satisfaction Personality Pharmaceutical Preparations Phase Problem behavior Psychological Stress Publishing Quality of life Randomized Randomized Clinical Trials Reaction Reporting Resources Risk Services Severities Source Stress Symptoms Techniques Text Training Training Activity Translating United States Update adverse outcome base behavioral response brain cell care burden care recipients caregiving case-based coping cost crowdsourcing dementia caregiving depressive symptoms economic cost experience functional status high risk improved innovation medical schools mobile application mortality novel phase 1 study programs psychological symptom public health relevance recruit response rural underserved skills tool usability virtual

项目摘要

Project Summary: The main cause of behavioral symptoms in patients with Alzheimer's disease (AD) is the deterioration of brain cells which causes a decline in the individual's ability to make sense of the world. Coping with such difficult behaviors is challenging for many caregivers, and it is associated with many distressful situations. Despite current knowledge of adverse effects of dementia on families, dementia caregivers remain the hidden patients with high incidence of stress (59%) and depression (30%). The physical and emotional impact of dementia caregiving is estimated to $9.7 billion in health care costs in the United States (2014). “In separate studies, hospitalization and emergency department visits were more likely for dementia caregivers who helped care recipients who were depressed, had low functional status, or had behavioral disturbances.” The stress of dementia caregiving is influenced by several factors, such as severity of dementia symptoms, how challenging distressful situations are perceived by caregivers, and available resources. Although information and programs about dementia are available to the public, an essential missing tool is how to deal with difficult behaviors of dementia patients in an effective manner, as they are very common and demanding. This Phase II project will complete the development of the Virtual Patient Behavioral Response (VPBR) training to improve skills on how to respond to dementia behavioral problems and enhance caregiver coping. This training is implemented in a mobile app (Caring Response App, CRA). The expected benefits include improved psychological health in caregivers and reduced stress related to behavioral disturbances of AD patients. Key innovations consist of: (1) integration of virtual patient techniques in a mobile app for dementia caregivers; (2) anonymous sharing of real responses and techniques used by caregivers in day-to-day situations; and (3) automated content update to users through an advanced “crowdsourcing” of caregiving knowledge (after being “curated” by project personnel) to promote best practices that caregivers found helpful. Phase I demonstrated the feasibility and met all milestones. Results showed that caregivers were prepared to use the mobile app and it actually reduced their psychological stress. In fact, besides demonstrating usability, acceptance and perceived benefits, Phase I study showed significant positive outcomes for caregivers on reducing their stress, depressive symptoms, and burden of care due to patients’ problem behaviors. In Phase II, we will finalize the VPBR curriculum, develop the complete app, and evaluate its effectiveness in a randomized clinical trial; resulting in a novel intervention that integrates virtual patient behavioral response, aggregation of community shared experience, effective training on difficult dementia behaviors, and a mobile app to be deployed to millions of families struggling with Alzheimer’s. Commercial Opportunity: VPBR training will be available to dementia caregivers (16+ Million people in US) as a mobile app subscription. This model has been very successful with our current mobile apps in App Stores.

项目摘要：阿尔茨海默氏病（AD）患者行为症状的主要原因是脑细胞的恶化会导致个人了解世界的能力下降。应对由于如此艰难的行为，许多护理人员都面临着挑战，并且与许多苦恼有关情况。尽管目前了解痴呆对家庭的不良影响，但痴呆症护理人员仍然存在隐藏的患者（59％）和抑郁症（30％）。身体和情感在美国，痴呆症护理的影响估计为97亿美元的医疗保健费用（2014年）。 “在痴呆症护理人员更有可能进行单独的研究，住院和急诊科的访问谁帮助照顾沮丧，功能状况低或行为障碍的接受者。” 痴呆症护理的压力受到多种因素的影响，例如痴呆症状的严重程度，护理人员和可用资源如何看待挑战的痛苦情况。虽然有关痴呆症的信息和程序可供公众使用，必不可少的工具是如何处理痴呆症患者的行为困难，因为他们非常普遍且苛刻。该阶段II项目将完成虚拟患者行为反应（VPBR）培训的发展为了提高如何应对痴呆症行为问题的技能并增强护理人员的应对。这培训是在移动应用程序（Caring Response App，CRA）中实施的。预期的好处包括改善护理人员的心理健康和与AD患者行为障碍有关的压力减轻。关键创新包括：（1）在痴呆症护理人员的移动应用程序中将虚拟患者技术集成；（2）在日常情况下，护理人员使用的真实响应和技术的匿名共享；（3）通过高级护理知识“众包”对用户的自动化内容更新（在由项目人员进行“策划”），以促进护理人员发现有帮助的最佳实践。第一阶段证明了可行性并达到了所有里程碑。结果表明，护理人员准备使用移动应用程序，实际上减轻了他们的心理压力。实际上，除了证明可用性外，接受和感知的收益，第一阶段研究显示了照顾者的显着积极成果由于患者的问题行为而减轻压力，抑郁症状和护理燃烧。在第二阶段，我们将最终确定VPBR课程，开发完整的应用程序，并评估其在A中的有效性随机临床试验；导致了整合虚拟患者行为反应的新颖干预措施，社区共享经验的汇总，对困难痴呆行为的有效培训以及移动应用程序将部署到数百万与阿尔茨海默氏症斗争的家庭中。商业机会：VPBR培训将向痴呆症护理人员（美国16多人）接受移动应用程序订阅。我们当前在应用商店中的移动应用程序非常成功。