Engaging All of Us for Effective Precision Medicine
Engaging All of Us for Effective Precision Medicine
批准号:
9904066
负责人:
LOUISA A STARK
金额:
$168.05万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2019
资助国家:
美国
项目状态:
已结题
起止时间:
2019-08-15 至 2024-06-30
关键词:
AfricanAfrican AmericanAlaska NativeAll of Us Research ProgramAmerican IndiansArtsAwardBiological SciencesClinical SciencesCollaborationsCommunitiesComplexCultural DiversityEducational MaterialsEngineeringEvaluationFaceFamilyGeneticGenetic MedicineGenomic medicineHealthHispanicsImageryImmigrantLatinoLearningLesbian Gay Bisexual Transgender QueerMethodsMissionPacific Island AmericansPatientsProgram DevelopmentProviderRefugeesResearch PersonnelRightsScienceScience of geneticsSecureTalentsTherapeuticTranslational ResearchTrustUnderrepresented GroupsUniversitiesUtahWritingbasecommunity organizationscommunity partnershipdesigndigitalexperiencegame developmentgraduate studentimprovedmemberpersonalized medicineprecision medicineprogramsresearch studyscience educationweb site
中文摘要
犹他大学及其社区合作伙伴将带来经验和专业知识的结合,非常适合
为我们所有人的研究计划开发和评估有影响力的参与。提供的详细信息中的主要亮点
在本提案的其他部分:
犹他大学遗传学学习中心(GSLC)
·18人的多才多艺团队,兼具科学、教育、科学和健康写作、可视化和
评估专业知识
·在使用基于社区的参与式设计方法编制材料方面有20年的经验,包括
与代表不足的社区
·使复杂科学--包括遗传学、基因组学和个性化医学--变得容易理解的专家
非专家,重点关注5-10级、患者、公众和提供者
·开发数字、体验式和多文化材料的获奖创造性方法
·Learn.Genetics和Teach.Genetics的开发商,这是世界上使用率最高的生命科学教育网站
·严格的评估方法,用于评估我们开发的材料的有效性并反复改进
·热衷于我们的使命,即让每个人都更容易理解科学和健康
社区合作伙伴
犹他州社区面孔(CFU)
·5个不同社区组织、犹他州卫生部和
犹他大学,成立于2009年;每个社区领袖领导着一个由其他组织组成的网络
·致力于改善非洲难民/移民、非裔美国人、美国印第安人/阿拉斯加原住民的健康,
西班牙裔/拉丁裔(拉丁裔)和太平洋岛民社区
·从开发侧重于遗传学和健康的教育材料和方案的项目开始
·在以社区为基础的参与式设计和共同创建材料、方案和研究研究方面经验丰富
平等的犹他州
·寻求确保女同性恋者、男同性恋者、双性恋者、变性人和同性恋犹他州人及其家人的平等权利和保护
·与CFU、研究人员和CCET合作进行研究
犹他州临床与翻译科学中心(CCTS)社区协作与参与组(CCET)
·敏锐地促进学术与社区的伙伴关系;10年经验
·擅长与社区领袖、组织和成员建立信任关系
·在整个项目中支持多方向学习
·在地方、州、区域和国家各级发展和维持关系,重点放在
代表不足的群体
治疗游戏和应用实验室(GAPP实验室),娱乐艺术与工程项目(EAE),犹他大学(EAE)
·世界顶级游戏开发项目之一;理学士和理科硕士学位
·GAPP实验室让研究生参与开发与健康相关的游戏和应用程序
·在GSLC和EAE/GAPP实验室之间建立合作,以开发数字项目
英文摘要
The University of Utah and its community partners will bring a combination of experience and expertise that is well-suited to
developing and evaluating impactful engagements for the All of Us Research Program. Key highlights from the details provided
elsewhere in this proposal:
Genetic Science Learning Center (GSLC) at the University of Utah
• Multi-talented team of 18 with a combination of science, education, science and health writing, visualization, and
evaluation expertise
• 20 years of experience in using community-based participatory design approaches to develop materials, including
with underrepresented communities
• Experts in making complex science—including genetics, genomics, and personalized medicine—understandable for
non-experts, with a focus on grade 5-10, patients, the public, and providers
• Award-winning, creative approaches to developing digital, experiential, and multicultural materials
• Developers of Learn.Genetics and Teach.Genetics, the most highly used life-science education websites in the world
• Rigorous evaluation methods used to assess the efficacy of and iteratively improve materials we develop
• Passionate about our mission of making science and health easy for everyone to understand
Community Partners
Community Faces of Utah (CFU)
• Equitable collaborative among leaders of 5 diverse community organizations, the Utah Department of Health, and the
University of Utah, established in 2009; each community leader leads a network of other organizations
• Committed to improving health in the African refugee/immigrant, African American, American Indian/Alaskan Native,
Hispanic/Latino (Latinx), and Pacific Islander communities
• Began with projects to develop educational materials and programs focused on genetics and health
• Experienced in community-based, participatory design and co-creation of materials, programs, and research studies
Equality Utah
• Seeks to secure equal rights and protections for lesbian, gay, bisexual, transgender & queer Utahns and their families
• Has collaborated with CFU, researchers and CCET in conducting research studies
Community Collaboration & Engagement Team (CCET) of the Utah Center for Clinical & Translational Science (CCTS)
• Sensitively facilitates academic-community partnerships; 10 years of experience
• Skilled at building trusting relationships with community leaders, organizations and members
• Supports multi-directional learning throughout projects
• Has developed and maintains relationships at the local, state, regional and national levels with a strong focus on
underrepresented groups
Therapeutic Games and Apps Lab (GApp Lab), Entertainment Arts & Engineering Program (EAE), University of Utah (EAE)
• One of the top game development programs in the world; BS and MS degrees
• GApp Lab involves graduate students in developing health-related games and apps
• Established collaboration between GSLC and EAE/GApp Lab for developing digital engagements
期刊论文(0)
专著(0)
科研奖励(0)
会议论文
NIH SciEd Conference
-
批准号:10318751
-
项目类别:
-
资助金额:$7.23万
-
财政年份:2021
-
负责人:LOUISA A STARK
-
依托单位:
Engineering Solutions for Better Health: Genetic Technology and Biomedical Engineering for Secondary Classrooms
-
批准号:10616705
-
项目类别:
-
资助金额:$27.0万
-
财政年份:2021
-
负责人:LOUISA A STARK
-
依托单位:
Engineering Solutions for Better Health: Genetic Technology and Biomedical Engineering for Secondary Classrooms
-
批准号:10397480
-
项目类别:
-
资助金额:$27.0万
-
财政年份:2021
-
负责人:LOUISA A STARK
-
依托单位:
Engineering Solutions for Better Health: Genetic Technology and Biomedical Engineering for Secondary Classrooms
-
批准号:10216808
-
项目类别:
-
资助金额:$27.0万
-
财政年份:2021
-
负责人:LOUISA A STARK
-
依托单位:
Engaging All of Us for Effective Precision Medicine
-
批准号:10663556
-
项目类别:
-
资助金额:$193.76万
-
财政年份:2019
-
负责人:LOUISA A STARK
-
依托单位:
Engaging All of Us for Effective Precision Medicine
-
批准号:10794143
-
项目类别:
-
资助金额:$193.76万
-
财政年份:2019
-
负责人:LOUISA A STARK
-
依托单位:
Engaging All of Us for Effective Precision Medicine
-
批准号:10457024
-
项目类别:
-
资助金额:$184.52万
-
财政年份:2019
-
负责人:LOUISA A STARK
-
依托单位:
Engaging All of Us for Effective Precision Medicine
-
批准号:10162869
-
项目类别:
-
资助金额:$201.48万
-
财政年份:2019
-
负责人:LOUISA A STARK
-
依托单位:
GENES AND MICROBES: NGSS-ALIGNED CURRICULA FOR SECONDARY SCIENCE
-
批准号:10401201
-
项目类别:
-
资助金额:$5.4万
-
财政年份:2016
-
负责人:LOUISA A STARK
-
依托单位:
NIH SciEd Conference
-
批准号:9394043
-
项目类别:
-
资助金额:$7.5万
-
财政年份:2016
-
负责人:LOUISA A STARK
-
依托单位:
NIH SciEd Conference
-
批准号:8986050
-
项目类别:
-
资助金额:$7.5万
-
财政年份:2016
-
负责人:LOUISA A STARK
-
依托单位:
Your Body's Microbial Ecosystem: Web-based Curriculum for Secondary Science
-
批准号:8270448
-
项目类别:
-
资助金额:$22.94万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
Inside Your Body: Web-based Curricula for Secondary Science
-
批准号:8492196
-
项目类别:
-
资助金额:$24.57万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
The Neuroscience of Our Senses
-
批准号:8328910
-
项目类别:
-
资助金额:$26.23万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
The Neuroscience of Our Senses
-
批准号:8507704
-
项目类别:
-
资助金额:$24.49万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
Inside Your Body: Web-based Curricula for Secondary Science
-
批准号:8841842
-
项目类别:
-
资助金额:$24.51万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
The Neuroscience of Our Senses
-
批准号:8715755
-
项目类别:
-
资助金额:$24.98万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
The Neuroscience of Our Senses
-
批准号:8257049
-
项目类别:
-
资助金额:$27.0万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
Your Body's Microbial Ecosystem: Web-based Curriculum for Secondary Science
-
批准号:8466280
-
项目类别:
-
资助金额:$13.12万
-
财政年份:2011
-
负责人:LOUISA A STARK
-
依托单位:
Inside Your Body: Web-based Curricula for Secondary Science
-
批准号:8661800
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项目类别:
-
资助金额:$24.33万
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财政年份:2011
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负责人:LOUISA A STARK
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依托单位:
海外基金