Engaging All of Us for Effective Precision Medicine

犹他大学及其社区合作伙伴将带来经验和专业知识的结合，非常适合 为我们所有人的研究计划开发和评估有影响力的参与。提供的详细信息中的主要亮点 在本提案的其他部分： 犹他大学遗传学学习中心(GSLC) ·18人的多才多艺团队，兼具科学、教育、科学和健康写作、可视化和 评估专业知识 ·在使用基于社区的参与式设计方法编制材料方面有20年的经验，包括 与代表不足的社区 ·使复杂科学--包括遗传学、基因组学和个性化医学--变得容易理解的专家 非专家，重点关注5-10级、患者、公众和提供者 ·开发数字、体验式和多文化材料的获奖创造性方法 ·Learn.Genetics和Teach.Genetics的开发商，这是世界上使用率最高的生命科学教育网站 ·严格的评估方法，用于评估我们开发的材料的有效性并反复改进 ·热衷于我们的使命，即让每个人都更容易理解科学和健康 社区合作伙伴 犹他州社区面孔(CFU) ·5个不同社区组织、犹他州卫生部和 犹他大学，成立于2009年；每个社区领袖领导着一个由其他组织组成的网络 ·致力于改善非洲难民/移民、非裔美国人、美国印第安人/阿拉斯加原住民的健康， 西班牙裔/拉丁裔(拉丁裔)和太平洋岛民社区 ·从开发侧重于遗传学和健康的教育材料和方案的项目开始 ·在以社区为基础的参与式设计和共同创建材料、方案和研究研究方面经验丰富 平等的犹他州 ·寻求确保女同性恋者、男同性恋者、双性恋者、变性人和同性恋犹他州人及其家人的平等权利和保护 ·与CFU、研究人员和CCET合作进行研究 犹他州临床与翻译科学中心(CCTS)社区协作与参与组(CCET) ·敏锐地促进学术与社区的伙伴关系；10年经验 ·擅长与社区领袖、组织和成员建立信任关系 ·在整个项目中支持多方向学习 ·在地方、州、区域和国家各级发展和维持关系，重点放在 代表不足的群体 治疗游戏和应用实验室(GAPP实验室)，娱乐艺术与工程项目(EAE)，犹他大学(EAE) ·世界顶级游戏开发项目之一；理学士和理科硕士学位 ·GAPP实验室让研究生参与开发与健康相关的游戏和应用程序 ·在GSLC和EAE/GAPP实验室之间建立合作，以开发数字项目

The University of Utah and its community partners will bring a combination of experience and expertise that is well-suited to developing and evaluating impactful engagements for the All of Us Research Program. Key highlights from the details provided elsewhere in this proposal: Genetic Science Learning Center (GSLC) at the University of Utah • Multi-talented team of 18 with a combination of science, education, science and health writing, visualization, and evaluation expertise • 20 years of experience in using community-based participatory design approaches to develop materials, including with underrepresented communities • Experts in making complex science—including genetics, genomics, and personalized medicine—understandable for non-experts, with a focus on grade 5-10, patients, the public, and providers • Award-winning, creative approaches to developing digital, experiential, and multicultural materials • Developers of Learn.Genetics and Teach.Genetics, the most highly used life-science education websites in the world • Rigorous evaluation methods used to assess the efficacy of and iteratively improve materials we develop • Passionate about our mission of making science and health easy for everyone to understand Community Partners Community Faces of Utah (CFU) • Equitable collaborative among leaders of 5 diverse community organizations, the Utah Department of Health, and the University of Utah, established in 2009; each community leader leads a network of other organizations • Committed to improving health in the African refugee/immigrant, African American, American Indian/Alaskan Native, Hispanic/Latino (Latinx), and Pacific Islander communities • Began with projects to develop educational materials and programs focused on genetics and health • Experienced in community-based, participatory design and co-creation of materials, programs, and research studies Equality Utah • Seeks to secure equal rights and protections for lesbian, gay, bisexual, transgender & queer Utahns and their families • Has collaborated with CFU, researchers and CCET in conducting research studies Community Collaboration & Engagement Team (CCET) of the Utah Center for Clinical & Translational Science (CCTS) • Sensitively facilitates academic-community partnerships; 10 years of experience • Skilled at building trusting relationships with community leaders, organizations and members • Supports multi-directional learning throughout projects • Has developed and maintains relationships at the local, state, regional and national levels with a strong focus on underrepresented groups Therapeutic Games and Apps Lab (GApp Lab), Entertainment Arts & Engineering Program (EAE), University of Utah (EAE) • One of the top game development programs in the world; BS and MS degrees • GApp Lab involves graduate students in developing health-related games and apps • Established collaboration between GSLC and EAE/GApp Lab for developing digital engagements