Research Support for Underrepresented Alzheimer's Caregivers

60岁后造成疾病负担的主要因素之一是痴呆症，最常见的是 阿尔茨海默病的神经学状况。这种疾病的表现导致需要援助。 具有如厕、洗澡、记忆、重新定向、安全和许多其他需求。全球范围内对未支付的需求 愿意并有能力为目前生活到深夜的成年人提供所需的高技能服务的照顾者 患有阿尔茨海默病并发症的人有3980万人，而且这个数字还在增加。 德克萨斯大学奥斯汀分校护理学院，研究人员特蕾西·哈里森博士(PI)和J博士 泰勒·哈登(Co-I)提交R13拨款申请，申请会议资金(2019)，以促进照看 照顾阿尔茨海默病和其他相关痴呆症的人数不足的人的需求 在国家哈特福德老年护理卓越中心(NHCGNE)会议期间。这个 NHCGNE是一个有18年历史的组织，建立在成员共同利益的基础上，由护理组成 组织和其他机构，主要设在大学内。这笔赠款的具体目的是 申请是提供一个照顾会议，卫星到美国老年学会(GSA) 会议将主办国家适应行动方案峰会，该会议旨在满足国家护理需求 阿尔茨海默氏症照顾者的干预。我们的会议将在NAPA开始的兴奋基础上再接再厉，推动 更深入地探索认知评估技能，并加强护理知识的传播 来自不同背景的学生，与会者以及390万名提供护理的专业护士 美国照顾者被定义为参与个人医疗或日常行动的无偿个人 他们要么是老年人，要么是残疾人，要么在某种程度上需要定期援助。资金将支持2019年 会议的主题是照顾多样性，广义上定义多样性是指从显示的群体到 在生物医学、临床、行为和社会科学领域，包括个人，在全国范围内代表性不足 来自代表性不足的种族/族裔群体、残疾人和/或弱势群体 背景(美国国立卫生研究院，2018年)。创新体现在研究中代表不足的照顾者的话题上， 培养和联系早期和后期职业研究人员的过程以及评估方法。 交付成果包括一份特刊出版物，在博客上发布主题思想，增加NIA 提交的材料跟踪了NIH记者会议后的情况，以及知识和技能水平的整体增长。 对公众健康的好处将通过加强护理实践直接实现。

One of the leading contributors to burden of disease after the age of 60 is dementia, most commonly the neurologic condition of Alzheimer’s disease. The manifestations of the disease result in the need for assistance with toileting, bathing, memory, reorientation, safety, and many other needs. The worldwide demand for unpaid caregivers willing and able to provide the highly skilled services needed by the adults currently living into late life with the complications of Alzheimer’s disease is 39.8 million, and that number is increasing. The University of Texas at Austin School of Nursing, the investigators, Dr. Tracie Harrison, (PI) and Dr. J Taylor Harden (Co-I) submit an R13 grant application for conference funding, (2019) to promote the caregiving needs of underrepresented people caring for people with Alzheimer’s disease and other related dementias during the National Hartford Center of Gerontological Nursing Excellence (NHCGNE) conference. The NHCGNE is an 18-year organization built on the combined interests of the membership, comprised of nursing organizations and other institutions, primarily situated within universities. The specific purpose of this grant application is to provide a caregiving conference, satellite to The Gerontological Society of America (GSA) conference that will bookend the NAPA Summit, which is designed to meet the National need for caregiving interventions by Alzheimer’s caregivers. Our conference will build on excitement begun by NAPA, push a deeper exploration of cognitive assessment skills, and enhance the diffusion of caregiving knowledge to students from diverse backgrounds, conferees as well as the 3.9 million professional nurses providing care in the U.S. Caregiver is defined as an unpaid individual involved with the medical or routine actions of a person who is either older, disabled, or in some way in need of regular assistance. Funding will support the 2019 conference with a theme of Caregiving Diversity, broadly defining diversity as individuals from groups shown to be nationally underrepresented in the biomedical, clinical, behavioral and social sciences, including individuals from underrepresented racial/ethnic groups, individuals with disabilities and/or from disadvantaged backgrounds (NIH, 2018). Innovation is seen in the topic of underrepresented caregivers in research, processes of educating and connecting early and later career researchers as well as the evaluation methods. The deliverables include a special issue publication, thematic distribution of ideas over a blog, increased NIA submissions tracked post-conference in NIH RePorter, and an overall increase in knowledge and skill level. The benefit to public health will be directly actualized through enhanced caregiving practice.