Scaling up access and usability of smartphone tools for reporting chemical biomonitoring results

扩大用于报告化学生物监测结果的智能手机工具的访问和可用性

• 批准号: 9917777
• 负责人: JULIA Green BRODY
• 金额: $ 18.76万
• 依托单位: SILENT SPRING INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-04-17 至 2022-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9917777
• 关键词: Address; Area; Aromatic Polycyclic Hydrocarbons; Back; Behavior; Biological Monitoring; Blood; Cellular Phone; Chemical Exposure; Chemicals; Color; Communication; Communities; Computer software; Curiosities; Data; Development; Educational Models; Educational process of instructing; Emotional; Environmental Health; Ethics; Feedback; Funding; Goals; Graph; Health; Health Sciences; Individual; Internet; Journals; Knowledge; Learning; Low income; Measurable; Measurement; Measures; Methods; Modernization; National Institute of Environmental Health Sciences; Outcome; Participant; Phenols; Pre-Post Tests; Pregnancy; Production; Professional Meetings and Conferences; Public Health; Publications; Puerto Rico; Reading; Reporting; Research; Research Ethics; Research Personnel; Research Support; San Francisco; Science; Self Efficacy; Shapes; Signal Transduction; Social Sciences; Software Engineering; Software Framework; Source; Superfund; Tablet Computer; Telephone; Testing; Tissues; Translating; Translational Research; Translations; Update; Urine; Visualization software; cohort; dashboard; data to knowledge; data visualization; design; digital; environmental chemical; environmental justice; health literacy; improved; innovation; insight; interest; method development; programs; recruit; response; scale up; skills; study population; tool; usability

Biomonitoring measurements in blood, urine, and other tissues are crucial for studies to understand the effects of environmental chemicals on health. Participants almost always want to learn their own results, and modern ethics statements support their right-to-know. In response, more studies are returning personal results for growing numbers of chemicals, even if health effects are uncertain. Research to evaluate the outcomes in these studies shows that report-back encourages recruitment and retention, leads researchers to new translational insights about their data, and increases environmental health literacy for participants (EHL, the ability to understand and act on knowledge to protect health). Participants do not become overly worried. Thus, new tools to scale up production of personalized reports benefit both researchers and study participants. The Digital Exposure Report-Back Interface (DERBI) is a tested software framework for efficiently producing reports for print, computer/tablet, or smartphone. However, two barriers limit its scalability and usability. First, it currently requires researchers to have advanced programming skills, which most teams lack. Second, smartphone reports are needed for low-income communities where phone is the primary access to the internet, and the beta smartphone version requires additional development. This methods-development project addresses these gaps by expanding both the researcher- and study-participant functionality of DERBI. Aim 1 will increase access to report-back by building an easy-to-use dashboard (interface), so any researcher can use DERBI to visualize personal data and create reports without programming skills. Five NIEHS-supported teams – each composed of a researcher and a community partner -- will provide input to design the dashboard and then user-test it with their own data, which includes measurements of polycyclic aromatic hydrocarbons, environmental phenols, and highly fluorinated substances (PFAS), among others. Researchers will be able to visualize their data to gain insights and tailor reports to their study population. Aim 2 will develop, field, and evaluate smartphone reports as a tool for growing environmental health literacy among cohort participants. Smartphone DERBI has been deployed in beta version in just one study, PROTECT in Puerto Rico. This project will use feedback from PROTECT and user-test a new tutorial feature to engage curiosity and support lower-EHL users in reading their results. We will user-test and deploy the improved smartphone report in Chemicals in Our Bodies, a diverse pregnancy cohort in the San Francisco area. Using quantitative pre- and post-tests, we will assess participant learning, emotional response, and exposure-related behavior. This project will create and actively disseminate a free software package for any researcher to generate high-quality, biomonitoring reports on smartphone, using methods that support environmental health literacy in vulnerable communities. By developing communications about chemical exposures, it will immediately advance translation of exposure science to improve public health.

血液、尿液和其他组织中的生物监测测量对于研究了解这些影响至关重要。 环境化学品对健康的影响。参与者几乎总是想要了解自己的结果，而且是现代的 道德声明支持他们的知情权。作为回应，更多的研究正在返回个人结果 尽管对健康的影响尚不确定，但化学品的数量仍在增加。评估研究结果的研究 这些研究表明，汇报鼓励招聘和留住，引导研究人员进入新的 对其数据的翻译洞察力，并提高参与者的环境健康素养(EHL、 理解知识并采取行动以保护健康的能力)。参与者不会变得过于担心。因此， 扩大个性化报告制作规模的新工具使研究人员和研究参与者都受益。这个 数字曝光报告-返回接口(DERBI)是用于高效生成报告的经过测试的软件框架 适用于印刷品、计算机/平板电脑或智能手机。然而，有两个障碍限制了它的可扩展性和可用性。首先，它 目前要求研究人员拥有高级编程技能，而大多数团队缺乏这一技能。第二, 低收入社区需要智能手机报告，因为手机是访问互联网的主要途径， 而测试版的智能手机还需要进一步的开发。本方法-开发项目 通过扩展DERBI的研究人员和研究参与者的功能来解决这些差距。目标1 将通过构建易于使用的仪表板(界面)来增加对报告的访问，因此任何研究人员都可以 使用Derbi可视化个人数据并创建报告，无需编程技能。支持五个NIEHS 团队--每个团队由一名研究人员和一名社区合作伙伴组成--将提供设计仪表板的意见 然后用他们自己的数据进行用户测试，其中包括对多环芳烃的测量， 环境酚和高度氟化物质(PFAS)等。研究人员将能够 可视化他们的数据以获得洞察力，并根据他们的研究人群定制报告。目标2将开发、现场和 评估智能手机报告作为在队列参与者中提高环境健康素养的工具。 仅在波多黎各进行的一项名为Protect的研究中，智能手机Derbi就被部署在测试版中。这 项目将使用来自保护的反馈和用户测试新的教程功能来激发好奇心和支持 更低的EHL用户阅读他们的结果。我们将在以下位置进行用户测试和部署改进的智能手机报告 我们体内的化学物质，旧金山地区的一个不同的怀孕队列。使用定量预置和 测试后，我们将评估参与者的学习、情绪反应和与暴露相关的行为。这个项目 将创建并积极传播免费软件包，供任何研究人员生成高质量的、 智能手机上的生物监测报告，使用支持弱势群体环境健康素养的方法 社区。通过发展关于化学暴露的交流，它将立即推进 翻译暴露科学以改善公众健康。