Refining a Driving Cessation Management Intervention for Person with Dementia and their Family Caregivers: CarFreeMe

项目概要/摘要 阿尔茨海默病患病期间丧失驾驶能力以及与阿尔茨海默病相关的疾病 痴呆症（AD/ADRD）可能会对身份感以及独立性和描述性产生不利影响 研究强调需要采取更加个性化的干预方法，强调 关系和支持、家庭动态、悲伤和社区访问选项。然而，仍然有少数 严格设计或有效的干预措施，帮助家庭应对戒烟挑战。 澳大利亚昆士兰大学（UQ）的研究人员开发出一种驾驶停止原型机 针对 AD/ADRD 患者及其家庭护理人员的干预措施称为“CarFreeMe”。 CarFreeMe 是一个七 模块程序可以灵活地亲自或通过电话交付，目前正在评估 澳大利亚。拟议的 R21 将以明尼苏达大学之间的国际合作为特色 和昆士兰大学将在美国定制并研究 CarFreeMe 的新颖改编方案的可行性，以帮助患有以下疾病的人 AD/ADRD 及其家庭护理人员以联合方式管理驾驶停止过渡。具体 目标是： 1) 为 20 名 AD/ADRD 患者及其护理人员开发和修订 CarFreeMe 美国将采用收敛并行混合方法设计来检查 CarFreeMe 的管理 在第一阶段的 3 个月内，对 20 名家庭护理人员和 AD/ADRD 患者进行了调查。研究结果将有助于 完善 CarFreeMe，特别注重为美国用户定制内容； 2) 对修订后的版本进行试点测试 6 个月内的 CarFreeMe 版本。将利用顺序解释性混合方法设计来 第二阶段试点测试 CarFreeMe。我们将招募 50 名患有 AD/ADRD 的人和家庭看护者二人组 参与为期 6 个月的干预。我们将确定 CarFreeMe 是否执行为 预期的，并且在 6 个月内被认为是可行的、可接受的和有用的。识别具有以下特征的人： 社区中的 AD/ADRD 和家庭护理人员正在努力推动戒烟并提高获得服务的机会 在此护理过渡期间提供咨询的专业人员提出了多项国家建议。如果 成功后，拟议的 R21 将为 CarFreeMe 进行后续随机对照评估和 后来作为一种灵活的、急需的基于证据的资源，医疗保健系统和其他提供者可以 在戒酒过渡期间和之后为家庭提供帮助。

Project Summary/Abstract The loss of one’s ability to drive during the course of Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) may adversely influence sense of identity as well as independence, and descriptive research has emphasized the need for more individualized intervention approaches that emphasize relationships and support, family dynamics, grief, and community access options. However, there remain few rigorously designed or effective interventions that assist families navigate the challenges of driving cessation. Researchers from the University of Queensland (UQ) in Australia have developed a prototype driving cessation intervention for persons with AD/ADRD and their family caregivers called “CarFreeMe.” CarFreeMe is a seven- module program that is flexibly delivered either in-person or via telephone and is currently under evaluation in Australia. This proposed R21 will feature an international collaboration between the University of Minnesota and UQ to tailor and examine the feasibility of a novel adaption of CarFreeMe in the U.S to assist persons with AD/ADRD and their family caregivers manage the driving cessation transition in joint fashion. The Specific Aims are: 1) to develop and revise CarFreeMe among 20 persons with AD/ADRD and their caregivers in the U.S. A convergent parallel mixed methods design will be utilized to examine the administration of CarFreeMe for 20 family caregivers and persons with AD/ADRD over a 3-month period in Phase I. The findings will help to refine CarFreeMe, with a particular emphasis on tailoring the content for U.S. users; and 2) pilot-test a revised version of CarFreeMe over a 6-month period. A sequential explanatory mixed methods design will be utilized to pilot test CarFreeMe in Phase II. We will enroll 50 person with AD/ADRD and family caregiver dyads to participate in the intervention over a 6-month period. We will determine whether CarFreeMe is carried out as intended and is deemed feasible, acceptable, and useful over a 6-month period. Identifying persons with AD/ADRD and family caregivers in the community struggling with driving cessation and enhancing access to professionals who offer consultation during this care transition address multiple national recommendations. If successful, the proposed R21 will position CarFreeMe for a subsequent randomized controlled evaluation and later as a flexible, much-needed evidence-based resource that healthcare systems and other providers could offer families during and after the driving cessation transition.