The Residential Care Transition Module

住院护理过渡模块

• 批准号: 10168229
• 负责人: JOSEPH E. GAUGLER
• 金额: $ 26.25万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-06-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10168229
• 关键词: Address; Administrative Supplement; Admission activity; Alzheimer' s Disease; Alzheimer' s disease related dementia; Assisted Living Facilities; Buffers; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregiver support; Caregivers; Caring; Clinical Research; Collection; Communication; Communities; Competence; Consultations; Control Groups; Coping Skills; Counseling; Data; Dementia; Dementia caregivers; Emotional; Enrollment; Environment; Evaluation; Family; Family Caregiver; Family member; Health; Impaired cognition; Individual; Institutionalization; Intervention; Interview; Mental Depression; Mental Health; Methods; Modeling; Nursing Homes; Outcome; Parents; Participant; Personal Satisfaction; Persons; Preventive; Randomized; Randomized Controlled Trials; Reporting; Research; Residential Treatment; Role; Self Efficacy; Services; Stress; Structure; Surveys; Telephone; Translating; Treatment/Psychosocial Effects; Visit; care giving burden; care recipients; coping; depressive symptoms; design; effective intervention; emotional distress; experience; family caregiving; health data; improved; insight; instrumental activity of daily living; interest; longitudinal analysis; longitudinal dataset; memory care; novel; pandemic disease; parent grant; psychoeducation; psychological distress; psychosocial; residential care facility; response; skills; stressor; success; symposium; therapy design; treatment as usual; treatment group; trial design; usual care arm

Parent Study Abstract Emerging research on family caregiving and institutionalization has found that families do not disengage from care responsibilities following relatives’ admissions to residential long-term care settings. Families instead remain involved in a spectrum of care activities ranging from instrumental activities of daily living to emotional support. Perhaps for these reasons, a number of studies have noted that caregiving stress, depression, or other key outcomes remain stable or sometimes increase following residential long-term care (RLTC) entry for certain types of caregivers. A few interventions have attempted to increase family involvement after institutionalization, but no rigorous studies have demonstrated that these interventions are effective in helping families navigate transitions to RLTC environments. The Residential Care Transition Module (RCTM) provides 6 formal sessions of consultation (one-to-one and family sessions) over a 4-month period to those family caregivers who have admitted a relative to a RLTC setting. In this randomized controlled trial, family members who have admitted a cognitively impaired relative to a RLTC setting will be randomly assigned to the RCTM [(n = 120)] or a usual care control condition [(n = 120)]. A mixed methods analysis will be used to pursue the following aims: Specific Aim 1) Assess whether the RCTM yields statistically significant reductions in family members’ primary subjective stress and negative mental health outcomes; Specific Aim 2) Determine whether family members who receive the RCTM will indicate statistically significant decreases in secondary role strains over a 12-month period when compared to usual care controls; Specific Aim 3) Determine whether RCTM family members report statistically significant decreases in residential care stress when compared to family members in the usual care control group; and Specific Aim 4) Delineate the mechanism of action of RCTM under conditions of high and low success by “embedding” qualitative components (30 semi-structured interviews) at the conclusion of the 12-month evaluation. The proposed project will fill an important clinical and research gap by evaluating a psychosocial intervention designed for families following RLTC placement that determines whether and how the RCTM can help families better navigate the residential care transitions of cognitively impaired relatives.

家长研究摘要 关于家庭照料和制度化的新研究发现，家庭并不脱离 在亲属入住寄宿长期护理机构后的护理责任。而是家庭 参与一系列护理活动，从日常生活的工具性活动到情感活动 支持。也许出于这些原因，许多研究已经注意到，照顾他人的压力、抑郁或 其他关键结果在进入住院长期护理(RLTC)后保持稳定或有时增加 某些类型的照顾者。一些干预措施试图在以下情况下增加家庭参与 制度化，但没有严格的研究表明这些干预措施在帮助 族可以导航到RLTC环境的过渡。 住宿护理过渡模块(RCTM)提供6个正式的咨询会议(一对一和 家庭会议)在4个月期间向那些接纳了RLTC亲属的家庭照顾者 布景。在这项随机对照试验中，收治认知障碍患者的家庭成员 RLTC设置将被随机分配给RCTM[(n=120)]或普通护理控制条件[(n=120)]。 将使用混合方法分析以追求以下目标：具体目标1)评估是否 RCTM在统计上显著减少了家庭成员的主要主观压力和负性 心理健康结果；具体目标2)确定接受RCTM的家庭成员是否将 表明在12个月期间，次要角色压力在统计上显著低于 日常护理控制；具体目标3)确定RCTM家庭成员报告是否具有统计学意义 与日常护理对照组的家庭成员相比，住院护理压力有所减少；以及 具体目标4)勾勒出RCTM在成败高低条件下的作用机制 在12个月结束时“嵌入”定性成分(30次半结构化访谈) 评估。拟议的项目将通过评估心理社会因素来填补一个重要的临床和研究空白。 为安置RLTC后的家庭设计的干预措施，确定RCTM是否以及如何 帮助家庭更好地适应认知障碍亲属的寄宿护理过渡。

项目成果

Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study.

• DOI: 10.1093/geroni/igad034
• 发表时间: 2023
• 期刊: INNOVATION IN AGING
• 影响因子: 7
• 作者: Mitchell, Lauren L.;Horn, Brenna;Stabler, Henry;Birkeland, Robyn W.;Peterson, Colleen M.;Albers, Elle A.;Gaugler, Joseph E.
• 通讯作者: Gaugler, Joseph E.

Caring for a Relative With Dementia in Long-Term Care During COVID-19.

• DOI: 10.1016/j.jamda.2021.11.026
• 发表时间: 2022-03
• 期刊: Journal of the American Medical Directors Association
• 影响因子: 7.6
• 作者: Mitchell LL;Albers EA;Birkeland RW;Peterson CM;Stabler H;Horn B;Cha J;Drake A;Gaugler JE
• 通讯作者: Gaugler JE

Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.

• DOI: 10.1177/0898264320963588
• 发表时间: 2021-01
• 期刊: Journal of aging and health
• 影响因子: 2.8
• 作者: Zmora R;Statz TL;Birkeland RW;McCarron HR;Finlay JM;Rosebush CE;Gaugler JE
• 通讯作者: Gaugler JE

A Qualitative Analysis of Mechanisms of Benefit in the Residential Care Transition Module: A Telehealth Intervention for Caregivers of Relatives With Dementia Living in Residential Long-Term Care.

• DOI: 10.1177/00469580231217981
• 发表时间: 2023-01
• 期刊: INQUIRY-THE JOURNAL OF HEALTH CARE ORGANIZATION PROVISION AND FINANCING
• 影响因子: 1.7
• 作者: Albers, Elizabeth A.;Birkeland, Robyn W.;Louwagie, Katie W.;Yam, Hawking;Baker, Zachary G.;Mittelman, Mary S.;Gaugler, Joseph E.
• 通讯作者: Gaugler, Joseph E.

Reimagining Family Involvement in Residential Long-Term Care.

• DOI: 10.1016/j.jamda.2021.12.022
• 发表时间: 2022-03
• 期刊: Journal of the American Medical Directors Association
• 影响因子: 7.6
• 作者: Gaugler JE;Mitchell LL
• 通讯作者: Mitchell LL