The Residential Care Transition Module

住院护理过渡模块

• 批准号: 10168229
• 负责人: JOSEPH E. GAUGLER
• 金额: $ 26.25万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-06-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10168229
• 关键词: Address; Administrative Supplement; Admission activity; Alzheimer' s Disease; Alzheimer' s disease related dementia; Assisted Living Facilities; Buffers; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregiver support; Caregivers; Caring; Clinical Research; Collection; Communication; Communities; Competence; Consultations; Control Groups; Coping Skills; Counseling; Data; Dementia; Dementia caregivers; Emotional; Enrollment; Environment; Evaluation; Family; Family Caregiver; Family member; Health; Impaired cognition; Individual; Institutionalization; Intervention; Interview; Mental Depression; Mental Health; Methods; Modeling; Nursing Homes; Outcome; Parents; Participant; Personal Satisfaction; Persons; Preventive; Randomized; Randomized Controlled Trials; Reporting; Research; Residential Treatment; Role; Self Efficacy; Services; Stress; Structure; Surveys; Telephone; Translating; Treatment/Psychosocial Effects; Visit; care giving burden; care recipients; coping; depressive symptoms; design; effective intervention; emotional distress; experience; family caregiving; health data; improved; insight; instrumental activity of daily living; interest; longitudinal analysis; longitudinal dataset; memory care; novel; pandemic disease; parent grant; psychoeducation; psychological distress; psychosocial; residential care facility; response; skills; stressor; success; symposium; therapy design; treatment as usual; treatment group; trial design; usual care arm

Parent Study Abstract Emerging research on family caregiving and institutionalization has found that families do not disengage from care responsibilities following relatives’ admissions to residential long-term care settings. Families instead remain involved in a spectrum of care activities ranging from instrumental activities of daily living to emotional support. Perhaps for these reasons, a number of studies have noted that caregiving stress, depression, or other key outcomes remain stable or sometimes increase following residential long-term care (RLTC) entry for certain types of caregivers. A few interventions have attempted to increase family involvement after institutionalization, but no rigorous studies have demonstrated that these interventions are effective in helping families navigate transitions to RLTC environments. The Residential Care Transition Module (RCTM) provides 6 formal sessions of consultation (one-to-one and family sessions) over a 4-month period to those family caregivers who have admitted a relative to a RLTC setting. In this randomized controlled trial, family members who have admitted a cognitively impaired relative to a RLTC setting will be randomly assigned to the RCTM [(n = 120)] or a usual care control condition [(n = 120)]. A mixed methods analysis will be used to pursue the following aims: Specific Aim 1) Assess whether the RCTM yields statistically significant reductions in family members’ primary subjective stress and negative mental health outcomes; Specific Aim 2) Determine whether family members who receive the RCTM will indicate statistically significant decreases in secondary role strains over a 12-month period when compared to usual care controls; Specific Aim 3) Determine whether RCTM family members report statistically significant decreases in residential care stress when compared to family members in the usual care control group; and Specific Aim 4) Delineate the mechanism of action of RCTM under conditions of high and low success by “embedding” qualitative components (30 semi-structured interviews) at the conclusion of the 12-month evaluation. The proposed project will fill an important clinical and research gap by evaluating a psychosocial intervention designed for families following RLTC placement that determines whether and how the RCTM can help families better navigate the residential care transitions of cognitively impaired relatives.

家长研究摘要 关于家庭照顾和收容的新兴研究发现，家庭并没有脱离 亲属入住长期居住护理机构后的护理责任。家庭代替 继续参与一系列护理活动，从日常生活的工具性活动到情感活动 支持。也许由于这些原因，许多研究指出，照顾压力、抑郁或 在进入长期住院护理 (RLTC) 后，其他关键结果保持稳定或有时有所增加 某些类型的护理人员。一些干预措施试图增加家庭参与 制度化，但没有严格的研究表明这些干预措施能有效帮助 家庭如何过渡到 RLTC 环境。 住院护理过渡模块 (RCTM) 提供 6 次正式咨询会议（一对一和 家庭会议）为那些已接纳亲属进入 RLTC 的家庭护理人员提供为期 4 个月的家庭会议 环境。在这项随机对照试验中，承认有认知障碍的家庭成员 RLTC 设置将随机分配给 RCTM [(n = 120)] 或常规护理控制条件 [(n = 120)]。 将使用混合方法分析来实现以下目标： 具体目标 1) 评估是否 RCTM 在统计上显着减少了家庭成员的主要主观压力和负面情绪 心理健康结果；具体目标 2) 确定接受 RCTM 的家庭成员是否会 表明在 12 个月期间，与 常规护理控制；具体目标 3) 确定 RCTM 家庭成员是否报告具有统计显着性 与常规护理对照组的家庭成员相比，住院护理压力减轻；和 具体目标 4) 描述 RCTM 在高成功率和低成功率条件下的作用机制 在 12 个月结束时“嵌入”定性成分（30 次半结构化访谈） 评估。拟议的项目将通过评估社会心理来填补重要的临床和研究空白 为 RLTC 安置后的家庭设计的干预措施，确定 RCTM 是否以及如何能够 帮助家庭更好地应对认知障碍亲属的寄宿护理过渡。

项目成果

Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study.

• DOI: 10.1093/geroni/igad034
• 发表时间: 2023
• 期刊: INNOVATION IN AGING
• 影响因子: 7
• 作者: Mitchell, Lauren L.;Horn, Brenna;Stabler, Henry;Birkeland, Robyn W.;Peterson, Colleen M.;Albers, Elle A.;Gaugler, Joseph E.
• 通讯作者: Gaugler, Joseph E.

Caring for a Relative With Dementia in Long-Term Care During COVID-19.

• DOI: 10.1016/j.jamda.2021.11.026
• 发表时间: 2022-03
• 期刊: Journal of the American Medical Directors Association
• 影响因子: 7.6
• 作者: Mitchell LL;Albers EA;Birkeland RW;Peterson CM;Stabler H;Horn B;Cha J;Drake A;Gaugler JE
• 通讯作者: Gaugler JE

Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.

• DOI: 10.1177/0898264320963588
• 发表时间: 2021-01
• 期刊: Journal of aging and health
• 影响因子: 2.8
• 作者: Zmora R;Statz TL;Birkeland RW;McCarron HR;Finlay JM;Rosebush CE;Gaugler JE
• 通讯作者: Gaugler JE

A Qualitative Analysis of Mechanisms of Benefit in the Residential Care Transition Module: A Telehealth Intervention for Caregivers of Relatives With Dementia Living in Residential Long-Term Care.

• DOI: 10.1177/00469580231217981
• 发表时间: 2023-01
• 期刊: INQUIRY-THE JOURNAL OF HEALTH CARE ORGANIZATION PROVISION AND FINANCING
• 影响因子: 1.7
• 作者: Albers, Elizabeth A.;Birkeland, Robyn W.;Louwagie, Katie W.;Yam, Hawking;Baker, Zachary G.;Mittelman, Mary S.;Gaugler, Joseph E.
• 通讯作者: Gaugler, Joseph E.

Reimagining Family Involvement in Residential Long-Term Care.

• DOI: 10.1016/j.jamda.2021.12.022
• 发表时间: 2022-03
• 期刊: Journal of the American Medical Directors Association
• 影响因子: 7.6
• 作者: Gaugler JE;Mitchell LL
• 通讯作者: Mitchell LL