Bridging Neglect: improved access to high-quality heart health information and care for communities at risk of Chagas disease

弥合忽视：改善有恰加斯病风险的社区获得高质量心脏健康信息和护理的机会

基本信息

批准号：
9982430
负责人：
JULIA R KOEHLER
金额：
$ 14.55万
依托单位：
BOSTON CHILDREN'S HOSPITAL
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-08-01 至 2022-04-30
项目状态：
已结题

项目摘要

Summary Chagas disease is a neglected disease that affects around 3,400 individuals in Massachusetts and around 300,000 in the United States. Infection with the Chagas parasite Trypanosoma cruzi can be transmitted vertically to the child in around 5% of pregnant mothers. Efforts to address Chagas disease are nearly non- existent in the U.S. Medical professionals and at-risk communities lack awareness of the disease, which leads to cardiac death in 20-30% of the infected. Latino communities at risk for Chagas disease also have low health literacy and have experienced less educational outreach regarding other heart health factors like obesity, diabetes and smoking prevention. We are building on the Strong Hearts project in East Boston, Massachusetts, that combines community outreach and education with facilitation of screening and referral for treatment of Chagas disease. Expertise in medical library science, clinical Infectious Disease and experience in Latino community outreach and education will synergize to optimize outreach using Latino communities’ favored social media. In-person, print, visual media and web-based knowledge provision will complement smartphone messaging, leveraging well-established community partnerships. Library sciences students will gain experience in providing medical information in optimally attractive forms, with an option of nationwide dissemination.

概括查加斯病是一种被忽视的疾病，在马萨诸塞州及其周围影响约3400名个人美国300,000。可以传播chagas寄生虫锥虫锥虫的感染垂直于约5％的怀孕母亲的孩子。解决查加斯病的努力几乎是非 - 现有在美国医疗专业人士和高危社区缺乏对这种疾病的认识，导致20-30％感染的心脏死亡。拉丁美洲裔社区患有chagas病风险也有健康素养较低，对其他心脏健康因素的教育范围较少像肥胖，糖尿病和预防吸烟一样。我们正在基于东波士顿强大的心项目马萨诸塞州，将社区推广和教育与筛查和推荐的设施相结合用于治疗Chagas疾病。医学图书馆科学专业知识，临床传染病和 Latina社区外展和教育的经验将协同为使用拉丁裔优化外展社区偏爱的社交媒体。面对面，印刷，视觉媒体和基于网络的知识提供将补充智能手机消息传递，利用良好的社区合作伙伴关系。图书馆科学专业的学生将获得以最佳诱人形式提供医疗信息的经验全国传播的一种选择。