Bridging Neglect: improved access to high-quality heart health information and care for communities at risk of Chagas disease

弥合忽视：改善有恰加斯病风险的社区获得高质量心脏健康信息和护理的机会

• 批准号: 9811672
• 负责人: JULIA R KOEHLER
• 金额: $ 14.55万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-08-01 至 2022-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9811672
• 关键词: Address; Affect; Antiparasitic Agents; Arrhythmia; Awareness; Boston; Cardiac Death; Cardiac health; Caring; Cellular Phone; Cessation of life; Chagas Disease; Child; Child Support; Church; Clinical; Collaborations; Communicable Diseases; Communities; Community Outreach; Competence; Complement; Diabetes prevention; Diagnosis; Disease; Education and Outreach; Family member; Friends; Gifts; Health; Health Sciences; Health education; Heart; Hispanics; Hospital Libraries; Improve Access; Individual; Infection; International; Knowledge; Language; Latino; Learning; Librarians; Libraries; Library Science; Low income; Massachusetts; Medical; Medical Libraries; Medicine; Mentors; Modeling; New England; Newspapers; Occupational Safety; Online Systems; Parasites; Participant; Patients; Pediatric Hospitals; Persons; Pregnant Women; Primary Health Care; Printed Media; Prize; Public Health; Radio; Risk; Services; Smoking Prevention; Students; Symptoms; Time; Tissues; Trypanosoma cruzi; United States; Visit; Work; base; career; community organizations; community partnership; continuing medical education; digital; experience; flexibility; health disparity; health literacy; improved; individual patient; instructor; literacy; mathematical ability; medical schools; meetings; member; neglect; obesity prevention; outreach; patient population; professor; screening; skills; social media; teacher; visual media

Summary Chagas disease is a neglected disease that affects around 3,400 individuals in Massachusetts and around 300,000 in the United States. Infection with the Chagas parasite Trypanosoma cruzi can be transmitted vertically to the child in around 5% of pregnant mothers. Efforts to address Chagas disease are nearly non- existent in the U.S. Medical professionals and at-risk communities lack awareness of the disease, which leads to cardiac death in 20-30% of the infected. Latino communities at risk for Chagas disease also have low health literacy and have experienced less educational outreach regarding other heart health factors like obesity, diabetes and smoking prevention. We are building on the Strong Hearts project in East Boston, Massachusetts, that combines community outreach and education with facilitation of screening and referral for treatment of Chagas disease. Expertise in medical library science, clinical Infectious Disease and experience in Latino community outreach and education will synergize to optimize outreach using Latino communities’ favored social media. In-person, print, visual media and web-based knowledge provision will complement smartphone messaging, leveraging well-established community partnerships. Library sciences students will gain experience in providing medical information in optimally attractive forms, with an option of nationwide dissemination.

概括 恰加斯病是一种被忽视的疾病，影响马萨诸塞州和周边地区约 ​​3,400 人 美国有30万。恰加斯寄生虫克氏锥虫感染可以传播 大约有 5% 的孕妇会垂直向孩子。解决恰加斯病的努力几乎没有 美国的医疗专业人员和高危社区缺乏对该疾病的认识，这 导致 20-30% 的感染者心源性死亡。面临恰加斯病风险的拉丁裔社区也有 健康素养较低，并且有关其他心脏健康因素的教育宣传较少 例如肥胖、糖尿病和预防吸烟。我们正在东波士顿的 Strong Hearts 项目的基础上进行建设， 马萨诸塞州，将社区外展和教育与筛查和转诊便利结合起来 用于治疗恰加斯病。医学图书馆学、临床传染病和 拉丁裔社区外展和教育方面的经验将协同作用，以优化利用拉丁裔的外展活动 社区喜爱的社交媒体。面对面、印刷、视觉媒体和基于网络的知识提供将 利用完善的社区合作伙伴关系补充智能手机消息传递。图书馆 理科学生将获得以最具吸引力的形式提供医疗信息的经验， 全国范围内传播的选择。