Core A: Administrative Core
Core A: Administrative Core
批准号:
10229592
负责人:
Jeffrey L Neul
金额:
$22.5万
依托单位国家:
美国
项目类别:
财政年份:
2020
资助国家:
美国
项目状态:
未结题
起止时间:
2020-08-06 至 2025-05-31
关键词:
Academic Medical CentersAdvisory CommitteesAffectAreaAwarenessBasic ScienceBehavioralBindingCaregiversClinical ResearchCollaborationsCommunicationCommunication MethodsCommunitiesConsultDiagnosisDiseaseDissemination and ImplementationDown SyndromeEducationEnsureEnvironmentEventFacultyFaculty RecruitmentFamilyFundingGluesGoalsGovernmentGrantIndividualInformation DisseminationInfrastructureInstitutionIntellectual and Developmental Disabilities Research CentersIntellectual functioning disabilityInterdisciplinary StudyInterventionIntervention StudiesLeadershipLearningMethodsMissionModelingNational Institute of Child Health and Human DevelopmentNeurosciencesPoliciesPreventionProcessProductivityResearchResearch InstituteResearch PersonnelResearch Project GrantsResearch SupportResearch TrainingResourcesScienceScientistSeriesServicesStructureSurveysTestingThinkingTranslational ResearchTranslationsTravelUniversitiesVisionWorkautism spectrum disordercollegecommunity engagementcost effectivedisabilityeducational atmosphereimplementation scienceimprovedindividualized medicineinnovationlecturesmeetingsmultidisciplinarynext generationoperationpersonalized carepublic health relevancerecruitresearch and developmentsatisfactiontargeted treatmenttherapy developmenttranslational research programuptake
中文摘要
核心A提供科学领导,满足EKS NICHD对IDDRCs的总体使命,以
促进智力和发育障碍的诊断、预防、治疗和改善
(IDD)。范德比尔特肯尼迪中心(VKC)IDDRC拥有完善的运营结构和职能,
包括不断评估其领导力和监督能力,以满足不断变化的
IDD研究。因此,Core A的服务已经以一种已取得进展的方式主动发展
VKC国际数据中心50年来的技术进步。正因为如此,IDDRC已经成为一个
整合研究、培训和服务的成功模式,可实现真正的翻译研究
环境。在未来5年,IDDRC的总体目标是通过以下方式发展对IDD的精准护理
提供基础设施和科学领导,使基本发现能够快速转化为
对碘缺乏病患者的高影响力干预和治疗。为了实现这一目标,党的领导层
VKC IDDRC认识到,通过核心A进行有效的行政监督至关重要。为此,
核心A的主要目标是:(1)提供科学的领导和行政/财务监督
IDDRC的签名研究项目和研究核心,以有效满足50个国家的需求
国际发展研究中心的调查人员和70个资助的研究项目;(2)促进多学科研究,招募新的
对国际发展研究中心的研究人员,并保持一个教育环境,以吸引国际发展研究中心的调查人员、受训人员和
社区利益攸关方;以及(3)交流和传播国际发展中心的活动,目标是
不同的利益相关者受众。这三个目标使核心A能够提供总体的科学指导和
整合IDD翻译研究计划,该计划建立在VKC IDDRC在
教育、行为、神经科学和方法。更具体地说,核心A有助于促进
跨学科研究:(1)从现有教员中招募新的研究人员到我们的IDDRC
并通过招聘教员;(2)积极管理财政和其他资源,包括支持
通过IDDRC霍布斯发现和主任战略优先拨款进行的创新IDD试点研究
和管理IDDRC的空间和设施;以及(3)传达和传播与IDD有关的研究结果
给广大的IDD利益相关者社区。与当地研究人员和其他人员进行有效沟通
专业人士与公众和残疾人社区之间出色的平易近人沟通相结合
VKC IDDRC的一个标志。在接下来的5年里,我们将在现有优秀的IDDRC的基础上再接再厉
沟通服务,通过让整个
过程,并纳入传播和实施科学方法。
IDDRC的管理粘合剂,允许设置优先事项和监督
总体而言,核心A是
所有的科学工作都是
VKC IDDRC是为了满足我们改善IDD人群生活的总体使命。
英文摘要
Core A provides scientific leadership that meets the EKS NICHD’s overarching mission for the IDDRCs to
advance the diagnosis, prevention, treatment, and amelioration of intellectual and developmental disabilities
(IDD). Vanderbilt Kennedy Center (VKC) IDDRC has a well-established operational structure and function that
includes continuously evaluating its leadership and oversight to meet the needs of the changing landscape of
IDD research. As such, Core A’s services have proactively evolved in a manner that has progressed with
technological advances over the 50 years of the VKC’s IDDRC. Because of this, the IDDRC has become a
successful model of integrated research, training, and service that results in a truly translational research
environment. For the next 5 years, the IDDRC’s overarching goal is to develop precision care for IDD by
providing infrastructure and scientific leadership to enable rapid translation of basic discoveries into
high-impact interventions and treatment for people with IDD. To realize this goal, the leadership of the
VKC IDDRC recognize that effective administrative oversight through Core A is critical. To this end, the
primary aims of Core A are to: (1) provide scientific leadership and administrative/financial oversight of the
IDDRC’s Signature Research Project and research cores in order to effectively meet the needs of the 50
IDDRC investigators and 70 funded research projects; (2) facilitate multidisciplinary research, recruit new
researchers to IDDRC, and maintain an educational environment to engage IDDRC investigators, trainees, and
community stakeholders; and (3) communicate and disseminate IDDRC activities targeted to
diverse stakeholder audiences. These three Aims allow Core A to provide overall scientific direction and
integration for an IDD translational research program that builds on the VKC IDDRC’s strengths in
educational, behavioral, neuroscience and approaches. More specifically, Core A helps to facilitate
interdisciplinary research by: (1) recruiting new researchers to our IDDRC from existing faculty
and via faculty recruits; (2) proactively managing fiscal and other resources, including support for
innovative IDD pilot research through the IDDRC Hobbs Discovery and Director’s Strategic Priorities Grants
and managing IDDRC space and facilities; and (3) communicating and disseminating IDD-related findings
to the broad IDD stakeholder community. Effective communications to local researchers and other
professionals combined with outstanding lay-friendly communication with the public and disability community is
a hallmark of the VKC IDDRC. Over the next 5 years, we build upon the existing excellent IDDRC
communication services to maximize targeted audience uptake by engaging stakeholders throughout the
process and incorporating dissemination and implementation science methods.
administrative glue for the IDDRC that allows for setting priorities for and overseeing
Overall, Core A is the
all of the scientific work of
the VKC IDDRC in order to meet our overall mission of improving the lives of people IDD.
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会议论文
Core A: Administrative Core
-
批准号:10085551
-
项目类别:
-
资助金额:$21.27万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
-
批准号:10229591
-
项目类别:
-
资助金额:$136.41万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
-
批准号:10685984
-
项目类别:
-
资助金额:$135.8万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
-
批准号:10415081
-
项目类别:
-
资助金额:$135.8万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Development of a reliable, valid, and sensitive outcome measure in Rett syndrome
-
批准号:10249176
-
项目类别:
-
资助金额:$21.95万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Core A: Administrative Core
-
批准号:10685987
-
项目类别:
-
资助金额:$22.49万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Core A: Administrative Core
-
批准号:10415082
-
项目类别:
-
资助金额:$22.49万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Development of a reliable, valid, and sensitive outcome measure in Rett syndrome
-
批准号:10046248
-
项目类别:
-
资助金额:$27.51万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
-
批准号:10085550
-
项目类别:
-
资助金额:$138.76万
-
财政年份:2020
-
负责人:Jeffrey L Neul
-
依托单位:
Neurobehavioral and biochemical outcome measures in Rett syndrome rodent models
-
批准号:9980446
-
项目类别:
-
资助金额:$56.48万
-
财政年份:2016
-
负责人:Jeffrey L Neul
-
依托单位:
Neurobehavioral and biochemical outcome measures in Rett syndrome rodent models
-
批准号:9339445
-
项目类别:
-
资助金额:$62.92万
-
财政年份:2016
-
负责人:Jeffrey L Neul
-
依托单位:
Neurobehavioral and biochemical outcome measures in Rett syndrome rodent models
-
批准号:9196213
-
项目类别:
-
资助金额:$62.27万
-
财政年份:2016
-
负责人:Jeffrey L Neul
-
依托单位:
Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt University
-
批准号:9314336
-
项目类别:
-
资助金额:$130.0万
-
财政年份:2015
-
负责人:Jeffrey L Neul
-
依托单位:
Characterizing autonomic dysfunction in Rett syndrome and other MECP2 disorders
-
批准号:8422113
-
项目类别:
-
资助金额:$2.3万
-
财政年份:2010
-
负责人:Jeffrey L Neul
-
依托单位:
Characterizing autonomic dysfunction in Rett syndrome and other MECP2 disorders
-
批准号:8277807
-
项目类别:
-
资助金额:$36.22万
-
财政年份:2010
-
负责人:Jeffrey L Neul
-
依托单位:
Characterization of autonomic dysfunction in Rett syndrome & other MECP2 disorder
-
批准号:9029808
-
项目类别:
-
资助金额:$23.19万
-
财政年份:2010
-
负责人:Jeffrey L Neul
-
依托单位:
Characterization of autonomic dysfunction in Rett syndrome & other MECP2 disorder
-
批准号:8462480
-
项目类别:
-
资助金额:$34.38万
-
财政年份:2010
-
负责人:Jeffrey L Neul
-
依托单位:
Characterization of autonomic dysfunction in Rett syndrome and other MECP2 disord
-
批准号:7985962
-
项目类别:
-
资助金额:$31.85万
-
财政年份:2010
-
负责人:Jeffrey L Neul
-
依托单位:
Characterization of autonomic dysfunction in Rett syndrome and other MECP2 disord
-
批准号:8099493
-
项目类别:
-
资助金额:$30.58万
-
财政年份:2010
-
负责人:Jeffrey L Neul
-
依托单位:
Analysis of the dopamine system in Rett syndrome
-
批准号:7071289
-
项目类别:
-
资助金额:$16.8万
-
财政年份:2005
-
负责人:Jeffrey L Neul
-
依托单位:
海外基金