Implementing sexual orientation and gender identity data collection in the electronic medical record within diverse cancer care settings

项目摘要 性和性别少数(SGM)癌症预防、治疗和研究的主要障碍 生存是指医疗记录中缺乏有关性取向和性别认同(SOGI)的信息 和癌症登记处。鉴于已知的SGM癌症发病率和死亡率的危险因素 人口，包括较高的烟草使用率、饮酒率和肥胖率以及较低的癌症筛查率 在一些群体中，这种数据的缺乏阻碍了SGM个人实现公平的健康结果。 此外，未能评估临床环境中的SOGI，阻碍了提供者和工作人员在文化上提供 称职的护理。为了解决这些问题，并根据NCI管理部门的目标 P30癌症中心的补充物支持助学金，以加强性取向和性别认同 数据收集方面，本项目将重点实施国家科学院、工程院 和医学(NASEM)-弗雷德·哈钦森癌症中心(FHCC)推荐的SOGI措施。这个 该项目的目标是：(1)确定患者、提供者/工作人员、管理者和研究利益相关者之间的障碍 和癌症护理环境中SOGI数据收集的促进者；(2)量身定做SOGI数据收集 执行计划，以解决障碍和促进者，并促进工作人员关于干预措施的培训，以改进 收集这些数据；以及(3)在实施跨试点的SOGI数据收集后，评估 电子病历中数据的可行性、可接受性、适当性和完整性。这 该项目意义重大，因为它关注的是NIH定义的差异群体，他们在癌症方面没有得到足够的服务 到目前为止进行的研究，它评估了SOGI数据收集的实施情况，不仅在中央 城市综合癌症中心的枢纽，但也在服务不足的附属安全网医院 癌症护理人群。它的创新之处还在于它将为SOGI的新实现提供一个模型 数据收集，目标是在整个中心的集水区建立一个新的护理标准， 是华盛顿州的全部。

Project Summary A major impediment to research on sexual and gender minority (SGM) cancer prevention, treatment, and survivorship is the lack of information about sexual orientation and gender identity (SOGI) in medical records and cancer registries. Given what is known about risk factors for cancer incidence and mortality in SGM populations, including higher rates of tobacco use, alcohol use and obesity and lower rates of cancer screening in some groups, this lack of data is an impediment to achieving equitable health outcomes for SGM individuals. In addition, failure to assess SOGI in clinical settings prevents providers and staff from delivering culturally competent care. To address these problems, and in accordance with the goals of the NCI Administrative Supplements for the P30 Cancer Center Support Grants to Enhance Sexual Orientation and Gender Identity Data Collection, this project will focus on implementation of the National Academies of Science, Engineering and Medicine (NASEM)-recommended SOGI measures at the Fred Hutchinson Cancer Center (FHCC). The aims of the project are to: (1) identify patient, provider/staff, administrator and research-stakeholder barriers and facilitators of SOGI data collection in the cancer care setting; (2) tailor SOGI data collection implementation plans to address barriers and facilitators and facilitate staff training on interventions to improve the collection of this data; and, (3) following implementation of SOGI data collection across pilot sites, evaluate the feasibility, acceptability, appropriateness, and completeness of data in the electronic medical record. This project is significant in that it focuses on an NIH-defined disparities group that has been underserved in cancer research conducted to date, and it evaluates the implementation of SOGI data collection not only in the central hub of an urban Comprehensive Cancer Center but also at an affiliated safety-net hospital with an underserved cancer care population. It is also innovative in that it will provide a model for a novel implementation of SOGI data collection with the goal of creating a new standard of care throughout the Center’s catchment area, which is the entirety of Washington state.