Implementing sexual orientation and gender identity data collection in the electronic medical record within diverse cancer care settings

在不同癌症护理环境中的电子病历中实施性取向和性别认同数据收集

• 批准号: 10640725
• 负责人: Thomas James Lynch
• 金额: $ 15万
• 依托单位: FRED HUTCHINSON CANCER CENTER
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-01 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10640725
• 关键词: Address; Administrative Supplement; Administrator; Adoption; Alcohol consumption; Cancer Center; Cancer Center Support Grant; Caregivers; Caring; Catchment Area; Clinic; Clinical; Clinical Data; Collection; Community Outreach; Community Participation; Complement; Comprehensive Cancer Center; Computerized Medical Record; Consult; Data; Data Collection; Engineering; Ensure; Faculty; Failure; Family; Funding; Future; Gender Identity; Goals; Health; Hospitals; Incidence; Institute of Medicine (U.S.); Intake; Intervention; Interview; Lead; Malignant Neoplasms; Manuals; Measures; Medical Records; Medicine; Methods; Modeling; Obesity; Outcome; Patient Recruitments; Patients; Physician Executives; Population; Positioning Attribute; Prevention program; Principal Investigator; Process; Provider; Reach Effectiveness Adoption Implementation and Maintenance; Registries; Reporting; Research; Research Methodology; Research Personnel; Risk Factors; SEER Program; Screening for cancer; Sex Orientation; Sexual and Gender Minorities; Site; Structure; Surveys; Tobacco Use Cessation; Tobacco use; Training; United States National Academy of Sciences; United States National Institutes of Health; Universities; Washington; Work; acceptability and feasibility; anticancer research; cancer care; cancer prevention; community engagement; cultural competence; evidence base; experience; gender minority group; gender minority health; implementation evaluation; improved; innovation; lung cancer screening; mortality; neoplasm registry; novel; patient oriented; prevent; programs; ranpirnase; safety net; smoking cessation; sound; standard of care; success; survivorship; tool

Project Summary A major impediment to research on sexual and gender minority (SGM) cancer prevention, treatment, and survivorship is the lack of information about sexual orientation and gender identity (SOGI) in medical records and cancer registries. Given what is known about risk factors for cancer incidence and mortality in SGM populations, including higher rates of tobacco use, alcohol use and obesity and lower rates of cancer screening in some groups, this lack of data is an impediment to achieving equitable health outcomes for SGM individuals. In addition, failure to assess SOGI in clinical settings prevents providers and staff from delivering culturally competent care. To address these problems, and in accordance with the goals of the NCI Administrative Supplements for the P30 Cancer Center Support Grants to Enhance Sexual Orientation and Gender Identity Data Collection, this project will focus on implementation of the National Academies of Science, Engineering and Medicine (NASEM)-recommended SOGI measures at the Fred Hutchinson Cancer Center (FHCC). The aims of the project are to: (1) identify patient, provider/staff, administrator and research-stakeholder barriers and facilitators of SOGI data collection in the cancer care setting; (2) tailor SOGI data collection implementation plans to address barriers and facilitators and facilitate staff training on interventions to improve the collection of this data; and, (3) following implementation of SOGI data collection across pilot sites, evaluate the feasibility, acceptability, appropriateness, and completeness of data in the electronic medical record. This project is significant in that it focuses on an NIH-defined disparities group that has been underserved in cancer research conducted to date, and it evaluates the implementation of SOGI data collection not only in the central hub of an urban Comprehensive Cancer Center but also at an affiliated safety-net hospital with an underserved cancer care population. It is also innovative in that it will provide a model for a novel implementation of SOGI data collection with the goal of creating a new standard of care throughout the Center’s catchment area, which is the entirety of Washington state.

项目摘要 性和性别少数（SGM）癌症预防，治疗和治疗研究的主要障碍 幸存者是医疗记录中缺乏关于性取向和性别认同（SOGI）的信息 和癌症登记处。鉴于已知SGM中癌症发病率和死亡率的风险因素 包括烟草使用率、酒精使用率和肥胖率较高以及癌症筛查率较低 在某些群体中，数据的缺乏阻碍了个体生殖器残割者获得公平的健康结果。 此外，未能在临床环境中评估SOGI会妨碍提供者和工作人员在文化上提供服务。 称职的照顾。为了解决这些问题，并根据NCI行政管理的目标， P30癌症中心支持赠款的补充，以提高性取向和性别认同 数据收集，该项目将侧重于执行国家科学院，工程院， 弗雷德哈钦森癌症中心（FHCC）推荐的SOGI措施。的 该项目的目标是：（1）识别患者、提供者/工作人员、管理员和研究利益相关者的障碍 和SOGI数据收集在癌症护理环境中的促进者;（2）定制SOGI数据收集 实施计划，以解决障碍和促进因素，并促进工作人员关于干预措施的培训，以改善 收集这些数据;以及（3）在试点地点实施SOGI数据收集后，评估 电子病历中数据的可行性、可接受性、适当性和完整性。这 该项目的意义在于，它关注的是NIH定义的在癌症方面服务不足的差异组 迄今为止进行的研究，它评估了SOGI数据收集的实施情况，不仅在中央 一个城市综合癌症中心的中心，但也在附属安全网医院与服务不足 癌症护理人群。它的创新之处还在于它将为SOGI的新实现提供一个模型 数据收集的目标是在整个中心的集水区建立一个新的护理标准， 就是整个华盛顿州