Older Sexual and Gender Minority Patients with Serious Illness: Program-Building to Identify and Address Needs

患有严重疾病的老年性和性别少数患者：建立项目以确定和满足需求

基本信息

批准号：
10523705
负责人：
Aminah Jatoi
金额：
$ 14.91万
依托单位：
MAYO CLINIC ROCHESTER
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-09-01 至 2027-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10523705
关键词：
Address Advisory Committees Advocate Age Age-Years Aging Anxiety Applications Grants Award Caring Cessation of life Child Clinic Clinical Clinical Sciences Comprehensive Cancer Center Data Development Diagnosis Discrimination Disease Do Not Resuscitate Order Educational Curriculum Elderly Environment Face Family Funding General Population Goals Grant Health Personnel Healthcare Home Individual Infrastructure Inpatients Institution International Intersex Interview Leadership Learning Lesbian Gay Bisexual Lesbian Gay Bisexual Transgender Loneliness Malignant Neoplasms Mayo Clinic Cancer Center Medical Medical Staff Medicare Mental Depression Mental Health Mentors Methodology Minnesota Needs Assessment Oncologist Outcome Palliative Care Participant Pastoral Care Patient Self-Report Patients Persons Physicians Pilot Projects Positioning Attribute Principal Investigator Program Development Psychosocial Influences Publications Religion and Spirituality Request for Applications Research Research Personnel Research Proposals Resources Review Literature Risk Same-sex Series Sexual and Gender Minorities Social support Spouses Surveys Symptoms Translational Research Underserved Population United States National Institutes of Health Visit asexual base cancer therapy career career development clinical center course development data centers end of life experience family structure gender minority group improved interest intersectionality lectures minority patient multidisciplinary novel older patient palliation preference professor programs psychosocial queer recruit sexual minority men sexual minority women social social media statistics symposium symptomatology transgender two spirit

项目摘要

This NIA K07 Academic Leadership Career Award resubmission entitled, “Older Sexual and Gender Minority Patients with Serious Illness: Program-Building to Identity and Address Needs,” seeks to help these understudied and underserved groups of patients, who, in the face of advanced age and serious illness, are more likely to be single, living alone, without children, lacking in social support, and at risk for and fearful of discrimination. The applicant is a senior physician at Mayo Clinic and has a long track record of research in studying symptoms and psychosocial issues in ill patients (400+ publications), mentoring (50+ mentees + principal investigator/program director of career development program K12CA090628-20), and serving as a leader in both her home institution and nationally. This track record and these experiences are brought to this application with the goal of understanding and addressing the unmet needs of these groups of older sexual and gender minority (SGM) patients – defined by the NIH as “individuals who identify as lesbian, gay, bisexual, transgender, two-spirit, queer, and/or intersex.” A uniquely rich institutional environment that includes the Kogod Center on Aging; the Mayo Clinic Cancer Center (an NCI-designated comprehensive cancer center); a robust Center for Clinical and Translational Science (CCATS); a nationally renowned statistics and data center; the robust Mayo Clinic practice, which provides depth and breadth of clinical expertise in the management of a vast array of serious illnesses to over 1 million patients per year; and, last but not least, the 120,000+ (and growing) social media platform, Mayo Clinic Connect -- perhaps the largest such patient-centric electronic medical resource in the world -- will set the stage for the development of this programmatic infrastructure. Novel, ground-breaking research early in the grant-cycle will consist of a needs-assessment that uses both qualitative and quantitative methodology to learn the unremitting symptomatology and unrelieved psychosocial hardships of these older patients and that relies on Mayo Clinic Connect (an estimated 30% of users self-report as 65+ years of age) to reach older SGM patients anonymously and to learn confidentially about their concerns. This needs assessment will give rise to a series of annual requests for pilot grant applications aimed at young investigators. Young investigators who are awarded a pilot project will acquire mentoring from the applicant, engage in coursework, participate in a weekly seminar series, learn from a biannual visiting professor series, begin to learn to contribute to CCATS course development on older SGM patients, and further launch their careers as investigators in this field. National/international experts in their respective fields and a patient advocate will serve on an advisory committee, providing programmatic guidance over the 5-year grant cycle. These efforts are destined to establish a sustainable, funded research program to improve the lives of older SGM patients with serious illness.

NIA K07学术领导职业奖的重新提交标题为“年龄较大的性别和性别少数民族患有严重疾病的患者：为身份建设计划并满足需求，“寻求帮助这些面对高龄和严重疾病的患者群正在研究和服务不足的患者群体更有可能是单身，独自生活，没有孩子，缺乏社会支持，并有风险和担心歧视。申请人是Mayo Clinic的高级医师，在研究方面有很长的研究记录研究病患者（400多名出版物），指导（50多个梅内特+）研究符号和社会心理问题职业发展计划K12CA090628-20的首席研究员/计划主管，并担任她的家庭机构和全国的领导者。这一记录和这些经验是为此带来的应用程序的目的是理解和满足这些老年性行为的未满足需求和性别少数（SGM）患者 - 由NIH定义为“识别为女同性恋，同性恋，双性恋的人，跨性别者，两人，酷儿和/或双性恋。”包括独特的机构环境 Kogod衰老中心； Mayo临床癌症中心（NCI指定的综合癌症中心）；一个健壮的临床和转化科学中心（CCAT）；一个全国知名的统计和数据中心；强大的梅奥诊所实践，它为管理方面提供了临床专业知识的深度和广度每年有超过100万患者的大量严重疾病；最后但并非最不重要的一点是120,000多（和增长）社交媒体平台，Mayo Clinic Connect-也许是以患者为中心的最大的电子世界上的医疗资源 - 将为该程序基础架构的发展奠定基础。赠款周期初期的新颖，开创性的研究将包括一个使用两者的需求评估定性和定量方法学，以学习不懈的症状和不弥补的社会心理这些老年患者的困难，这依赖于蛋黄酱诊所连接（估计有30％的用户自我报告年龄在65岁以上）匿名与年龄较大的SGM患者联系，并自信地了解他们的关注。此需求评估将引起一系列针对飞行员赠款申请的年度请求针对年轻的调查员。被授予试点项目的年轻调查人员将从申请人，从事课程工作，参加每周开创性的系列赛，从一年一度的访问中学习教授系列，开始学习为老年SGM患者的CCAT课程开发做出贡献，进一步在该领域担任调查人员的职业。各自领域的国家/国际专家患者倡导者将在咨询委员会任职，并在5年中提供程序化指导赠款周期。这些努力注定要建立可持续资助的研究计划，以改善活着的年龄较大的SGM患者活着。