Older Sexual and Gender Minority Patients with Serious Illness: Program-Building to Identify and Address Needs

患有严重疾病的老年性和性别少数患者：建立项目以确定和满足需求

• 批准号: 10684915
• 负责人: Aminah Jatoi
• 金额: $ 14.91万
• 依托单位: MAYO CLINIC ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-01 至 2027-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10684915
• 关键词: Address; Advisory Committees; Advocate; Age Years; Aging; Anxiety; Applications Grants; Award; Caring; Cessation of life; Child; Clinic; Clinical; Clinical Sciences; Comprehensive Cancer Center; Data; Development; Diagnosis; Discrimination; Disease; Disparity; Do Not Resuscitate Order; Educational Curriculum; Elderly; Environment; Face; Family; Funding; General Population; Goals; Grant; Health Personnel; Healthcare; Home; Individual; Infrastructure; Inpatients; Institution; International; Intersex; Interview; Leadership; Learning; Lesbian Gay Bisexual; Lesbian Gay Bisexual Transgender; Loneliness; Malignant Neoplasms; Mayo Clinic Cancer Center; Medical Electronics; Medical Staff; Medicare; Mental Depression; Mental Health; Mentors; Methodology; Minnesota; Needs Assessment; Oncologist; Outcome; Palliative Care; Participant; Pastoral Care; Patient Self-Report; Patients; Persons; Physicians; Pilot Projects; Positioning Attribute; Principal Investigator; Program Development; Psychosocial Influences; Publications; Religion; Religiosity; Request for Applications; Research; Research Personnel; Research Proposals; Resources; Review Literature; Risk; Same-sex; Series; Sexual and Gender Minorities; Social support; Surveys; Symptoms; Translational Research; Underserved Population; United States National Institutes of Health; Visit; asexual; cancer therapy; career; career development; clinical center; course development; data centers; end of life; experience; family structure; gender minority group; human old age (65+); improved; interest; intersectionality; lectures; minority patient; multidisciplinary; novel; older patient; palliation; preference; professor; programs; psychosocial; queer; recruit; sexual minority men; sexual minority women; social; social media; statistics; symposium; symptomatology; transgender; two spirit

This NIA K07 Academic Leadership Career Award resubmission entitled, “Older Sexual and Gender Minority Patients with Serious Illness: Program-Building to Identity and Address Needs,” seeks to help these understudied and underserved groups of patients, who, in the face of advanced age and serious illness, are more likely to be single, living alone, without children, lacking in social support, and at risk for and fearful of discrimination. The applicant is a senior physician at Mayo Clinic and has a long track record of research in studying symptoms and psychosocial issues in ill patients (400+ publications), mentoring (50+ mentees + principal investigator/program director of career development program K12CA090628-20), and serving as a leader in both her home institution and nationally. This track record and these experiences are brought to this application with the goal of understanding and addressing the unmet needs of these groups of older sexual and gender minority (SGM) patients – defined by the NIH as “individuals who identify as lesbian, gay, bisexual, transgender, two-spirit, queer, and/or intersex.” A uniquely rich institutional environment that includes the Kogod Center on Aging; the Mayo Clinic Cancer Center (an NCI-designated comprehensive cancer center); a robust Center for Clinical and Translational Science (CCATS); a nationally renowned statistics and data center; the robust Mayo Clinic practice, which provides depth and breadth of clinical expertise in the management of a vast array of serious illnesses to over 1 million patients per year; and, last but not least, the 120,000+ (and growing) social media platform, Mayo Clinic Connect -- perhaps the largest such patient-centric electronic medical resource in the world -- will set the stage for the development of this programmatic infrastructure. Novel, ground-breaking research early in the grant-cycle will consist of a needs-assessment that uses both qualitative and quantitative methodology to learn the unremitting symptomatology and unrelieved psychosocial hardships of these older patients and that relies on Mayo Clinic Connect (an estimated 30% of users self-report as 65+ years of age) to reach older SGM patients anonymously and to learn confidentially about their concerns. This needs assessment will give rise to a series of annual requests for pilot grant applications aimed at young investigators. Young investigators who are awarded a pilot project will acquire mentoring from the applicant, engage in coursework, participate in a weekly seminar series, learn from a biannual visiting professor series, begin to learn to contribute to CCATS course development on older SGM patients, and further launch their careers as investigators in this field. National/international experts in their respective fields and a patient advocate will serve on an advisory committee, providing programmatic guidance over the 5-year grant cycle. These efforts are destined to establish a sustainable, funded research program to improve the lives of older SGM patients with serious illness.

NIA K07学术领导力职业生涯奖重新提交，标题为 重病患者：建立身份识别和满足需求的计划“旨在帮助这些 研究不足和服务不足的患者群体，他们面对高龄和严重疾病， 更有可能是单身，独居，没有孩子，缺乏社会支持，面临和害怕 歧视。申请者是梅奥诊所的高级医生，有长期的研究记录 研究病人的症状和心理社会问题(400多篇出版物)、辅导(50多名被辅导者+ 职业发展计划首席研究员/计划主任K12CA090628-20)，并担任 在她的家乡和全国都是领导者。这一记录和这些经验被带到了 应用程序，目的是了解和解决这些老年性行为群体未得到满足的需求 和性别少数(SGM)患者-NIH将其定义为“认同为女同性恋者、男同性恋者、双性恋者 变性人、双性人、同性恋者和/或双性人。独特的丰富的制度环境，包括 Kogoid老龄中心；梅奥诊所癌症中心(NCI指定的综合性癌症中心)；a 健壮的临床和转化科学中心(CCATS)；全国知名的统计和数据中心； 强大的梅奥诊所实践，提供深度和广度的临床专业知识在管理 每年向100多万名患者提供大量的严重疾病；最后但并非最不重要的是，超过12万人(和 不断增长的)社交媒体平台，Mayo Clinic Connect--可能是此类以患者为中心的最大电子产品 世界上最大的医疗资源--将为这一规划基础设施的发展奠定基础。 在赠款周期的早期，新颖的、开创性的研究将包括使用这两种方法的需求评估 学习坚持不懈的症状学和坚持不懈的心理社会的定性和定量方法 这些老年患者的困难，这依赖于Mayo Clinic Connect(估计有30%的用户自我报告 65岁以上)匿名联系老年SGM患者，并秘密了解他们的 担忧。这项需求评估将产生一系列年度试点拨款申请。 针对年轻的调查人员。获得试点项目的年轻调查人员将获得以下指导 申请者，从事课程工作，参加每周一系列的研讨会，从一年两次的访问中学习 教授系列，开始学习为老年SGM患者的CCATS课程开发做出贡献，以及 进一步开始他们作为这一领域的调查人员的职业生涯。各自领域的国家/国际专家 一名患者权益倡导者将在一个咨询委员会任职，提供为期5年的规划指导 格兰特循环。这些努力注定要建立一个可持续的、有资金支持的研究计划，以改善 患有严重疾病的老年SGM患者的生活。

项目成果

Understanding Disparities: A Case Illustrative of the Struggles Facing Transgender and Gender Diverse Patients With Cancer.

了解差异：一个案例说明跨性别和性别多样化癌症患者面临的斗争。

• DOI: 10.6004/jnccn.2023.7005
• 发表时间: 2023
• 期刊: Journal of the National Comprehensive Cancer Network : JNCCN
• 作者: Cathcart-Rake,ElizabethJ;Kling,JulianaM;Carroll,EvelynF;Davidge-Pitts,Caroline;Le-Rademacher,Jennifer;Ridgeway,JenniferL;Gonzalez,CesarA;Jatoi,Aminah
• 通讯作者: Jatoi,Aminah