Older Sexual and Gender Minority Patients with Serious Illness: Program-Building to Identify and Address Needs

患有严重疾病的老年性和性别少数患者：建立项目以确定和满足需求

• 批准号: 10684915
• 负责人: Aminah Jatoi
• 金额: $ 14.91万
• 依托单位: MAYO CLINIC ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-01 至 2027-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10684915
• 关键词: Address; Advisory Committees; Advocate; Age Years; Aging; Anxiety; Applications Grants; Award; Caring; Cessation of life; Child; Clinic; Clinical; Clinical Sciences; Comprehensive Cancer Center; Data; Development; Diagnosis; Discrimination; Disease; Disparity; Do Not Resuscitate Order; Educational Curriculum; Elderly; Environment; Face; Family; Funding; General Population; Goals; Grant; Health Personnel; Healthcare; Home; Individual; Infrastructure; Inpatients; Institution; International; Intersex; Interview; Leadership; Learning; Lesbian Gay Bisexual; Lesbian Gay Bisexual Transgender; Loneliness; Malignant Neoplasms; Mayo Clinic Cancer Center; Medical Electronics; Medical Staff; Medicare; Mental Depression; Mental Health; Mentors; Methodology; Minnesota; Needs Assessment; Oncologist; Outcome; Palliative Care; Participant; Pastoral Care; Patient Self-Report; Patients; Persons; Physicians; Pilot Projects; Positioning Attribute; Principal Investigator; Program Development; Psychosocial Influences; Publications; Religion; Religiosity; Request for Applications; Research; Research Personnel; Research Proposals; Resources; Review Literature; Risk; Same-sex; Series; Sexual and Gender Minorities; Social support; Surveys; Symptoms; Translational Research; Underserved Population; United States National Institutes of Health; Visit; asexual; cancer therapy; career; career development; clinical center; course development; data centers; end of life; experience; family structure; gender minority group; human old age (65+); improved; interest; intersectionality; lectures; minority patient; multidisciplinary; novel; older patient; palliation; preference; professor; programs; psychosocial; queer; recruit; sexual minority men; sexual minority women; social; social media; statistics; symposium; symptomatology; transgender; two spirit

This NIA K07 Academic Leadership Career Award resubmission entitled, “Older Sexual and Gender Minority Patients with Serious Illness: Program-Building to Identity and Address Needs,” seeks to help these understudied and underserved groups of patients, who, in the face of advanced age and serious illness, are more likely to be single, living alone, without children, lacking in social support, and at risk for and fearful of discrimination. The applicant is a senior physician at Mayo Clinic and has a long track record of research in studying symptoms and psychosocial issues in ill patients (400+ publications), mentoring (50+ mentees + principal investigator/program director of career development program K12CA090628-20), and serving as a leader in both her home institution and nationally. This track record and these experiences are brought to this application with the goal of understanding and addressing the unmet needs of these groups of older sexual and gender minority (SGM) patients – defined by the NIH as “individuals who identify as lesbian, gay, bisexual, transgender, two-spirit, queer, and/or intersex.” A uniquely rich institutional environment that includes the Kogod Center on Aging; the Mayo Clinic Cancer Center (an NCI-designated comprehensive cancer center); a robust Center for Clinical and Translational Science (CCATS); a nationally renowned statistics and data center; the robust Mayo Clinic practice, which provides depth and breadth of clinical expertise in the management of a vast array of serious illnesses to over 1 million patients per year; and, last but not least, the 120,000+ (and growing) social media platform, Mayo Clinic Connect -- perhaps the largest such patient-centric electronic medical resource in the world -- will set the stage for the development of this programmatic infrastructure. Novel, ground-breaking research early in the grant-cycle will consist of a needs-assessment that uses both qualitative and quantitative methodology to learn the unremitting symptomatology and unrelieved psychosocial hardships of these older patients and that relies on Mayo Clinic Connect (an estimated 30% of users self-report as 65+ years of age) to reach older SGM patients anonymously and to learn confidentially about their concerns. This needs assessment will give rise to a series of annual requests for pilot grant applications aimed at young investigators. Young investigators who are awarded a pilot project will acquire mentoring from the applicant, engage in coursework, participate in a weekly seminar series, learn from a biannual visiting professor series, begin to learn to contribute to CCATS course development on older SGM patients, and further launch their careers as investigators in this field. National/international experts in their respective fields and a patient advocate will serve on an advisory committee, providing programmatic guidance over the 5-year grant cycle. These efforts are destined to establish a sustainable, funded research program to improve the lives of older SGM patients with serious illness.

这个NIA K 07学术领导职业奖重新提交题为“老年性和性别少数 严重疾病患者：确定身份和满足需求的方案建设”旨在帮助这些 未得到充分研究和服务的患者群体，他们面对高龄和严重疾病， 更有可能是单身，独自生活，没有孩子，缺乏社会支持，并有风险和恐惧， 歧视申请人是马约诊所的资深医生，在以下方面有长期的研究记录： 研究患者的症状和心理社会问题（400多篇出版物），指导（50多名学员+ 职业发展项目K12 CA 090628 -20的首席研究员/项目总监），并担任 在她的家乡机构和国家领导人。这些记录和经验被带到这里 目的是了解和解决这些老年性行为者群体未得到满足的需求， 和性别少数（SGM）患者-由NIH定义为“个人谁确定为女同性恋，男同性恋，双性恋， 跨性别者双灵者同性恋者双性者”一个独特的丰富的制度环境，包括 Kogod老龄化中心;马约诊所癌症中心（一个NCI指定的综合癌症中心）; 强大的临床和转化科学中心（CCATS）;全国知名的统计和数据中心; 强大的马约诊所的做法，它提供了深度和广度的临床专业知识的管理， 每年有超过100万患者患有各种严重疾病;最后但并非最不重要的是，12万多人（以及 不断增长）的社交媒体平台，马约诊所连接-也许是最大的此类以患者为中心的电子 世界上最大的医疗资源--将为这一方案基础设施的发展奠定基础。 新颖的，突破性的研究在赠款周期的早期将包括一个需求评估， 定性和定量的方法来学习不懈的精神病学和未缓解的心理社会学 这些老年患者的困难，并依赖于马约诊所连接（估计30%的用户自我报告 65岁以上）匿名接触老年SGM患者， 性问题这一需求评估将导致每年提出一系列试点赠款申请 针对年轻的调查员。被授予试点项目的年轻调查人员将获得 申请人，从事课程工作，参加每周系列研讨会，从一年两次访问中学习 教授系列，开始学习为老年SGM患者的CCATS课程开发做出贡献， 进一步开展他们在这一领域的调查工作。各自领域的国家/国际专家 一名患者倡导者将在一个咨询委员会中任职，在5年内提供项目指导， 赠款周期。这些努力注定要建立一个可持续的，资助的研究计划，以改善 患有严重疾病的老年SGM患者的生活。

项目成果

Understanding Disparities: A Case Illustrative of the Struggles Facing Transgender and Gender Diverse Patients With Cancer.

了解差异：一个案例说明跨性别和性别多样化癌症患者面临的斗争。

• DOI: 10.6004/jnccn.2023.7005
• 发表时间: 2023
• 期刊: Journal of the National Comprehensive Cancer Network : JNCCN
• 作者: Cathcart-Rake,ElizabethJ;Kling,JulianaM;Carroll,EvelynF;Davidge-Pitts,Caroline;Le-Rademacher,Jennifer;Ridgeway,JenniferL;Gonzalez,CesarA;Jatoi,Aminah
• 通讯作者: Jatoi,Aminah