ADMIN CORE

管理核心

• 批准号: 10669061
• 负责人: Steven Upshaw Walkley
• 金额: $ 13.06万
• 依托单位: ALBERT EINSTEIN COLLEGE OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-07-23 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10669061
• 关键词: Address; Advisory Committees; Advocacy; Animals; Basic Science; Black race; Budgets; Child; Clinic; Clinical; Clinical Research; Collaborations; Communication; Communication impairment; Communities; Community Outreach; Coupled; Disease; Educational workshop; Effectiveness; Ensure; Evaluation; Event; Faculty Recruitment; Family; Family Physicians; Feedback; Fostering; Funding; Gene Expression; Genes; Goals; Grant; Hispanic; Hospitals; Human; Human Resources; Inequity; Infrastructure; Intellectual and Developmental Disabilities Research Centers; Intellectual functioning disability; International; Leadership; Link; Medical Students; Medical center; Medicine; Mentors; Minority Participation; Mission; Modernization; Monitor; Mutation; Neurons; Newly Diagnosed; Newsletter; Pediatric Hospitals; Phenotype; Pilot Projects; Play; Population; Postdoctoral Fellow; Poverty; Procedures; Publications; Quality Control; Rare Diseases; Recruitment Activity; Rehabilitation Centers; Research; Research Personnel; Research Project Grants; Resources; Role; Scientist; Strategic Planning; Supervision; Surveys; System; Training; Training Programs; Translational Research; Underrepresented Populations; United States National Institutes of Health; Universities; Vision; Work; arm; cellular engineering; cellular imaging; clinical phenotype; college; cost effectiveness; graduate student; innovation; interest; meetings; member; minority children; neurogenomics; next generation; operation; outreach; participant enrollment; post-doctoral training; precision medicine; programs; recruit; scaffold; social media; success; symposium; web site

PROJECT SUMMARY/ABSTRACT (Core A: ADMINISTRATIVE – ADM) The primary functions of the Administrative Core (Core A, ADM) are to provide strong, consistent scientific leadership and to enunciate and execute a clear vision for the scientific direction of the Rose F. Kennedy IDDRC at Einstein/Montefiore. This is achieved through active supervision and evaluation of the 4 scientific Cores that provide the fundamental infrastructure of the Center, and which are coupled to, and tightly integrated with, our Research Project focused on intellectual disability in KDM5C disease. ADM Core directors (Drs. Walkley and Molholm) work tirelessly to build an inclusive and vital community at Einstein/Montefiore focused on IDD research. They act to ensure prioritization of access by IDDRC investigators to these scientific Cores and consistently monitor Core utilization, quality control and cost effectiveness. They also ensure scientific Core optimization and modernization through regular monitoring as well as a rigorously pursued annual survey. The leadership promotes the activities and successes of the Center and its investigators through dissemination of IDDRC work via our website, internal and external publications including an annual newsletter and national media outlets, and through active participation in the National IDDRC Network. ADM personnel organize annually the Isabelle Rapin Conference on Communication Disorders and International Rare Disease Day, as well as specialized mini-workshops to promote investigator collaborations and community outreach. The ADM Core is also the major outreach arm that acts to connect basic science labs at Einstein with IDD-focused clinics, including those at the Children’s Hospital at Montefiore (CHAM) and the Children’s Evaluation and Rehabilitation Center (CERC) at Einstein. This is accomplished by various means, including our College-funded pilot grant program that draws new investigators into the field of IDD research and provides seed funds for innovative work related to IDD, as well as our innovative and highly successful program in precision medicine knows as Operation IDD Gene Team. These efforts are tightly coupled to our newly funded IDD T32 postdoctoral training grant which itself is integrated into ongoing efforts to foster IDD involvement and training of Einstein medical and graduate students. The RFK Directors work with their Executive Committee to lead the Center and rely on other standing committees (Internal and External Advisory Committees and Family Advisory Committee) for strategic planning and feedback. Representation of URMs in training, faculty recruitment and patient enrollment are strongly supported here in our Bronx-based IDDRC. Through committed leadership and vigorous advocacy on behalf of IDD research, the ADM Core aggressively promotes excellence in IDD-related basic, clinical and translational research at Einstein/Montefiore.

项目概要/摘要（核心A：行政- ADM） 管理核心（核心A，ADM）的主要功能是提供强大的，一致的科学 领导，并阐明和执行一个明确的愿景，为科学方向的玫瑰F。肯尼迪 IDDRC在Einstein/Montefiore。这是通过积极监督和评价4项科学 核心，提供中心的基本基础设施，与中心紧密耦合， 结合，我们的研究项目集中在KDM 5C疾病的智力残疾。核心主任 (Drs. Walkley和Molholm）不懈努力，在Einstein/Montefiore建立一个包容和充满活力的社区 专注于IDD研究。他们采取行动，确保IDDRC调查人员优先获得这些科学资料， 核心和持续监控核心利用率，质量控制和成本效益。它们还确保 通过定期监测和严格执行科学的核心优化和现代化 年度调查。领导层促进中心及其调查人员的活动和成功 通过我们的网站、内部和外部出版物，包括年度 通过通讯和国家媒体渠道，并通过积极参与国家非洲工发十年网络，ADM 工作人员每年组织伊莎贝尔·拉宾交流障碍会议和国际 罕见病日，以及专门的小型研讨会，以促进研究者的合作， 社区外展ADM核心也是主要的外展手臂，它将基础科学实验室连接在一起， 爱因斯坦与以IDD为重点的诊所，包括蒙蒂菲奥里儿童医院（CHAM）和 儿童评估和康复中心（CERC）在爱因斯坦。这是通过各种手段实现的， 包括我们的大学资助的试点赠款计划，吸引新的调查人员进入碘缺乏病研究领域 并为与缺碘症有关的创新工作提供种子基金，以及我们的创新和非常成功的 精准医疗项目被称为IDD基因团队行动。这些努力与我们的 新资助的IDD T32博士后培训补助金本身已纳入正在进行的促进IDD的努力 参与和培训爱因斯坦医学和研究生。RFK董事与他们的 执行委员会领导中心并依靠其他常设委员会（内部和外部咨询委员会） 委员会和家庭咨询委员会）进行战略规划和反馈。统一登记机制的代表性 培训，教师招聘和患者登记在我们的布朗克斯IDDRC这里得到大力支持。 通过致力于IDD研究的领导和积极倡导，ADM核心积极地 在Einstein/Montefiore促进与缺碘症有关的基础、临床和转化研究的卓越成就。