Recovery Support for Bladder CA Patients and Caregivers: A Multimodal Approach

膀胱 CA 患者和护理人员的康复支持:多模式方法

基本信息

项目摘要

ABSTRACT Treatment for muscle invasive bladder cancer (MIBC) involves the removal of the bladder and construction of a new voiding system and is physically and psychologically profoundly challenging for patients and caregivers. Based on our published literature and extensive pilot data, patients and caregivers have extensive unmet informational, social, psychological, instrumental, and medical needs from the time of diagnosis, through treatment and recovery which are not adequately addressed by health care professionals. We propose to address these unmet needs through the refinement and evaluation of a comprehensive, 2-part (in-person and web-based) intervention, geared towards the patient and caregiver. Specifically, during Aim 1, the formative phase, we propose to further refine our newly developed intervention components with the help of an established patient/caregiver advisory board. The intervention, Recovery Support for Bladder Cancer (RSBC), consists of a pre-treatment, in-person preparatory instructional session with a trained health care professional (Module 1) to equip patients and caregivers with the skills to adjust to the upcoming treatment and recovery period. This is followed by a post-treatment, interactive web-based program (Module 2) to provide further support for both patients and caregivers to enhance quality of life (QOL) and reduce infections and nurse/ER visits. The RSBC intervention will be evaluated in a 12-month randomized controlled trial (Aim 2) among patients and caregiver dyads (N=330 initial; 230 final sample) against a time and attention comparison condition that incorporates standard of care discharge instructions and modules focusing on wellness. Primary outcomes for both patients and caregivers will be improved QOL, which is hypothesized to be significantly higher among participants randomized into RSBC. Secondary outcomes will be fewer infections and nurse- ER visits for patients randomized into RSBC. Aim 3 proposes moderator (i.e., age, gender, surgical diversion type) and mediator (i.e., patient activation, distress) analyses of intervention efficacy. We hypothesize that RSBC will be significantly more successful among (a) older, (b) female participants, and (c) patients with a conduit diversion type. Elevated levels of patient activation (i.e., higher self-care knowledge, self-efficacy, lower distress) will mediate the intervention effects. Exploratory Aim 4 will examine the costs and potential savings associated with developing and implementing the RSBC intervention. We hypothesize that initial development and implementation costs of RSBC will be offset by reduced nurse/ER visits. The scientific premise is strong and supported by an established theoretical framework, extensive pilot data and a rigorous application of clinical research methods. The proposed study is highly innovative, as it comprehensively addresses unmet needs of both patients and caregivers from pre- and (immediate) post-treatment to recovery. This is achieved through an innovative combination of in-person preparation and skill-building and web-based technology. If successful, RSBC has the potential to significantly change clinical care for patients and caregivers with MIBC.
摘要

项目成果

期刊论文数量(5)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
Management of Distress in Patients with Cancer-Are We Doing the Right Thing?
Patterns of alcohol use among early head and neck cancer survivors: A cross-sectional survey study using the alcohol use disorders identification test (AUDIT).
  • DOI:
    10.1016/j.oraloncology.2021.105328
  • 发表时间:
    2021-08
  • 期刊:
  • 影响因子:
    4.8
  • 作者:
    Teckie, Sewit;Wotman, Michael;Marziliano, Allison;Orner, David;Yi, Jungen;Mulvany, Colm;Ghaly, Maged;Parashar, Bhupesh;Diefenbach, Michael A.
  • 通讯作者:
    Diefenbach, Michael A.
{{ item.title }}
{{ item.translation_title }}
  • DOI:
    {{ item.doi }}
  • 发表时间:
    {{ item.publish_year }}
  • 期刊:
  • 影响因子:
    {{ item.factor }}
  • 作者:
    {{ item.authors }}
  • 通讯作者:
    {{ item.author }}

数据更新时间:{{ journalArticles.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ monograph.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ sciAawards.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ conferencePapers.updateTime }}

{{ item.title }}
  • 作者:
    {{ item.author }}

数据更新时间:{{ patent.updateTime }}

Michael A Diefenbach其他文献

USING GROWTH CURVE MODELING TO EXAMINE QUALITY OF LIFE AMONG PROSTATE CANCER SURVIVORS: RESULTS FROM A 36 MONTHS LONGITUDINAL STUDY
  • DOI:
    10.1016/s0022-5347(08)61156-8
  • 发表时间:
    2008-04-01
  • 期刊:
  • 影响因子:
  • 作者:
    Michael A Diefenbach;William Dudley
  • 通讯作者:
    William Dudley

Michael A Diefenbach的其他文献

{{ item.title }}
{{ item.translation_title }}
  • DOI:
    {{ item.doi }}
  • 发表时间:
    {{ item.publish_year }}
  • 期刊:
  • 影响因子:
    {{ item.factor }}
  • 作者:
    {{ item.authors }}
  • 通讯作者:
    {{ item.author }}

{{ truncateString('Michael A Diefenbach', 18)}}的其他基金

Reducing Burden in Care Partners of Community-Dwelling Persons with Dementia and Oropharyngeal Dysphagia
减轻社区居民痴呆症和口咽吞咽困难患者护理伙伴的负担
  • 批准号:
    10570435
  • 财政年份:
    2023
  • 资助金额:
    $ 49.72万
  • 项目类别:
Recovery Support for Bladder CA Patients and Caregivers: A Multimodal Approach
膀胱 CA 患者和护理人员的康复支持:多模式方法
  • 批准号:
    10216197
  • 财政年份:
    2018
  • 资助金额:
    $ 49.72万
  • 项目类别:
Recovery Support for Bladder CA Patients and Caregivers: A Multimodal Approach
膀胱 CA 患者和护理人员的康复支持:多模式方法
  • 批准号:
    10436957
  • 财政年份:
    2018
  • 资助金额:
    $ 49.72万
  • 项目类别:
Novel Approach to Facilitate Decisions in Patients w/ Muscle Invasive Bladder CA
促进肌肉侵袭性膀胱 CA 患者决策的新方法
  • 批准号:
    8876159
  • 财政年份:
    2015
  • 资助金额:
    $ 49.72万
  • 项目类别:
Novel Approach to Facilitate Decisions in Patients w/ Muscle Invasive Bladder CA
促进肌肉侵袭性膀胱 CA 患者决策的新方法
  • 批准号:
    9057990
  • 财政年份:
    2015
  • 资助金额:
    $ 49.72万
  • 项目类别:
Decision Making For Active Surveillance in Prostate Cancer Patients and Spouses
前列腺癌患者和配偶主动监测的决策
  • 批准号:
    8534064
  • 财政年份:
    2012
  • 资助金额:
    $ 49.72万
  • 项目类别:
Decision Making For Active Surveillance in Prostate Cancer Patients and Spouses
前列腺癌患者和配偶主动监测的决策
  • 批准号:
    8386407
  • 财政年份:
    2012
  • 资助金额:
    $ 49.72万
  • 项目类别:
Brief Intervention to Improve QOL & Couple Functioning after Prostate Surgery
改善生活质量的简短干预
  • 批准号:
    8301574
  • 财政年份:
    2011
  • 资助金额:
    $ 49.72万
  • 项目类别:
Brief Intervention to Improve QOL & Couple Functioning after Prostate Surgery
改善生活质量的简短干预
  • 批准号:
    8190005
  • 财政年份:
    2011
  • 资助金额:
    $ 49.72万
  • 项目类别:
Trajectories of QOL in Prostate Cancer Survivors using Growth Curve Modeling
使用生长曲线模型研究前列腺癌幸存者的生活质量轨迹
  • 批准号:
    7476125
  • 财政年份:
    2008
  • 资助金额:
    $ 49.72万
  • 项目类别:

相似海外基金

Life outside institutions: histories of mental health aftercare 1900 - 1960
机构外的生活:1900 - 1960 年心理健康善后护理的历史
  • 批准号:
    DP240100640
  • 财政年份:
    2024
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Discovery Projects
Development of a program to promote psychological independence support in the aftercare of children's homes
制定一项计划,促进儿童之家善后护理中的心理独立支持
  • 批准号:
    23K01889
  • 财政年份:
    2023
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Grant-in-Aid for Scientific Research (C)
Integrating Smoking Cessation in Tattoo Aftercare
将戒烟融入纹身后护理中
  • 批准号:
    10452217
  • 财政年份:
    2022
  • 资助金额:
    $ 49.72万
  • 项目类别:
Integrating Smoking Cessation in Tattoo Aftercare
将戒烟融入纹身后护理中
  • 批准号:
    10670838
  • 财政年份:
    2022
  • 资助金额:
    $ 49.72万
  • 项目类别:
Aftercare for young people: A sociological study of resource opportunities
年轻人的善后护理:资源机会的社会学研究
  • 批准号:
    DP200100492
  • 财政年份:
    2020
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Discovery Projects
Creating a National Aftercare Strategy for Survivors of Pediatric Cancer
为小儿癌症幸存者制定国家善后护理策略
  • 批准号:
    407264
  • 财政年份:
    2019
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Operating Grants
Aftercare of green infrastructure: creating algorithm for resolving human-bird conflicts
绿色基础设施的善后工作:创建解决人鸟冲突的算法
  • 批准号:
    18K18240
  • 财政年份:
    2018
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Grant-in-Aid for Early-Career Scientists
Development of an aftercare model for children who have experienced invasive procedures
为经历过侵入性手术的儿童开发善后护理模型
  • 批准号:
    17K12379
  • 财政年份:
    2017
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Grant-in-Aid for Scientific Research (C)
Development of a Comprehensive Aftercare Program for children's self-reliance support facility
为儿童自力更生支持设施制定综合善后护理计划
  • 批准号:
    17K13937
  • 财政年份:
    2017
  • 资助金额:
    $ 49.72万
  • 项目类别:
    Grant-in-Aid for Young Scientists (B)
Project#2 Extending Treatment Effects Through an Adaptive Aftercare Intervention
项目
  • 批准号:
    8742767
  • 财政年份:
    2014
  • 资助金额:
    $ 49.72万
  • 项目类别:
{{ showInfoDetail.title }}

作者:{{ showInfoDetail.author }}

知道了